Finally..Klonopin working for me

Discussion in 'Fibromyalgia Main Forum' started by Ishy75, Jul 3, 2003.

  1. Ishy75

    Ishy75 New Member

    Hi All,

    I haven't posted in a while but I just thought I'd let you know that the psychiatrist I've been seeing has been better for me then my GP. He put me on Klonopin fulltime now (My GP only put me on for a few days for pain and was worried about addiction) and I've been on for a week and am already feeling so much better. It has helped with the anxiety immensely. I wanted to thank all of you that have written about it as it helped me and my psychiatrist decide what to try next. I, like many of you have a horrible sensitivity to meds and had bad side effects from most. I'm hoping after a few more weeks my anxiety and some of the pain will be curbed even more and I can get a little bit more of my life back. Anxiety keeps me from doing so many things. I haven't been into a store since February. I've become a hermit.

    I am also monitoring my low BP and at my next psychiatrist appointment we'll discuss possible medication to raise my BP as he believes that is what is causing my intense dizziness. I was wondering if any of you are on any meds for raising BP and if they are working? Any side effects? Etc. I'm still waiting on my rheumy appt. in September. It feels like years away to finally have tests to rule everything out so I can get a real diagnosis of FM. Things just seem to move so slow. Two days ago my family gave up on me and told me I was selfish. I know it's because they don't understand though I have tried to educate them but it still hurts nonetheless. I wanted to thank you all for being here. Now that my family isn't I really have nobody. Thank you all so much. Warm Hugssssss.

    Chrissi
  2. zggygirl

    zggygirl New Member

    Hi,
    I can understand how you feel and the relief from anxiety!
    I have had general anxiety for over 20 years and panic attacks for some of that. That is great news about the Klonipin working for you! I have help with meds now too.
    As far as the family goes, well sometimes we just have to find ourselves a different family for a time. They may come around. But that really can be sad and hurtful when they don't understand and say mean things.
    Perhaps as your anxiety eases up for a time it will be easier to deal with them. But for now, think of yourself. you need to be selfish. My new mantra is "ME,ME,ME" {G}.
    You can't help anyone else until you help yourself first.
    Keep us up to date. I know it's hard to be patient. When I finally saw a specialist for FM, after 3 appts. he said take these and I'll see you in 2 months. It sounded like forever!
    Take Care,
    Ziggy
  3. catgal

    catgal New Member

    Hi Chrissi~~I've taking 1mg of Klonopin at night and breaking off a fourth or half during mid-morning and mid-afternoon for 3 years now, and it has helped me alot--especially with restless legs, background anxiety, quality sleep, and flexibility/mobility. I hope you continue to get good results with it.

    I am terribly sorry to hear about your family turning their backs on you. Being abandoned by those we thought would stand by us is a painful blow, and my heart goes out to you. However, all of us realize this is a very difficult, mysterious, confusing disease for people who don't have it, don't experience what we go through, and therefore can't relate to our situation.

    Yet, even with those who do try to understand--our best support still comes from those of us who live with it everyday and are at the end of your sentence before you finish it. We know what each day can be like, how hard it can get, and how grateful we are for the simplest things that go well.

    You remain in Good Company here with us. I know we cannot replace your First Family....but We have Always been your Second Family, and you are at Home with Us. And we are here for you whenever you need us.

    I send you a round, soft hug, understanding for your hurt, and a Prayer for a Good Weekend spent with those who appreciate and accept you. Blessings, Carol.....
  4. Ishy75

    Ishy75 New Member

    Thanks for your words of encouragement. Anxiety is the worst, I agree!! I guess I will have to take your advice and start using your motto also. I don't think I will ever feel better if I don't start thinking about myself more. I just wrote my brother who started this whole thing and told him he's causing stress and negativity in my life and that I'm writing him out of it because I can't deal with that. Thanks for the wonderful "me me me" advice. Warm hugsssss.

    Chrissi
  5. Ishy75

    Ishy75 New Member

    Thanks for you kind words and your support. Klonopin is the only thing I have found that has helped and is a Godsend. I really can't thank you all enough for all the info that you've given me here and all that you all have taught me. Without people like you Carol I'd have never known about klonopin and would still feel like a basketcase. Warm hugs back to you and thank you for being here and for being such a huge part of my life.

    Chrissi
  6. Mikie

    Mikie Moderator

    Klonopin has been a life saver for me. I was in therapy trying to deal with this horrble anxiety/panic attacks which appeared to have no basis. Finally, my psychologist and I decided that it was part of the whole brain thing with the misfiring neurons. The Klonopin immediately helped me to get good, quality sleep and the anxiety disappeared. It also greatly reduces sensory overload and my tinnitus.

    I take the largest dose at bedtime, .75 mgs. I quarter the other tablet and slip these small pieces under my tongue during the day for anxiety and sensory overload. It's the only way I can make it through a store like Wal-Mart with the noise and glaring lights.

    Using Klonopin just gets better and better as the brain is relieved from the damage being done to the neurons. BTW, it isn't addictive, but you will become physically dependent on it, so if you need to quit, you will have to very slowly wean off of it.

    Love, Mikie
  7. Ishy75

    Ishy75 New Member

    Your info on Klonopin was one of the main reasons I talked to my psychiatrist about it. Thank you SO much. If you hadn't spoken of it so often I'd probably still be a basketcase. In a few weeks I'm going to try going into a smaller store such as a Walgreens or just grab a soda with my Mom at a fast food place and sit there a few minutes and see how well that works. I miss getting out so much. I feel like I'm starting all over again but small steps are better then going backwards.

    I take 0.5 MG twice, sometimes three times a day. My psychiatrist is wonderful letting me decide how I need to take it. Sometimes I'll cut it in half depending how much I feel my body needs. Thank you especially, and so many others for the info on it. Side effects from everything else was just too much. My psych and I had a discussion about addiction and he said exactly what you did. With every pill I take I feel my life coming back just a little bit more. I'll keep you posted on my adventure back into society after 5 long months. Thanks Mikie. Warm hugssss.

    Chrissi
  8. Mikie

    Mikie Moderator

    If you must drink a soda, make sure it doesn't contain Neutrasweet or caffeine as these will increase the anxiety. Actually, if you can find something else to drink, it will be better all around.

    When I feel that I just can't stand it unless I have a soda, I drink Diet Rite as it uses Splenda and no caffeine. Splenda is not completely safe as it contains chlorine, but sometimes, ya just gotta throw caution to the wind. I was addicted to Diet Coke for years. Nasty stuff probably really did a lot of damage to my brain.

    Keep us updated on how you are doing on the Klonopin. Use the smallest dose which will address the symptoms. Good luck.

    Love, Mikie
  9. Ishy75

    Ishy75 New Member

    I rarely drink soda but I will take your advice when I feel like having one and drink a diet rite. Boy it's not easy to remember all the do's and dont's of this DD. Sheesh. lol. I'll keep you updated. Have a wonderful 4th of July!!! Warm Hugssssss

    Ishy
  10. Mikie

    Mikie Moderator

    I hope you are having a happy and safe Fourth. I'm cleaning my filthy kitchen. How exciting is that :)

    Love, Mikie
  11. 2aycocks

    2aycocks New Member

    Hi Chrissi, I don't know what Klonopin is, but Paxil is what has saved me. I have had panic attacks for 15 years and finally got agoraphobic. I could hardly stand going anywhere....I quilt going to church because the entire time I was in service I was fighting or having panic attacks.

    I have been on many meds through the years, but nothing has ever helped me like Paxil... I have not had panic for months and I am looking forward to going places that I used to dread or avoid for years. It has been liberating. I hope the Klonopin does that for you.
    Kay
  12. Ishy75

    Ishy75 New Member

    Kay, that was exactly how I was becoming. A hermit. :eek:( So far the klonopin has been a lifesaver. My psychiatrist doesn't like to give out paxil or certain other meds for reasons I'm not sure but I would have tried that too in a heartbeat. Anything to get this anxiety under control. For the first time since February (excluding doc appts.) I went out. Just to the cemetary with my Mom to walk around there for a little while and put back some of the flowers after a bad wind storm the night day before. I also didn't feel nauseous in the car and I went into my first public place in 5 months and was just fine. It was just Subway, to grab a bite to eat but to me that was like going to the moon. lol. I was so proud of myself. Thanks for your kind words. It is so nice to know there are others that can relate. It means so much. warm hugsssss.

    Chrissi

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