Fibromyalgia & polymyalgia rheumatica

Discussion in 'Fibromyalgia Main Forum' started by Jeanne333, Jul 17, 2003.

  1. Jeanne333

    Jeanne333 New Member

    Does anyone out there have FM and also polymyalgia rheumatica. I was diagnosed with polymyalgia last November and had it under good control with low doses of predisone. Now it seems the doctor says I have FM along with the other disorder. Am in constant pain, weak and tired, shoulder, back, neck, legs especially bad.

    Thanks,
    Jeanne
  2. sierrasioux

    sierrasioux New Member

    Hello
    I just read about it on google. I hope you don't have the giant cell arteritis along with it.
    I have fibro and arthritis, so all the symptons are basically the same. I hope you are getting the pain meds that you need getting a double whammy of all those symptons.
    I also hope you have a good and understanding doctor.
  3. Jeanne333

    Jeanne333 New Member

    Hope I'm replying the right way. I'm a newbie here.

    No, giant cell arteritis was ruled out. But this is sure a set-back. I had CFIDS back in the late 80's and gradually got over it. Did the right things, laid off the caffeine, learned to pace myself as far as exercises go.

    The pain and weakness and insomnia are the biggest problems for me.

    Am seeking assistance from a rheumotologist next month, going over the internist doctor I'm with now.

    Thanks again!
  4. Applyn59

    Applyn59 New Member

    How did they diagnose your poly?
    I have FMS and my aunt has poly.
    How can you tell the difference between the two?
    I have all of your symptoms.

    Sorry I can't be of any help.
    Lynn
  5. Jeanne333

    Jeanne333 New Member

    The doctor took blood tests; sed rate was extremely elevated plus I was anemic! So much for the pain and weakness reason!

    To be sure that it was polymyalgia rheumatica, he prescribed low dose of prednisone, with the statement that if it was polymyalgia rheumatica, I would be pain free in 24 hours! Of course I didn't believe him.

    Well, next morining I awoke and was pain free! So that was he way of dx-ing it.

    Sorry for the delay in replying; been under the weather.

    Jeanne
  6. Mikie

    Mikie Moderator

    FMS often is diagnosed in people with other illnesses, especially MS, CFIDS, and Lupus. It is possible that FMS is a complication of other illnesses or is just a subset of symptoms of many other illnesses. It is often not diagnosed until after the accompanying illness is diagnosed. This may not mean that the FMS didn't come first, however; FMS can take years to manifest itself.

    I have been able to just about reverse the symptoms of FMS with the Guai treatment, but the fatigue and cognitive problems of CFIDS continue to plague me. They are slowly getting better as I concentrate on treating the CFIDS.

    Love, Mikie
  7. Jeanne333

    Jeanne333 New Member

    Thanks, Mikie. Sure would be nice if the CDC or some other organization or specialist could develop a simple blood test for FMS, CFIDS, and other terrible disorders.

    Jeanne