FM FRIENDS: HYSTEROSCOPY

Discussion in 'Fibromyalgia Main Forum' started by Fibrotears, Jul 14, 2006.

  1. Fibrotears

    Fibrotears New Member

    Hi everyone.

    The hysteroscopy was uneventful. Everything is OK. There were polyps (thank GOD not C or endo!!) and prof removed it.

    But this time it is official: There is really nothing that they can do for me. Prof thought that the polyps could've been the cause of my vaginal spasms but the polyps are too small.

    He was so full of himself. Told me that I would be without pain after the hysteroscopy. But in my heart and based on facts and sooooo many articles I've read I knew the spasms are caused by FM. If my whole body is full of TP's caused by FM, why would the vaginal TP's not be FM??? He gave me false hope, yet again I fell in that trap. Having false hope.

    Then: "He can't feel the TP's!!" Not my fault they are playing hide and seek! And that he's not skilled to feel it. I don't have the emotional strength to convince yet ANOTHER doctor that there are TP's and yes I'm dying of pain. My GP, my actual gynae, the pain specialist and the gynae who assisted at my PNE surgeries ALL felt it!

    Yet again I was repremanded because I use Valoron. "You will get addicted, I can promise you that" I can promise him I won't. Why does he think that I've been to over 30 specialists? Had FOUR PNE surgeries last year? For fun?

    It's simple: To get RID of the pain and to STOP TAKING schedule 7 PAINMEDS!!!!! Can't he think for himself? I've told numerous dr's NUMEROUS times that I don't want to use pain meds the rest of my life! I don't like to feel drugged and feel out of control!

    My father was Wellington's head of traffic and he won't allow me to get my drivers lisence because I'm to drugged! I'm 21 and can't go as I please. But I agree with him, I'm a danger to myself and other people.

    The worse is that prof allowed a STUDENT to be present during the procedure WITHOUT MY CONSCENT!!! Afterwards I heard that the prof AND THE STUDENT examined me intra-vaginally!!!!!!! I feel so violated! What the heck is going on with SA's doctors? I really feel like reporting him to the medical board. His lisence can be revoked. In this situation I have proof unlike the incident with my GP. He told me in front of my mother that they both examined me. If the 'person' really was a doctor, why didn't he introduce me to him??? This was exactly the reason why I didn't want to be done at Tygerberg hospital because it's a teaching hospital. And then he have the cheek to bring a student with him to Vincent Pallotti Hospital. A private hospital!!

    Feel like an emotional wreck! The only option I have left is LUNA, laparoscopic utero-sacral nerve ablation.
    Ablation meaning to destroy the nerve. They destroy the nerve going to the uterus, cervix, vaginal muscles and rectum.

    The problem: No one can say for 100% sure that this will take away the pain. It's usually used for extreme menstrual pain.

    Side effects: Uterine prolaps, fecal and or urinary incontinence, sexual problems.

    I'm 21 and I have to decide something this astrounomical that will affect the rest of my life. I don't want to be 21 wearing nappies and a colon bag, have my uterus sag down and possibly lose it, not be able to be sexual in my marriage someday and not be able to have children!!!!!!!!

    The worse is: What if I do it and afterwards STILL have pain and have some or all of the side effects!! How do one live with oneself then?

    I'm so emotional. I want to be rid of my pain so badly!
    But one thing my sister said today is not to make life changing decisions when your emotional. She's right.

    I wish things were different.....


    PLEASE, PLEASE PRAY FOR ME?

    Can I ask my female friends a big favour?
    If you have the guts can you ask your dr's what he / she would do if he / she had a patient with rectal and vaginal spasms caused by FM?
    I will really appreciate it.

    Fibrotears

    [This Message was Edited on 07/14/2006]
  2. kellyann

    kellyann New Member

    I am sorry for all your pain and sorrow.

    RE:
    I'm 21 and I have to decide something this astrounomical that will affect the rest of my life. I don't want to be 21 wearing nappies and a colon bag, have my uterus sag down and possibly lose it, not be able to be sexual in my marriage someday and not be able to have children!!!!!!!!

    In my opinion DON"T DO IT!!!!!!! That sounds like asking for more trouble, it does not sound very promising at all. Please don't do that to yourself! Way too drastic. I think you would regret this surgery very much!!!!!!

    I know the pain can be so hard to take day in day out. You are only 21, you are so young to even be thinking about having such drastic surgeries. Where is your pain the worst and what kind of pain do you experience?

    I bet you did feel violated about the student exam, but I don't think they meant anything sexual by it, do you? I hope not. If you do, by all means report them.

    Of course I will pray for you, I pray you find some true relief from your pain.
    May God bless you!
    Kellyann