Flu Feeling Anyone??

Discussion in 'Fibromyalgia Main Forum' started by chrissy12, Aug 10, 2008.

  1. chrissy12

    chrissy12 New Member

    One of the most discouraging things I deal with is the flu feeling everyday. There are times when it is not there, but almost always it will come some time during the course of the day.

    I went to the grocery store yesterday (which is good for me). I was thinking "okay I am handling this." then about 15 minutes later the "flu feeling" attacked and I went as fast as I could to get out of there.

    I could visit with someone for about an hour and halfway through, it will come. I feel so sick and it can overwhelm me. If I go home and rest, it will slow down.

    I don't do very much as it is, and I am afraid to schedule anything because I never know when it is going to be worse.

    Do any of you have these feelings??? I just want to not feel sick for one week, okay I change that one day......

    Thanks, Cindy
  2. lvjesus

    lvjesus Member

    yes. It is pain and if you take pain pills for other pain, it will work for this too. I debate on what is the worst symptom, but I think for me, this is it. I hate the fatigue because there is nothing for it, not even rest and I dislike the pain, but I have pills for that but THIS is the most miserable feeling on earth that I know of.
  3. grammms

    grammms New Member

    I know exactly (to the t) what u are describing. Before I was diagnosed with FM many years ago, I thought I was going nuts. Constantly calling the doctor, telling him I had the flu, & constantly on antibiotics. At that time I found out that my doctor did not believe in FM, so he kept treating me for the flu.
    Fortunately over time, I knew what I had. So now when the symptoms occur, I at least know what I'm dealing with. Right now I've had a flu-like flare-up for going into 3 weeks. At some point it does go away & I might have a day or 2 of relief. But then right back into the aches.
    Hang in there!! I live thru it. I haven't found a pill yet to actually give me relief. And due to an addiction, I'm unable to take pain pills.
    Glad I could share this with you.
  4. ironspine

    ironspine New Member

    I have the "flu" too-that was my first symptom of fibro. I started feeling like this so often I finally went to the doctor. This is when he found my pressure points and told me I had fibro.
    I take Lyrica which helps immensely, and also Vicodin for break-thru. Mine gets so bad I have to lay down and sleep. I take my meds with me wherever I go so I have it in case. Otherwise I leave as soon as I can.
    This to me is the worst feeling of all!!!!
    Thanks for writing!
  5. gapsych

    gapsych New Member

    Yes the achy flu feeling is the worse symptom. It makes me feel like I am dying. It can be so draining which leads into my second worse symptom, fatigue.

    Not fun.


    [This Message was Edited on 08/10/2008]
  6. MsE

    MsE New Member

    I don't know if it's the meanest thing about this illness or not, but it is right up near the top. I've been so achy and exhausted today that I've just wanted to cry. In fact, I've done some of that. Doesn't help, though. I don't want to do this any more.
  7. kitteejo

    kitteejo Member

    I have the feeling right now and I'd swear it's the a real flu but I don't have a fever so it's just the CFID. Over did it Wednesday and Thursday. So I'm paying for it now.

    If you push yourself like grocery shopping you will crash. Visiting friends may have been stressful, you crash. I can't go grocery shopping alone any longer, can't push the cart or lift heavy items or the bags of grocery's.

    That's how it is for me, physical work, stress, cold, confusing situations or over doing it heads me straight into a crash or flu like symptoms.

    The first few years that I had this I'd get weeks of feeling good but that's been gone now for the last year or so. I'm sick everyday. If I need to push for a wedding or party I can do it but then it's to bed for two or three days. I've had to learn to pace myself.

    Just the way it is sorry to say.

    Hope you feel better.

  8. Pansygirl

    Pansygirl New Member

    Yes, I have the flu feeling today too. That was one of my first symptoms and looking back over the years I had this feeling many years before I was diagnosed with FM.

    Gentle hugs, Susan

  9. chrissy12

    chrissy12 New Member

    I appreciate your responses. I didn't know if I was crazy or what. It amazes me how many of us have the same sick-like feeling all of the time. If I do the least little thing, I will pay. It does get old.

    I am so happy when I have a day where it is less. I know now not to get too excited though because it never lasts.

    I wish all of you well!!!! Thanks for responding...Cindy
  10. TUDY

    TUDY New Member

    I am sooo pleased you brought this up. I suffer from the 'flu feeling', I call it my 'hangover feeling'.

    I thought it must be something other than the fibro cos no-one really talks about this as a symptom.

    I have constant pain that flares and the chronic fatigue but this 'flu' is awful. It limits everything, even just talking to friends I dont feel like doing cos I feel so yuk.
    I seem to be in bed so much, like now. This is the first time ive been on this site for a while cos doing this worsens the feeling.

    Though I dont wish this on anyone I am so glad to find out others who have fibro also suffer from it not just me. I have tried meds which helped for a short time but then the side effects kick in big time and I have to come off them.

    Like you Cindy, I try to do something when the feeling isnt as bad but then it smacks you in the head again. The specialists say we don't have inflamation but to me it feels like every blood vessel in my head is inflamed and pounding, sucking every last ounce of energy from my body and I just collapse in a heap feeling utterly miserable.

    My doctor says I have to work through the pain! Well I bet she doesnt work when she has the flu!
    My blood pressure was sky high and I have to go again this week to get it tested again, aswell as more blood tests. ADVICE- get your blood pressure tested. I dont know if it has anything to do with it but if so that can at least be treated and maybe it will lessen the 'flu feeling'. I'll let you know of my progress.
    It would be lovely for all to get some relief.
  11. chrissy12

    chrissy12 New Member

    You said something that really struck me when you describe how every blood vessel in your head is expanding. That is how mine starts. I feel it in my head first and then it travels to my body. And yes, I sometimes have trouble even talking with friends.

    I was a teacher for 27 years and handled a lot of stress. Now, it seems like the least littlest thing ignites the flu feeling. I don't know where this is coming from.

    I do get my blood pressure checked regularly. I take a beta blocker, so it is usually okay.

    Let us know how you are doing. Take care, Cindy
  12. munch1958

    munch1958 Member

    The only time I have this feeling anymore is when my compounded T3 & T4 meds need to be raised. Right after the meds are changed the feeling goes away for a few months. Seems like it's some sort of thyroid resistance.

    I get used to the new doses, then I get the sore throats back, then I feel the ache all over and feel "virus-y again. The thyroid meds get raised a bit more. This all goes away.

    If my EBV titers are checked during this low meds phase they all come back high. I suspect the EBV reactivates due to low immune function because my thyroid meds are "off".

    This "cycle" has been going on for over 2 years for me. It started with FFC titration of thryoid meds and has continued even tho I've switched to all new doctors.

    Dr Kent Holtorf does have some papers about this in the library here and on his website. I'm just wondering how "high" can they go on the thyroid meds as I'm already on 100 mcg 2x per day of compounded T3 and 12.5 mcg of compounded T4.

    Answer to my question was found in the library here --


    "Peripheral Resistance to Thyroid Hormone

    Most patients have normal results for common thyroid tests. However, ME/CFS patients have a much higher level of a protein that is 98 percent identical to T3, which is the active form of thyroid. Because this foreign protein can bind to T3 receptors, T3 cannot find receptors and is therefore ineffective in its role of activating cellular metabolism." [This Message was Edited on 08/11/2008]
  13. chrissy12

    chrissy12 New Member

    Thanks for the information. I will have my thyroid checked again. I do take 30 mg of thyroid armour, but maybe there is more going on than I thought.

    I find it interesting how your ebv goes up at the same time.

    Thanks for sharing... Cindy
  14. kat0465

    kat0465 New Member

    thats one of the ways i describe how i feel when someone asks what fibro/ cfids feels like.i tell them you know how u feel when your starting to get the flu?? but thats just one symptom, theres more i'd like to tell them, but i think they can relate to the flu like more.
    except my Husband.... he has NEVER even had the flu!! figures dont it? the one person u want to understand, just cant.
  15. munch1958

    munch1958 Member

    Here's a funny...

    Last time my daughter and DH both had the stomach flu, they were both sick with bodily fluids coming out both ends.

    I didn't catch their bug as I don't catch colds or flu very often. All I had was the sweats and chills. I was busy making meatloaf, mashed potatoes, gravy, steamed green beans, etc. just like any old regular Sunday dinner.

    I was quite upset that both of them turned as green as the beans with the prospect of having to eat the food I had prepared. To me, it was business as usual because I always felt lousy. Whats another day with this flu-like feeling?

    Here the two of them were on the floor with this stomach bug and I was making enough food for an army! Since I was so out of touch with reality that is the moment when I knew I had to get treatment. I packed myself off to the nearest FFC for testing and ultimately went to a LLMD.
  16. chrissy12

    chrissy12 New Member

    I enjoyed your story, Munch. I don't wish this feeling on anyone, but when they do have it, they tend to understand a little better.

    My mom has always been supportive, but a month ago she called and had the flu. She asked me what do I do????
    I told her you have to accept that you feel lousy instead of fighting it. That's how I dealt with it for the last 2 1/2 years. She only had it for 3 days.

    You really can't make someone understand this unless they have had a fever or flu recently. Then they get it....

    I am glad you went and got help...Cindy