FINALLY DIAGNOSED BUT WHAT A DISAPPOINTMENT

Discussion in 'Fibromyalgia Main Forum' started by AnnetClo, Oct 21, 2002.

  1. AnnetClo

    AnnetClo New Member

    I saw the rheumatologist today and he did diagnose me with FMS. Of course I'm not surprised since I was sure that was my problem. But he did it by medical history only. Of the 18 trigger points he touched 6; the 2 in the upper part of the back of my neck, the 2 below my elbow on the forearm and the 2 below my knees. He didn't touch anything on my upper back, mid back or hip area. He was a new doctor, very young and very timid. It was almost as though he was afraid to touch me. He said he thought I also suffered from SAD (I mean he repeated that to me at the end of the visit as one of his dx) but I had already told him I had SAD probably for years but just dx about 3 years ago. He also added RLS to the list. He prescribed Zoloft (also gave me a starter sample kit)and that was it. He said the Zoloft would take several weeks to work. He said he didn't want to prescribe more than 1 med at a time in case I had a reaction to one of them. I asked what I should do for the severe pain until then and he finally prescribed Celebrex. I have an appt to see him in 3 weeks. He assured me these 2 meds together would take care of all the pain. I made an appt to see Dr. Carol Rupe on Nov 7 at HighRiskRn's suggestion but then made this one at the rheummy's since someone said I would probably need to be dx'd with FM before I see her. What should I do? Should I see her anyway or should I wait for the guy to try whatever? I asked about supplements and he said only a multivitamin and to start aerobic exercises. I told him I didn't have the energy to do stay out of the bed for more than 9 hours a day but his advice was to "just do it". How frustrating! Any advice?

    Annette
  2. AnnetClo

    AnnetClo New Member

    I saw the rheumatologist today and he did diagnose me with FMS. Of course I'm not surprised since I was sure that was my problem. But he did it by medical history only. Of the 18 trigger points he touched 6; the 2 in the upper part of the back of my neck, the 2 below my elbow on the forearm and the 2 below my knees. He didn't touch anything on my upper back, mid back or hip area. He was a new doctor, very young and very timid. It was almost as though he was afraid to touch me. He said he thought I also suffered from SAD (I mean he repeated that to me at the end of the visit as one of his dx) but I had already told him I had SAD probably for years but just dx about 3 years ago. He also added RLS to the list. He prescribed Zoloft (also gave me a starter sample kit)and that was it. He said the Zoloft would take several weeks to work. He said he didn't want to prescribe more than 1 med at a time in case I had a reaction to one of them. I asked what I should do for the severe pain until then and he finally prescribed Celebrex. I have an appt to see him in 3 weeks. He assured me these 2 meds together would take care of all the pain. I made an appt to see Dr. Carol Rupe on Nov 7 at HighRiskRn's suggestion but then made this one at the rheummy's since someone said I would probably need to be dx'd with FM before I see her. What should I do? Should I see her anyway or should I wait for the guy to try whatever? I asked about supplements and he said only a multivitamin and to start aerobic exercises. I told him I didn't have the energy to do stay out of the bed for more than 9 hours a day but his advice was to "just do it". How frustrating! Any advice?

    Annette
  3. AnnetClo

    AnnetClo New Member

    He's on Randolph at the Arthritis & Osteoporosis Consultants of the Carolinas. He's in with Dr. Ahmad Kashif, Robert Kipnis, Andrew Laster and Gary Maniloff. I got his name from the Arthritis and FMS support group. I didn't know then about the "good docs list" on this board. He was nice, but very timid and restrained. My guess is that he hasn't been practicing long. I guess I was hoping for someone more agressive and sure of what to do.
  4. AnnetClo

    AnnetClo New Member

    Rheummy so maybe this wasn't the best choice of medical practices. Dr Sehorn is new; that was one reason that I was able to see him so quickly. But I will take your advice and see Dr. Rupe. Thanks for the help.
  5. TiredbutWired

    TiredbutWired New Member

    Give her a try and see if she is the doctor you are looking for.We all have different needs and sometimes a doctor might be great for me but not what you were looking for.I personally have only found the specialist in these areas to be aggressive.My primary is useless and lacks common sence,he told me if I only slept a hour or two then that was all I needed.So all the help I have received I have had to pay for but it has been worth every penny.It is a wonderful feeling for a doctor to not make you feel crazy or dismiss you.I am sure that your visit with Sandy's doctor will go much better.Hang in there,Tracey
  6. AnnetClo

    AnnetClo New Member

    Seeing someone I know is familar with FM and is more agressive with the treatment is the way I thought I should go too. But then I've got an advanced case of CRS and with the pain added on top, I didn't know if I was being objective. And I didn't want anyone to think I was doctor shopping so it's great to get an objective view. Thank you.

    Annette
  7. Mikie

    Mikie Moderator

    FMS is not an inflammatory illness, nor is it a rheumatological illness, yet, it is usually rheumies who diagnose us because it used to be thought to be a rheumatological illness. The problem is that these docs are one of the least informed of their cronies when it comes to treatments. Most are afraid of pain meds and when they do presecribe, what do they give us, anti-inflammatories for a non-inflammatory illness! Vioxx and Celebrex are of very limited use to us for pain unless there is an accompanying inflammatory condition.

    Follow Sandy's advice. If necessary, find a doc who understands FMS. BTW, my rheumy only touched me in one spot. That's not unusual. Mine has never mapped my tender spots. My pain doc did. He knew more about FMS/CFS than all my other docs put together.

    Love, Mikie