FM an inflammatory process? (New treatment regime)

Discussion in 'Fibromyalgia Main Forum' started by marcus1243, Jan 7, 2003.

  1. marcus1243

    marcus1243 New Member

    Thanks to everybody who helped with my recent symptom poll. The results have been referred back to a hospital rheumatology clinic.
    As part of a series of investigations and much research, my rheumy is becoming convinced that fm involves an ongoing inflammatory component, and that this inflammation is affecting the chemistry of nerve transmission in the unmyelinated C-nerves, leading to peripheral neuropathy-type dyesthesiae, which he's describing as segmental pain. Trials where FM patients have been treated with steroids (similarly to MS) have met with great success, lending credence to the inlammatory theory.
    Because meds tend to unbalance the body's metabolism and chemistry even more, he wants to try me on a therapy of magnesium supplementation, glucosamine chondroitin & MSM, limited use of NSAIDS and 100% stabilized Aloe Vera. Long-term use of the latter has apparently had fantastic results with CFIDS patients at the clinic, resulting in substantial remissions. Chemistry of the gel is as follows:

    A (Beta Carotene), B1 (Thiamine),
    B2 (Riboflavin), B3 (Niacin), B5,
    B6 (Pyridoxine), B12, C, E, Folic Acid,
    Choline.
    Calcium, Sodium, Zinc, Chromium, Potassium, Magnesium, Copper, Manganese and the anti-oxidant, Selenium.
    7 Essential Amino-Acids
    13 Secondary Amino-Acids
    Trace Elements
    Enzymes
    Bradykinase, Lipases and Proteases
    Saponins (these have natural cleansing and antiseptic properties. They act as powerful anti-microbials against bacteria, fungi, yeasts and viruses)
    Lignin
    Anthraquinones (Anti-microbial, anti-viral, anti-bacterial and anti-inflammatory)
    Acemannan polysaccharides (boosts the body's immune system)

    So maybe there's something in there that will help. I've only used Aloe before to help with bladder issues, and it definitely helped.

    I'm also seeing an MS specialist soon, just to get another point of view on the neurological symptoms. I'll let you know how it all goes!
    --Marcus
  2. pam_d

    pam_d New Member

    Early in my journey with FM, I was treated with steroids by a doctor who was convinced that because parts of my body FELT inflamed, they must BE inflamed. We were both disappointed when neither steroids, nor Vioxx (another anti-inflammatory) made even one iota of difference.

    I still FEEL inflamed, but I know anti-inflammatories, steroids included, don't do it for me. I wonder if those treated with steroids really have FM, or a true inflammatory process.

    I hope you have a better experience, maybe your doc's onto something that will have a positive effect for you.

    Good luck!

    Pam
  3. karen55

    karen55 New Member

    I've had numerous trigger point injections with steroids, taken Medrol dosepaks, and taken so many different anti inflam meds, none of which have helped me. I've had a pretty good attitude about this DD, but this week I've been on an emotional roller coaster because I feel so bad. If there were really magic genies, you can guess what my wish would be.
  4. tandy

    tandy New Member

    The treatment using steroids!! I've been on them a couple different times with FM but for a high Sed rate.(which indicates immflamation)I did'nt see any improvement in my FM symptoms.It did bring my sed down a bit- which was the plan, but it did'nt help my level of pain or fog,aches,numbness etc... Steroids are pretty serious stuff!!I hope to never need them again~
    Good luck to you~
    Warm regards,
    Tracey
  5. Mikie

    Mikie Moderator

    Steroids are very heavy-duty medications and should be reserved for serious inflammation in the body. FMS is not considered to be inflammatory by most experts. I would not allow my FMS to be treated by steroids. Yes, they do give some relief in the short term, but they affect hormones in the long term and cause more problems for us.

    Love, Mikie
  6. Cactuslil

    Cactuslil New Member

    I have been going through a living hell reducing my steroids which started 8-years ago now as a boost so I could keep my career going (musician). My pharnyx was not holding up to the demands of live performance so my doc causually put me on steroids!

    For reasons unknown(ha-ha) I ended up with "never-ending adrenal insufficiency". Nightmare. Two years in and out of the hospital; six years all together until I told them NO! I had by then developed Cushings Syndrome. It has now been about six months and I am down to 5mg. Pure hell. I had quit all together and the pain was horrendous so I went back on them about three years ago w/an average daily dose of 20mg. Six months ago when I suddenly gained 100 lbs I said that is it...no more..doc said I should not do it but I told him I could not live with Cushings, I would rather be dead. Gotta run! Lil'