FM CFS Suffer too

Discussion in 'Fibromyalgia Main Forum' started by aka1977, Mar 29, 2006.

  1. aka1977

    aka1977 New Member

    Hello everyone this is my first time to this board and I'm so glad I found it. I also suffer from FM & CFS. I do also beleive stress play a major role. I had a crappy childhood my parents divorced when I was 6, and they argued and hated each other up until I was 14 so I got caught in the middle. Around 8 I was diagnosed with Graves Disease, and went through years of blood test, head scans, 12-16 pills a day. My thyroid leveled when I was 18, and I was good for five years, then it started to act up again, so I had Radioactive Iodine, and now I'm on thyroid replacement for the rest of my life, finally found a good natural thyroid medicine in 2003. Well my father passed away very unexpectdly in March 2000 from a heart attack, and short after I started to have FM & CFS symptoms. I also was very depressed I was a daddy's girl, and he was my best friend. Well I was put on Effexor XR, and after months & months of pain. I got married in 2001 to were I would finally have health insurance, I had MRI's, blood test, seen docotors, and Neurologists one thought I had MS, and finally after months of running around with no answers I went to a second neurologists who diagnosed me with FM & CFS in July 2001, this was already after I had to quit my part time job I loved because I wasn't able to make it into work. Started receiving disability in 2001 thank goodness. Well years have passed and more medications that I can remember still suffering and need to find a good doctor in MN seems like an impossible feat. Well sorry so long I just needed to vent, and look foward to talking to some of you.

    Thanks,
    aka
  2. alaska3355

    alaska3355 New Member

    This is a good place to share ideas, treatments, and just to vent. I like asking questions and I get some great answers. Feel free to check in anytime...we're always open! Terri
  3. alaska3355

    alaska3355 New Member

  4. libra55

    libra55 New Member

    Welcome to our board! I'm sorry you have had so many problems. This is a good place to be. You will have plenty of company!

    I am 50, female, have FM diagnosed in 2000, also Crohn's Disease and asthma so with all 3 autoimmune diseases I feel like I'm always running to one specialist or another. Certainly never a dull moment. I am married with two teenage daughters and I have two crazy dogs.

    Glad you found us and jump right in and ask questions, there are a lot of knowledgeable people here.

    Michelle
  5. libra55

    libra55 New Member

    bumping for aka1977 for more responses.

    Michelle
  6. sues1

    sues1 New Member

    You do not have to answer this...but you said you married to get insurance?
    I really hope he was the right one and that you are happy. This adds much to our existance, to have a good partner.

    You sure have been through a lot.....welcome to our board

    this is the place to ask questions and to read where others has posted....with better questions and answers than I can give anyhow. So it is a win-win place.

    Many Blessings and gentle hugs.......Susan
  7. aka1977

    aka1977 New Member

    Yes I did marry him because he was the right one. We've been together almost 10 years ( dated 5 before marriage & will be married 5 on April 21 god willing). Thanks for your support.
    [This Message was Edited on 03/31/2006]
  8. aka1977

    aka1977 New Member

    Thank all you for your support. I wanted to say that it helps to have found others to share thoughts with. Also that others are understanding about how my FM was probally brought on by my fathers unexpected passing, so they call it post tramatic stress. Although he has been gone now for 6 yrs it still feels like yesterday, I still cry qutie a bit and think about him everday. I'm so thankful that people understand that pain in loss. Most people I know haven't experinced a loss like that so they have no idea of the pain, and act like well get over it, it's been how many years now move on, and they still say everyday it gets easier, I don't know about that everyday I just miss him more. But again I'm so thrilled to have found all of you. It is much needed support, and I'm so grateful.

    Thanks,
    Aka
  9. libra55

    libra55 New Member

    You mentioned losing your father. That is a very painful issue. My dad passed 21 years ago this coming April 5. It was not unexpected but to this day I still miss him. Not a day goes by that I don't think about him. He was a father and a friend too.

    (((((Hugs)))))to ya
    Michelle
  10. aka1977

    aka1977 New Member

    Yes, you just never think about them really dying. He was only 58. If I was worried about anyone it was my mother. She has awful health. 3 heart attacks @ 37 yrs old, 1 @ 54, she also has depression, FM, and Emphasemia ( not sure how to spell), high blood pressure, high cholestrol - which runs in the family. Dad had high cholestrol, and my sister & I also do. So like I said if I was worried about anyone it was my mom. But besides my health issue problems. I have out of control fear of people dying. Like that night my dad passed I kept calling his house, and didn't get no answer. So I finally went over there and I found him deceased. Well know if I can't get ahold of someone I start to shake, get hives, cry, and just anxious, and in a total panic till I know their o.k. My fear of my husband passing is immense to if he tells me he's not feeling well, I worry, when we go to sleep at night I can't sleep decent. because I'm always making sure he's breathing. I just can't help it. Losing my dad like that just really put me on a different path. I worked before that, I was happy, felt pretty good minus thyroid stuff, was going to get married and have a family. Now I'm married to a wonderful man, don't work to to health receive disability, depressed alot, and sick alot of the time, and due to health problems won't have children just had tubal done. So I'm a dog mom to a 4 yrd old rottweiler named Thor, he's my baby, and he spends everyday with me at home. Well anyway it would help if alot of people could just realize that losing a loved one is so devastating, and stop beleiving you should just get over it.

    Thanks for listening,
    Aka