Fibromyalgia Pain

Discussion in 'General Health & Wellness' started by Defender, Jun 16, 2010.

  1. Defender

    Defender New Member

    I was diagnosed with FB 3 years ago. Fatigue was biggest issue then with sporatic muscle spasms, which were painful. I pushed myself physically and this past year my physical health hit an all time disaster high. I'm 58 and I want my life back. The pain in my lower back is just becoming so severe and constant I have cried myself to sleep. I have RLS from diabetes, carpel tunnel, arthritis in my back, bursitis in my left hip and both shoulders, degenerative arthriti in both knees and I have started to suffer from opthamolic migrains and full blwon migraines when I am very stressed. I am a jury consultant (Part time NOW) for criminal defense and I have been told stress is a major trigger for all of my FM issues. A year ago I fell down my stairs and broke my R arm, pulled muscles in my L knee and tore my L rotator cup and two weeks later tore my L rotator cup from compensating for the injury to the L. Does anyone, ANYONE, suffer from debilitating lower back pain (almost hip to hip - best description) and ache almost all over that by 6 in the afternoon I am in unbelievable PAIN? I take generic flexaril for muscle spasms, which are daily, (1) Ibuprofen 800 mg. at night and clonazepaem
    1/2 mg. of that at night to sleep. Yet, I have insomnia EVERY SINGLE NIGHT. I don't want to live on pills. The flexaril generic, yes, I need it. I cannot take sleeping pills. Does ANYONE have these issues and if so, what helps? I'm depressed from the chronic pain and angry that I can't do the things I use to do before the FM days.Please - if you have suggestions, I need help.
    Thank you.
  2. callie99

    callie99 New Member

    Hi Defender,
    Yes i have chronic pain all the time but maybe not to your extent. I find that I have to get up at least two hours before work to get my body working. When I wake up in the morning I have pain in my back, numbness in my hips and my hands and feet are so stiff and swollen, To actually get out of bed is a struggle, my hands are useless to me and I know the minute I put my feet on the floor I am going to have to hold on to something, until the initial pain of standing slightly dulls. I get migraine and dizzy spells and also have IBS . I didnt want to go on pills either but I finally broke down and went to see my doctor.
    It of course took him and many specialists two and a half years to diagnose me with Fibro.
    and Arthritis. The medication he put me on is Lyrica which I take twice a day and Tridural which I take before bed. It helped me tremendously at first. now I think my body has gotten used to it, the pain is back but with the help of theses meds I can manage it. I find that if I make myself get out of bed and go to work just keeping busy helps. Its when I stop I find my self barely able to walk or even function. Unfortunately this, as we all know is not something that can be cured. Every day is an effort but I make myself think of happy thoughts and "try to keep smiling". There are always others out there worse off than me and I try to be thankfull for the good things I have in my life. Sometimes it gets me through another day. I just want you to know there are others out here that know just what you are going through. Finally I can say its not in my head...there are others out there that know and feel my pain. Its good to be able to talk to someone who actually understands. Take care Defender and all of you out there that read this. Callie
  3. Nanie46

    Nanie46 Moderator

    It is possible that many of your problems have stemmed from a chronic Borrelia burgdorferi infection (lyme).

    A chronic Borrelia burgdorferi infection commonly causes pain, fatigue, insomnia, arthritis, easy musculoskeletal injuries, muscle spasms or twitches, headaches, and many other symptoms.

    Please take a look at this info which contains a great symptom list.....


    http://www.lymepa.org/Basics2007v1.2Rev.pdf




    Here is a paper written by a lyme expert. there is a great symptom list on pages 9-11 and great info on common coinfection symptoms (Babesia, Bartonella, Ehrlichia) on pages 22-27...


    http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf


    My biggest mistake was thinking that fibromyalgia was my final diagnosis and I always researched "fibromyalgia".

    After 21 years, I started looking at it as a symptom of a larger picture, and I found my answer.

    99% of Dr's do not know how to recognize, diagnose or treat chronic lyme. Many Dr's mistakenly rule it out when they see a negative test result, which is very wrong.

    Many people do not consider that they could have Lyme because they already have a diagnosis which seems correct.

    It is important to remember that Lyme is a complex bacterial infection that can cause all of the symptoms you mentioned...and it sounds like you do not know the cause of your illness.

    All the best to you.
  4. FibroOne

    FibroOne New Member

    Wow Defender sounds like you need a rubber suit, I was diagnosed with a multitude of things (too many doctors) over the years and the latest (currently ) is fibro. I've had my share of bodily insults, rear ended 5 (count 'em five) times over 30 years, two motorcycle accidents racing, and two airplane incidents (I wasnt really hurt in these but add them for drama).
    In the modern diagnosis of Fibro, seems you can add almost any symptom and have no fear of contradiction. Fibro, for me is pain. headaches are headaches, migrane headaches are bad headaches (imitrex works for me) flu like symptoms is either flu, mild flu, drug side effects, I take zinc supplements at the first sign of flu or cold symptoms, use chewable antiacids for neausea, If I'm quick or observent enough the "flu/cold" goes away, RLS responds well to requip, but requip makes you twitch still the RLS is more noxious than the twitching and the twitching is usually transient so I take the requip.
    Insomnia means either you can't fall asleep, or stay asleep or don't sleep or any combination of the three. Face it kids (I can call most of you kids because I'm an old guy) Some of us just don't, can't won't sleep. Best way to get some sleep is to go to bed. If you can sleep anywhere, in a chair, standing up, on a couch, sitting on the, well that's an old guys spot. then it's just a matter of confidence that you slept X therefore you can sleep in bed, just have to remove the roadblocks. When you have pain or even worse RLS you almost make it to sleep then AARHWWg!!! RLS, makes you crazy, try requip, persue it with the guy that treats Parkinsons (and no you don't have Parkinsons (Probably), it's ** PARKINSONS**) not to be confused with anything little. iF YOU GROW UP TO BE A NON-SLEEPER, like me or Edison or Leonardo da Vinci, enjoy it , I out do all the other kids by wit and wile and long hours!
    Fibro is not big, it's not a stick in the eye or a dropped anvil on a bare toe, it's falling asleep outside on a warm summer day, slight breeze blowing soft grass beneath you and wakeing up covered with fire ants being eaten by an enraged Tasmanian devil on fire from some charcter from deliverance that just set him on fire with a flame thrower. Year after year it just gets funnier (not).
    And then theirs Lymes disease, a whole other story, as is how I manage all this.
    Tick-tock tick-tock gotta go duty calls if you want to know "the rest of the story" send me a message and I will respond

    fA
  5. DayByDazey

    DayByDazey New Member

    Just diagnosed by Rheumatologist last week with Fibro, OA, RA, & Diabetic Neuropathy. Have had bilateral carpel tunnel surgery 1995 & a 2nd CP surgery on R wrist for scar tissue. Yes I have FM hip to hip in back pain. Jeez Louise!! On 1 Flexeril, 2 Imipramine, 1 Clonazapam at bedtime-don't know for you but, this combo at nite helps me sleep most nights all nite. Voltaren as of last week from Rheuma. X-ray of feet- almost all Cartilege gone from L foot & most of r foot. Osteo & Rheumatoid Arthritis is getting worse. Type II diabetes. Take Tylenol Arthritis. Having skeletal Nuclear Bone Scan tomorrow. I meet with Rheum next week on bloodwork & bone scan. Good Luck. DayByDazey
  6. onna

    onna New Member

    yes i do
  7. jenlo

    jenlo New Member

    I have fibromyalgia, but not so severe. I have tried Lyrica, Prozac, and migraine meds. I also do massage therapy and chiro. I find that diet and exercise help me more than meds. I avoid sugar and dairy. When I don't eat sugar, I have more energy and sleep better. When I don't eat dairy, I breathe better and sleep better. When I stretch in the morning, I feel better throughout the day. I lay on my back in the floor and roll my hips back and forth. It is both a stretch and a massage for those knots on my hips. I watch my posture. Constant hunching over in fetal position seems natural but causes more pain and stiffness in neck, shoulders, back. I consciously pull my head up and shoulders back many times a day. Daily exercise is important too - start slow, overdoing it will make you worse. I need to be more regular with my exercise. I enjoy my Wii Fit and also walking outside in the afternoon. Exercise helps with endorphins, seratonin, etc., and helps me sleep better at night. When I can't sleep, I have rules. I can do stretches, drink sleepy tea, read something boring, but no Internet or TV - the goal is not to stay up all night, the goal is to stretch, get sleepy, and try again! Sleep is key!
  8. qt1999qt

    qt1999qt New Member

    I am at my wits end. I am 29 years old I was diagnosed with fibromyalgia when I was 19 years old. I broke my left foot at 17, had to have surgery and a screw inside the bone. Then shortly before I was diagnosed with fibro. my doctor diagnosed me with Mono. I have severe pain and stiffness. Depression, Headaches daily, migraines at least 1 time a month. Muscle spasms, restless leg, lots of tension in my upper back, shoulders neck and head. TMJ, ear pain, pain in face around eyes and behind nose, bad pain in my hips, I have been diagnosed with sciatica. Pain and tingling in my feet and hands. Sensitive eyes, very sensitive to cold such as ice packs, cold weather, pain in joints-knees, jaw, and ankles. Weight gain, severe fatigue, irritability. Fatigue, irritability, period cramps, and headaches worsen just before my period. Constipation mostly and at least 8-10 bouts of diahrea a year. Very weak bladder, frequent urinary tract infections, loss of urine when i cough, sneeze, or cry hard. Urinate very often.

    I AM AT MY WITS END!!
  9. qt1999qt

    qt1999qt New Member

    I am at my wits end. I am 29 years old I was diagnosed with fibromyalgia when I was 19 years old. I broke my left foot at 17, had to have surgery and a screw inside the bone. Then shortly before I was diagnosed with fibro. my doctor diagnosed me with Mono. I have severe pain and stiffness. Depression, severe anxiety, Headaches daily, migraines at least 1 time a month. Muscle spasms, restless leg, lots of tension in my upper back, shoulders neck and head. TMJ, ear pain, pain in face around eyes and behind nose, bad pain in my hips, I have been diagnosed with sciatica. Pain and tingling in my feet and hands. Sensitive eyes, very sensitive to cold such as ice packs, cold weather, pain in joints-knees, jaw, and ankles. Weight gain, severe fatigue, irritability. Fatigue, irritability, period cramps, and headaches worsen just before my period. Constipation mostly and at least 8-10 bouts of diahrea a year. Very weak bladder, frequent urinary tract infections, loss of urine when i cough, sneeze, or cry hard. Urinate very often.
    I am currently taking Cymbalta, Wellbutrin, neurontin, and zanaflex, I am tired of the pills, they don't seem to help.

    I AM AT MY WITS END!!
    I am a single mother of a very smart, very emotional 5 year old little girl, very little to no help from her father financially, and he gets her about 1 time a month and lives 2 hours away.

    I don't know how much more pain I can take.
    Any suggestions/ Doctors near Sandusky, Ohio?

    I wouldn't wish this on my worst enemy. And hate for people who don't know what it is like to even know about my condition.. They look at me like i am lying, or wanting attention. Which is no where near true. I do not want to live like this.. I am not even 30 years old yet..

    Please help!
    Lynn

    [This Message was Edited on 10/18/2010]
  10. TwoCatDoctors

    TwoCatDoctors New Member

    How do you know that most members with FM don't visit on this Health Board??? Do they have to post in order to officially have visited?? And you told the poster that if they posted on the fibro board that ALL current members with Fibro would be able to see their request for assistance. But if Fibro members are responding already here, the poster has been seen and is being responded to by Fibro members.

    Just a suggestion, but it might be an idea to simply suggest a poster can also post on the Fibro board and leave out the rest--with the responses this poster has already gotten from members with Fibro, there are lots of good folks here too that care, in addition to the Fibro Board people, so please don't discount those that already responded.