Discussion in 'Fibromyalgia Main Forum' started by tlc8858, Sep 2, 2003.

  1. tlc8858

    tlc8858 New Member

    Hi all, I was visiting the National Fibromyalgia Association webesite and came across this really neat letter called Fibromyalgia Talks to you. If you get a minute, so and look it up. It is the neatest thing. It is written from the viewpoint of the disease itself.
  2. mkhredhead

    mkhredhead New Member

    I can't find it!? Sounds like something clever too.
    Mary Kay
  3. Solstice

    Solstice New Member

    More info about how to find it please.
  4. AnnetClo

    AnnetClo New Member

    Hi. .
    My Name is Fibromyalgia, and I'm YOUR Invisible Chronic Illness. I am now velcro'ed to you for life. Others around you can't see me or hear me, but YOUR body feels me. I can attack you anywhere and anyhow I please. I can cause severe pain or, if I'm in a good mood, I can just cause you to ache all over. Remember when you and Energy ran around together and had fun?

    I took Energy from you, and gave you Exhaustion. Try to have fun now! I also took Good Sleep from you and, in its place, gave you Brain Fog. I can make you tremble internally or make you feel cold or hot when everyone else feels normal. Oh, yeah, I can make you feel anxious or depressed, too. If you have something planned, or are looking forward to a great day, I can take that away, too.

    You didn't ask for me. I chose you for various reasons: That virus you had that you never recovered from, or that car accident, or maybe it was the years of abuse and trauma. Well, anyway, I'm here to stay! I hear you're going to see a doctor who can "get rid" of me. I'm rolling on the floor, laughing. Just try. You will have to go to many, many doctors until you find one who even BELIEVES I EXIST. You will be put on pain pills, sleeping pills,
    energy pills, told you are suffering from anxiety or depression, given a TENs unit, get massaged, told if you just sleep and exercise more I will go away, told to think positive, poked, prodded, and MOST OF ALL, laughed at when you tell the doctor I am debilitating.

    Your family, friends and co-workers will all listen to you until they just get tired of hearing about how I make you feel, and that I'm a real disease. Some of they will say things like "Oh, you are just having a bad day" or "Well, remember, you can't do the things you use to do 20 YEARS ago", not hearing that you said 20 DAYS ago. Some will just start talking behind your back, while you slowly feel that you are losing your dignity trying to make them understand, especially when you are in the middle of a conversation with a "Normal" person, and can't remember what you were going to say next! Eventually, most of them will be like all the doctors who say "It's All In Your Head".

    In closing, (I was hoping that I kept this part a secret), but I guess you already found out. . . the ONLY place you will get any support and understanding in dealing with me is with Other People With Fibromyalgia.

  5. Julygal

    Julygal New Member

    I don't think there are any of us with these DDD's that don't feel frustrated by family and/or friends not understanding. This is yet another way to share with them.
    I TRY not to worry so much about what others think, but it is SO helpful when they do or at least try to understand.
    God bless,
  6. tlc8858

    tlc8858 New Member

    Thanks for copying it for those who could not find it. I think it just about sums up this disease. I plan on giving a copy to all my family and friends.
  7. betsiboo

    betsiboo New Member

    I appreciate your validating, insightful synopsis of what it is like to suffer from this illness. Sometimes I doubt myself, beleiving that if I would just eat right, exercise more, slow down, etc, etc. that my symptoms will go away. It's helpful to have others to help validate an illness that sometimes makes me feel a bit "crazy" (oh no, maybe "they" were it all in my head?
  8. betsiboo

    betsiboo New Member

    When I went back and read all of the postings, I realized that this was a copy of "Fibromyalgia Talks to You." I thought you were the author. Whatever the case, thanks, it was helpful.
  9. lynnkat

    lynnkat New Member

    Thanks tic!
    Loved that fibro letter. That fibro "person" sounds like the one that lives in my body. LOL

    Reading that letter made me want to "fight" this damn disease even more. Just who does this fibro "person" think they are by invading both my life and body??

    I printed it out and plan on keeping it around to remind myself not to let this nasty disease take over the good things in my life.

    Thanks again--:) lynnkat