Finally got New Pain Meds....Anyone taking Nuerontin too?

Discussion in 'Fibromyalgia Main Forum' started by Vicque, Dec 30, 2002.

  1. Vicque

    Vicque New Member

    Went to the my doctor yesterday, he was freaked when he found out his PA had taken me off the Lortab. Put me on Tylox and Nuerontin. If any one has any info on Neurontin and how it has helped their FM/MFS I would love to hear back. Didn't charge me a dime for the office visit. I thought he was behind taking me off my meds, and since I had been on Pain Meds since 1995, thought someone was going to have to commit me in a straight jacket. I would hope that some day I'll be off this junk, but I'm not to proud to ask for something. Having been a nurse for 12 years I always made sure my patients were pain free as possible. Pain meds should never witheld. I have started my book on my journey with this DD. I have had a couple of poems pubished, but this is a new adventure. I'll be moving next weekend about 30 miles from here, will just hate it when I have to disconnet for a day or two. The first thing I do every morning is get up with my coffee and head straight here to read how everyone is doing. Blessings to all of you today. Peace......Vicque
  2. Annette2

    Annette2 New Member

    Hi Vicque. My doctor just put me on Neurontin too. I have been having terrible pains in my hands and she thinks I have carpal tunnel syndrome. I take it at night before I go to bed. She has me weaning off of Trazadone at the same time. The Neurontin has helped my hands, but I don't see it helping the fibromyalgia. I've been having terrible back and hip pains. I'm going to see her in a few weeks again and will have to tell her. I was on Tylox last month because I had a hysterectomy. I don't want to keep on taking it though. When I feel really bad I take Ultracet. That seems to help. How often do you take Neurontin and what dose? I'm at 300 mg. every night. I don't know much about Neurontin yet. I hope you get good results!

    Annette2
  3. Carlacat

    Carlacat New Member

    My neuro wants me to take it for my neuropathy.
  4. karen55

    karen55 New Member

    before, in 1996 and in 2000, when I had back surgery for ruptured disks. There are quite a few side effects, I'm not saying you will experience them, but I did, and my Dr. kept increasing my dosage until I got toxic. I took it for several months both times, and it didn't help me, although the neurosurgeon kept insisting it was. Funny, I didn't know he could feel my pain! I had a less than desirable experience with this particular med, but there are many who have had wonderful results with it. Good luck.
  5. Mikie

    Mikie Moderator

    Like Klonopin, is an antiseizure med. Our library contains a very good article on Klonopin written by Dr. Paul Cheney. It does an excellent job of explaining how the slight state of seizure, people with CFS (and FMS) suffer from chronically, can cause our inability to sleep, gives us anxiety and panic attacks, causes restless leg syndrome, and produces sensory overload. Neurontin and Klonopin are designed to move us from our slight seizure state into the normal range. It works to stop the overfiring and misfiring of the neurons.

    There seems to be some evidence that Klonopin may have some pain killing properties. The theory is that it may interfere with the pain signals in the brain. A new study has just been funded to study this aspect of Klonopin. If true, the same can probably be said of the Neurontin.

    There is a sister article by Dr. Cheney in our library on the dangers of SSRI antidepressants and stimulants like Ritilan and it is also well worth reading.

    Love, Mikie
  6. Cindi

    Cindi New Member

    It can be a great med for some! I, like Karen,had less than desirable results with it. This is a medication that can be increased to very high mgs. Just pay attention to your body and note any changes that weren't there before starting the Neurontin! When I look back at my pain journal while on it, It's obvious NOW that my symptoms were from the med...but it wasn't obvious then!! Ironically, my son was on Neurontin for many years for seizures, with no problems at all on high doses :)

    Good luck,
    Cindi
  7. FMHoosier

    FMHoosier New Member

    I also am on this drug. Doc put me on it in August when I started having "bugs" crawling under the skin on my shoulders. He also put me on Skelaxin at the same time. I take 1-100 mg Nuerontin in the a.m., one @ noon and 2 @ bedtime. I have not had any side effects from this. It didn't make me drowsy like some have posted. So far, it seems to be working O.K. Hope you have good luck with it too!
    Have a great & hopefully less painful New Year!
    Nancy
  8. tammyinwv

    tammyinwv New Member

    I tried it a few years ago,and never noticed any change while on it.It was started by doc in pain center,but shortly after he left for another state,and the new doc refused to treat me.They werent doing me much good anyway.
  9. klutzo

    klutzo New Member

    I've been trying for two weeks to start taking just 100 mgs. of Neurontin at bedtime as a starter dose to eventually help control my overstimulation problem.
    Every time I take just one pill, I suffer for a couple of days with awful stomach pains and green BM's, and have to take Pepto Bismol just to bear the discomfort.
    I am giving it just one more try tonight (3rd try), and if it does it again, then I'll have to give it up.
    Madwolf, if you are right and it only works in conjunction with opiods, then I would probably not have gotten any help from it anyway,since I will not take opiods anymore.
    But,I wasn't wanting it for pain...it was to stop me overreacting to things and people in my environment...I'm like a raw nerve!
    Maybe I can ask to try Klonopin, but break it into much smaller doses than I did before when it made me almost stop breathing. Or, maybe I should just take more of my Xanax whenever I am going to be out of the house and exposed to all the hustle and bustle.
    I am glad it is helping some of you.
    Happy and healthy New Year!
    Klutzo
  10. Ness

    Ness New Member

    I took it for a year for nerve pain....and it gradually turned me into a zombie......I was slow at everything and it made my thinking foggy..couldn't get the right words out....that was not what I needed on top of the Fog I already had from the Fibro....I know that some people have had great results ...but I chose to discontinue it and I feel so much better since.

    Best of luck to you...
    Peace
    Ness
  11. healing

    healing New Member

    Well, I have been taking Neurontin for years now, with no apparent side effects and, I believe, some very good benefits. I take 300 mg. in the a.m., 800 mg. around 7:30 in the evening, and then another 300 mg at bedtime. It helps my sleep, and it helps my pain level. I had to work up to this level of dosage. My docs (chronic pain specialists) routinely prescribe Neurontin for FMS, usually 300 mg. spaced evenly throughout the day. But I can't tolerate the afternoon dose -- makes me too sleepy. My rheumatologist prescribes it to FMS, CFS, RA, arthritis and other pain sufferers, usually in much greater dosages -- in her book, I'm taking a light dose.

    My experience in the short time I've been participating in this forum is that you'll usually hear from everyone who has had a bad experience with a med (which is very useful input!), but very little from those who benefit. I LIKE Neurontin, and I hope you won't be put off by all the other posts. Give it a try, and keep an open mind. BTW, I don't take opiates or other pain killers -- just the Neurontin -- and it works fine as is for me. Peace!
  12. Bunnylover

    Bunnylover New Member

    Hi All,
    Dr. started me on nuerontin Dec.12th and man did it help the pain,but I was like a wet dish rag for the 7 days I took it. I started with one at night and several days later I was taking 2 at night but the next day I could'nt move.On the 7th day I looked in the mirror and I looked like I think a zombie looks. I stopped and several days later I felt ok but pain has returned with a vengeance. He gave me lidocaine patches but did'nt touch the pain.
    Is there a drug that is like the nuerontin. Is Klonopin the same. Hope someone sees this since I'm at the bottom of this post. Terri
  13. healing

    healing New Member

    did you try taking the Neurontin earlier in the evening? That's why I take my main dose at 7:30. Also, perhaps a lower dose and work up slowly. As I said, Neurontin doped me out at 2:00 in the afternoon, but is fine at other times. Perhaps if you work with your biorhythms it will work for you.