Fibromyalgia solved; A pathology, not in the mind

Discussion in 'News and Research' started by TigerLilea, Oct 19, 2013.

  1. TigerLilea

    TigerLilea Member

    WASHINGTON, October 17, 2013— The National Biotechnology Information Center (NBIC) of the National Institutes of Health (NIH) recently released the findings of research funded by grants from Eli Lilly Pharmaceuticals and Forest Laboratories that claim to have discovered a pathological (the science of cause and effect) cause for fibromyalgia.

    To read the entire story go to:

    http://tinyurl.com/pa8vz8x
  2. jaminhealth

    jaminhealth Well-Known Member

    Interesting, and the one gland they mention in this article is the Hypothalamus.......Dr. Williams just wrote about it again in his recent newsletter that the Hypothalamus is: The Control Center....

    He is again talking about Zembrin in this article and he talked about it last March.....I posted about it and added on to my post the other day. I just ordered a 60 day supply of Zembrin which he says regulates the HAP axis..

    I KNOW my hypothalamus went bonkers when I was hit with fibro in 1999...the fight/fright/flight sydrome of the hypothalamus...when one is traumatized....

    Good article... I hope the Zembrin gives me some help...
  3. jaminhealth

    jaminhealth Well-Known Member

    I just read the link again, and it talks about the temp of blood flowing thru our bodies....interesting too. And mentions people with type 2 diabetes and this link.

    I have a friend is who always HOT.,,,,last night at bridge everyone was comfortable temp wise and she kept complaining about how HOT she was...she was going outside to cool off and then asked the host to turn on the A/C for a while....another woman was complainng she was hot too. So the host turned on the A/C and when it kicked in I got to feeling cold and hurting more....So I asked the host to turn off the A/C which they did...

    So interesting and this article "pushes" cymbalta....which I won't take...MAYBE Zembrin will help regulate my system HAP axis...
  4. mbofov

    mbofov Active Member

    Very interesting - thanks, TigerLilea. It would seem that doctors are taught to automatically assume an illness is all in the patient's mind if the doctor does not have a ready label to put on it. That's horrible training! But they do it both with FM and CFS (and I know it's been the standard response in the past to other illnesses to).

    I often feel like a patient mistakenly confined to an insane asylum, and the more I protest that I'm not crazy, I really do have a very real and serious physiological problem (crashing, which has crashed my life), the more crazy I appear. They don't listen.

    So I'm very glad for people who have FM that this study has come out. Doctors need to be trained differently, to actually listen to patients and take them seriously, but I don't think they are taught that.

    And Jam, it will be very interesting to see if the Zembrin helps you. Also, getting your fibrinogen lowered should help your pain levels too - keep us posted -

    Mary
  5. IanH

    IanH Active Member

    It is nice to see articles supporting the idea that fibromyalgia is a "pathology" and not "all in the mind".
    However this is not the cause of fibromyalgia it is a consequence of it which in turn does produce some symptoms of neuropathy and muscle fatigue with consequent cramps and aching. This is not all there is to FM.

    In addition the idea "it is all in the mind" is a stupid term which confuses people's understanding of the effects of stress on the function of the nervous system, immune system and consequent body wide functioning.

    Articles which claim to have found the cause rarely cover the full gamut of research and hypotheses. They also fail to pursue the cause of their proclaimed "cause".
  6. TigerLilea

    TigerLilea Member

    I'm always suspicious when there is a pharmaceutical company involved in the research.
  7. IanH

    IanH Active Member

    TigerLilea:
    Indeed.
  8. KerryK

    KerryK Member

    I welcome research from pharmaceutical companies as much as from others. Hopefully this leads to improved medications. That the ultimate cause of FM has not been revealed by the research just places FM at the same level of practically every other disease. At least an objective marker may have been found.
  9. Mikie

    Mikie Moderator

    I agree with Ian. Over the years, we have seen so many posts and so many articles and studies cited as having found "the cause" of our illnesses. I'm always surprised that so many people do not understand the difference between a relationship and a cause. There are so many different triggers for our conditions but just because we get sick following a stressful situation, a trauma or an infection doesn't mean it was "the cause." It appears there may be a genetic factor involved and if enough triggers come together, they form a "perfect storm" for making us sick.

    I welcome all the press we can get, including studies, new meds, and attention from the medical community. I think the "it's all in your mind" attitude is waning, especially since the availability of Lyrica and the accompanying TV ads for it as a med for FMS. Family members are often the worst when it comes to telling us it's all in our minds. Once they see the TV ads, they realize it must be something "real." People with seizures used to be put in insane asylums; progress is slow.

    My amino acid solution injections (formerly called peptide injections) stop the symptoms of all my conditions but I do not consider them a cure. They correct the brain's inability to assemble the proper sequence of amino acids to produce proteins which can perform their jobs in the body but no one knows why some brains can't do this without the injections to retrain them.

    I do not like using the two "C" words: Cause and Cure.

    Love, Mikie
  10. Keggette

    Keggette Member

    I have a sister who is suffering severely from FM and RH. She is in severe pain. She went to Florida and got one amino acid shot. She had to be off all prior medication prescribed by doctors for over 10 days in order to get the shot. Now she is waiting for a shipment for her next injection and she is in terrible pain. her hands are swollen and all she does is take pain pills and sleep. I am deeply worried about her and none of us know where to turn. The Dr that gave her the first shot is supposed to be shipping the medication to her but we cant get him to return calls.
    It does not sound good. I dont know a lot about this drug. All I know is all her hopes are on this to feel better. This drug is not approved by the FDA and the dr she saw in FLA (DR Dakos) works with someone in England to get the drug. Otherwise she has to go back to the old meds which was some form of chemotherapy that has all kinds of side effects including hair loss. Any advice you can provide is much appreciated.
  11. jaminhealth

    jaminhealth Well-Known Member

    One of our board members is having this issue with Dakos, look for her posting....she is unable to get her injections or talk to them.
  12. Keggette

    Keggette Member

    She has FM & RA, sorry. Does anyone know any other doctors that do the peptide shots? Wonder if the board member could contact me.