Filing for SSI and still WORKING???????

Discussion in 'Fibromyalgia and ME & Chronic Fatigue Syndrome' started by Linda_angel, Apr 2, 2008.

  1. Linda_angel

    Linda_angel New Member

    A friend of mine who has been trying to ecourage me into filing for SSI said that although right now I am making more than the monthly amount allowed ($900.00 in Indy), I should go ahead and file because when I get denied this first time because I am making too much at this point at least I will have my initial paperwork submitted.

    She said "Yes, you ARE working RIGHT NOW & make over the limit but that ddoesn't mean you are actually able to CONTINUE to work and you will at least have your foot in the door since you are trying to prepare for the future."

    Does this make sense to anyone and is she right? Should I go ahead and file?

    When I called the SS Office they asked me how much I made, I told them, and they said that $900.00 was the maximum allowed in the stae of Indiana but they sent me the paper work to fill out and even scheduled a date for my first telephone interview.

    Please advise. I'm really confused now!

    Blessings and Light,
    L_^i^


    [This Message was Edited on 04/02/2008]
  2. Linda_angel

    Linda_angel New Member

    and am in the process of ADA meetings for a few issues I've been having at work.

    Even though I am working I need to stop. Everyone see's it and my family and friends all think I should try to get SS.

    Why would the SS office send the packet for me to fill out and schedule an appointment I wonder?

    ~ L_^i^
    [This Message was Edited on 04/02/2008]
  3. Linda_angel

    Linda_angel New Member

    That makes sense.

    Still not sure why they went ahead and sent the packet and set up a telephone interview if they know I was working and how much I made?

    Blessings and Light,
    L_^i^
  4. Bandlil

    Bandlil New Member

    Anyone can call SS and they are required to send you an application. They will even do the phone interview, but they will deny you because you are still working They will tell you to call them back if your condition worsens and you can no longer work. Disability does mean dis-able to work.
  5. Linda_angel

    Linda_angel New Member

    Well my next question would be then; What about those who are making $800/mth. and are collecting SSI? THEY are still able to work. Should'nt they be considered "dis-able" since they are able to work enough to make $800.00? ~L_^i^
  6. footballmom

    footballmom New Member

    Disability for SSDI should mean total disability, and it does during the filing stage but after you've been approved you may make up to a certain amount of money. I think that is wrong. I personally know someone who is collecting SSDI plus works part time, volunteers, goes to the gym and runs everyday, sits on the computer for hours and works in his yard for several hours a week. This persons day is full of activity. If you can do that much stuff in one day you can work full time. This isn't disability, it's early retirement. People who abuse the system like that take away benefits fropm the ones who really need it.

    Social Security is running out of money and although everyone says that they deserve the benefit because they paid into it for the last 20 years of working, the fact is that if you made $50,000 / year for the last 20 years you only paid $14,500 in to the program. If you receive $1000 a month in benefits you've been paid everything that you contributed in a little over a year.

    As far as applying BEFORE you are actually disabled, stunts like that are what hold up the process for the people who desperatly need SSDI. This is why there is a backlog of 2 years to get approved. If you become totaly disabled then apply.
  7. landra

    landra New Member

    For instance, my lawyer said "do not go to the SS first interview. What they put in the file stays there, including their IMPRESSIONS" - from a clerk, not a doctor!Her office filed for me.

    She further said that because I have good intellegence, they would look at me and say - you look as good as I do, why should you apply?

    I also know that attorneys generally recommend you not work while applying, because "if you can do that much, why couldn't you do more? "

    You may want to go to disinsissues - a yahoo group that specializes in FM/CFS disability insurance matters. Ask them; they are a great resource.
  8. Sunrise2780

    Sunrise2780 New Member

    Hi Linda_angel,

    If you go to this site, you will get a <u>definite</u> answer. Post your question.

    Linda Fullerton is the founder of this group. It's the only one of it's kind.

    <a href="http://groups.msn.com/SocialSecurityDisabilityCoalition">http://groups.msn.com/SocialSecurityDisabilityCoalition</a>

    BTW, I'm almost positive that you can't work. This is from my own experience when I first filed. I was working temp & the day I decided to call an atty & make the appt, I was told not to do any temp work anymore.


    [This Message was Edited on 04/03/2008]
  9. Linda_angel

    Linda_angel New Member

    I don't think she intended for me to "pull any stunts".
    She has seen how I suffer. She knows that it takes everything I have to get up and get to work and she also knows how difficult is is for me to make it through a work day. She also see that when I get home I have no life. She wasn't trying to give me bad advise and I am not trying to beat the system.

    I have thought long and hard about this issue and I feel that when and if I decide to file, that I have "paid my dues" and fought a very good fight trying to beat this illness and the other illnesses that go along with it.

    Perhaps if you know that this person is not really deserving of getting SSI you could make it your duty to blow the whistle on him. Indeed it not fair for someone to live the life of Riley when the rest of us have to fight to keep our mortgages paid up with out thinking of paying for gym fees.


    Peace,
    L_^i^
  10. Linda_angel

    Linda_angel New Member

    Thanks for your response Sunrise!

    Will take you advise and visit the site.

    Blessings,
    L_^i^
  11. Linda_angel

    Linda_angel New Member

    I will look into disinsissues.

    Thanks so much for your response!

    Blessings,
    L_^i^
  12. luvdogs

    luvdogs New Member

    I would advise against filing for SS if you earn too much. They don't look very kindly on people who are able to work. I think it would give a bad first impression that you're able to work so many hours. I've heard over and over, that the fewer hours you work, or the less money you make (unfortunately) the more likely you are to be awarded SS. People who don't work at all are the most likely to win. Wait till you're under the 900 limit, and then file.
  13. dafoefan

    dafoefan New Member

    Hi Linda,

    I was told you could file before the first full year, but you can't be employed. You can file after you first go out on short-term or state disability if your doctor(s) will state you are not expected to improve within a year.

    I recommend getting your ducks in a row, and make sure you are going on regular doctor appointments, seeing a psychiatrist, which I believe helps your cause. Seeing a rheumi, and any other specialists that are appropriate, is better for your cause.

    Please call Allsup, Inc., they did everything for me. I didn't have to gather anything other than doctor's names and addresses, my meds, and personal information. I never spoke to or had to see anyone. My case was done in 6 mos. I was approved at the age of 41. In my approval letter, it stated that I was considered disabled from the day I left my job. Because of the scary stories I heard I procrastinated several years, so I lost out on a few years of payments.

    Good Luck if you decide to file.
    ************************************************************
    To Mom, If I knew of anyone taking advantage of the system, especially after reading my fellow fibro friends here losing everything while they wait, I would have to turn them in.

    JMHO

  14. momof471

    momof471 New Member

    The only question I was asked at my hearing on Monday was if I had worked since filing, which is a no, I did tell him I voluneer 1 day for 2 hours at school per week.

    A job is not good when trying to say you cannot work

    God BLess
  15. meditationlotus

    meditationlotus New Member

    disability while working part-time if the amount of hours you work are very small, 15 hours or less approximately, and the amount of money you make is way below the allotted amount.

    I have asked this question many times on this board and talked to people who have gotten it, but they worked very few hours and made very little money. PLUS, they were at least 50 years of age, which helps.

    I am working part-time as a substitute teacher. I have post-exertional malaise really bad, so I never know from one day to the next if I will be able to do "a darn thing". I am in my 50's, so I am going to apply soon. I cannot simply refuse to work, as this little bit of money is helping me to survive.

    But I will have to document and prove that the exertional malaise is unpredictable. Also I have neurally mediated hypotension which causes me many disabling symptoms, and post-traumatic stress disorder, sleep apnea, brain fog, can get sick from exertion (so many things that I can't remember them all).

    I sit at the desk most of the day that I sub, (high school), but the light and noise bother me. If I stand, too much blood pools in my lower extremeties. I cannot concentrate well, so regular desk work is out for me. Plus, after one day of work, I need one to three days to recover from the malaise that occurs from that exertion. So I am definitely disabled, though those who do not understand this illness could judge me as lazy.

    I have to add that you can't judge a person's disability by examing their daily lives. The person mentioned above, who is active and "appears" to be perfectly capable of working, may be schizoprenic or manic depressive or have terrible post-traumatic stress disorder or some other hidden illness. The exercise may be what helps to keep this person sane.

    It is VERY HARD to get disability. I don't like to support stereotypes. We are sterotyped terribly and it is very painful to us.

    Good luck.