Fibromyalgia: Work and Disability ......

Discussion in 'Fibromyalgia Main Forum' started by JLH, Oct 27, 2009.

  1. JLH

    JLH New Member

    Fibromyalgia: Work and Disability ......

    Many people with fibromyalgia continue to work full or part time. But the chronic pain and fatigue associated with fibromyalgia often make working very difficult. If you are employed, it's important to learn about managing fibromyalgia symptoms and coping with pain and fatigue. In addition, if you have tried different jobs and are unable to work, you might consider applying for disability. Disability may be difficult to get because of rules about work capacity.

    * Can People With Fibromyalgia Work?

    By self-managing fibromyalgia pain and controlling daily stress, most people with fibromyalgia can do almost anything they choose. Unless you have physical pain that's directly work related, you should be able to make simple modifications to your workplace that allow you to continue working.

    * What Type of Workplace Changes Can Help Someone With Fibromyalgia?

    First, openly discuss your fibromyalgia with your boss and coworkers. Talk about the symptoms of pain, fatigue, and stiffness. Explain how you may have good days and bad days.
    Explaining fibromyalgia will give people at work a better idea of what you are feeling each day. Ask your boss if you can take rest periods on bad days. Or ask if you can take work home if you are feeling fatigued. Ask if you can come in on Saturday if you miss a day of work to make up the lost time and income. In addition, ask if you can put a cot in your office for a brief nap at lunchtime. Taking a midday nap helps many people with fibromyalgia and other chronic health conditions function on the job.

    * Are There Workplace Modification Guidelines for People With Fibromyalgia?

    People with fibromyalgia can use the following lists when talking with their employer about making modifications. The lists come from the U.S. Department of Labor's Job Accommodation Network. They contain recommendations for accommodations employers should be willing to consider for employees with fibromyalgia.

    * To address concentration issues, employers should consider:
    • providing written job instructions when possible
    • prioritizing job assignments and providing more structure
    • allowing flexible work hours and allowing a self-paced workload
    • allowing periodic rest periods to reorient
    • providing memory aids, such as schedulers or organizers
    • minimizing distractions
    • reducing job stress

    * To address depression and anxiety, employers should consider:
    • reducing distractions in the work environment
    • providing to-do lists and written instructions
    • reminding the employee of important deadlines and meetings
    • allowing time off for counseling
    • providing clear expectations of responsibilities and consequences
    • providing sensitivity training to coworkers
    • allowing breaks to use stress management techniques
    • developing strategies to deal with work problems before they arise
    • allowing telephone calls during work hours to doctors and others for support
    • providing information on counseling and employee assistance programs

    * To address fatigue and weakness, employers should consider:
    • reducing or eliminating physical exertion and workplace stress
    • scheduling periodic rest breaks away from the workstation
    • allowing a flexible work schedule and flexible use of leave time
    • allowing the employee to work from home
    • implementing ergonomic workstation design

    * To address migraine headaches, employers should consider:
    • providing task lighting
    • eliminating fluorescent lighting
    • providing air purification devices
    • allowing flexible work hours and work from home
    • allowing periodic rest breaks

    * To address issues associated with sleep disorder, employers should consider:
    • allowing flexible work hours and frequent breaks
    • allowing the employee to work from home

    * Can I Get Disability Because of Fibromyalgia?

    The Americans with Disabilities Act (ADA) does not contain a list of medical conditions that constitute disabilities. Instead, the ADA has a general definition of disability that each person must meet. Therefore, some people with fibromyalgia will have a disability under the ADA and others will not.

    Because fibromyalgia is extremely hard to diagnose and there are no laboratory tests to prove the ailment to a third party, it's important that you do your homework before you apply for disability.

    According to federal regulations, to qualify for disability you must prove that you have a severe impairment. You also need to prove that the impairment limits your physical or mental ability to do work.

    The Social Security disability regulations define disability as "the inability to do any substantial gainful activity due to your medical or mental problem." In addition, according to the Social Security Administration, your condition must interfere with basic work-related activities. If it doesn't, your claim won't be considered. Instead, Social Security will find that you are not disabled.

    The combined effect of having multiple impairments is taken into account. That can be important for many people with fibromyalgia. You must be unable to do your previous work or any other substantial gainful activity. Your age and education are considered as well as your remaining abilities and your work experience.

    * How Do I Apply for Disability?

    To apply for disability benefits, call your Social Security office. Much of the information may be provided over the phone, by mail, or the Internet. You will be asked specific questions about how you have trouble with daily activities. And you will need to be as specific as you can, describing your limitations and why you cannot work. You will be asked to give the names and addresses of your doctors. The Social Security office will contact each one for records.

    * What Other Proof Must I Provide for Disability?

    Describing your fibromyalgia symptoms alone will not qualify you for Social Security disability. You have to be specific about signs and physical findings related to fibromyalgia and pain and how that impacts your ability to work. The Social Security staff will consider all your symptoms, including pain.

    All of this information considered together must lead to a conclusion that you are disabled before you will be granted disability with benefits. If more detailed information is needed, you may have to be examined by a doctor approved by the Social Security Administration.

    * What if I'm not Approved for Disability?

    It is common that fibromyalgia patients are not approved for disability, especially with the first application. If you are not approved, you'll have the right to appeal before a judge who specializes in these cases. Some patients with fibromyalgia find it necessary to have the help of an attorney during the appeal process. Although it may increase your costs, the chance your case will be approved is usually better if you have legal counsel.

    * What Type of Documentation Is Needed to Get Disability?

    It's important to get detailed documentation -- reports -- from your doctors, including psychologists, at the onset of your illness. Have your doctors submit documentation of all prescribed medications, therapies, and lifestyle remedies necessary to resolve your fibromyalgia symptoms. You should also be evaluated by a fibromyalgia specialist, usually a rheumatologist. This doctor will give a detailed assessment of your impairment along with a list of the many tests and treatments used in your condition.

    For further details on disability and the steps you must take, visit the Social Security web site or call the local Social Security office.

    U.S. Department of Labor: Accommodation and Compliance Series: "Employees with Fibromyalgia Syndrome."
    Social Security Administration: "Benefits for People with Disabilities."
    McIlwain, H, MD, and Bruce, D, PhD. The Fibromyalgia Handbook, Holt, 2007.
    Reviewed by Marc C. Levesque, MD on August 23, 2009
  2. SLG8

    SLG8 New Member

    I had a very high paying job until 14 yrs ago when I was diagnosed with FM. I was layed off during a downsizing. Took six months and decided to go work in a call center. What a mistake. I worked for the number 1 celluar company, they only let you go to the restroom 3x daily. You are not to ever disconnect from your headset. I went to my supervisor (they chg every 6mths) and explained my symtoms. The first 3 supervisors were very understanding. This past June again my 4th supervisor. I also went and explained to her what the issue was. During all this time I started taking Lyrica. My memory was mostly mush. The supv could care less. You are monitored daily on your calls. She failed me on every call for 3 months until she fired me for missing (1) word. Or not phrasing it correctly. So, I brought up this list of ADA as mentioned above. She did not care. I went to her supervisor. Nothing. So because they fired me for (cause). I have gone 3 months now without unemployment checks. How can a company be so care-less?
  3. Bevatjlodge

    Bevatjlodge New Member

    I have had fibromyalgia for several years. About 2 years, I gave up a high paying job in call center management and went out on Social Security Disability. Recently, I found an employer that only hires those who are disabled. You must, however, be on SSDI or SSI and have a Ticket to Work ( That employer is JLodge. JLodge is an employer who only hires disabled workers who work from home. Working for J.Lodge meets my needs and I don't have to leave home. JLodge is now hiring for:
    Call Center Positions
    • Listen to pre-recorded phone calls from our clients
    • Evaluate the performance of the agent by providing qualitative feedback in the form of coaching
    • Serve as an inbound or outbound call center agent
    • Deal with the customers directly as the front line communicator

    Back Office Positions include:
    • Database administration
    • Research
    • Analytics

    Again, to qualify, you must receive Social Security Disability or SSI and have or obtain a Ticket to Work. See for more information on the Ticket to Work Program.
    If you are interested, take a look at their website:

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