FMS and Difficulty Swallowing

Discussion in 'Fibromyalgia Main Forum' started by Claypot, Nov 16, 2002.

  1. Claypot

    Claypot New Member

    Hello... I am new to the message boards and have found them to be so informational and a great blessing!! Anyways.. I was diagnosed to FMS about 10 years ago. My question is this since I was pregnant with my first child at the age of 21 I have had a very hard time swallowing and I know that its not been listed as a side affect of Fibro. But personally I do believe this is because its orignation was at a stressful time. ( About to be a new mom) and also... I know that it gets so much worse when I am feeling very stressed. Sometimes I can hardly swallow my saliva.. much less food in fact I have been known to not even eat when I am feeling so stressed cause of the fear of choking. Has anyone else experianced this as a possible side affect or known of anyone to? Thanks for any and all responses I may recieve be Blessed in abundance!
  2. Claypot

    Claypot New Member

    Hello... I am new to the message boards and have found them to be so informational and a great blessing!! Anyways.. I was diagnosed to FMS about 10 years ago. My question is this since I was pregnant with my first child at the age of 21 I have had a very hard time swallowing and I know that its not been listed as a side affect of Fibro. But personally I do believe this is because its orignation was at a stressful time. ( About to be a new mom) and also... I know that it gets so much worse when I am feeling very stressed. Sometimes I can hardly swallow my saliva.. much less food in fact I have been known to not even eat when I am feeling so stressed cause of the fear of choking. Has anyone else experianced this as a possible side affect or known of anyone to? Thanks for any and all responses I may recieve be Blessed in abundance!
  3. missboo

    missboo New Member

    I do have trouble swallowing. it feels like the muscles in my throat don't work and the saliva keeps coming back up. laying down is when it is the worst. i sometimes choke and feel like i cant breathe. i'd also love some advice on how to deal with it!
    missboo.
    [This Message was Edited on 11/17/2002]
  4. ZosoLight

    ZosoLight New Member

    I have trouble swallowing and experience choking and coughing spells at night. Sleeping on a pad that raises up my upper body helps alot.
  5. joyof3

    joyof3 New Member

    I have a hard time swallowing to. I am glad you have joined the board welcome.

    stephanie
  6. Rozmund

    Rozmund New Member

    Hope this information while a bit long will at least help you to understand what is going on. Taken from excerpts from book: Fibromyalgia & Chronic Myofascial Pain: A survival Manual Second Edition by Devin Starlanyl and Mary Ellen Copeland.

    First there are digastric trigger points in the throat directly under the ears from the end of the jaw line at one end and down to the adams apple at the other end. The referred pain from these triggers ends up right under the chin in the throat. Stress does aggravate these, and can pose problems with swallowing and chewing. This can lead to head and neck pain and a "swollen glands" feeling. Researchers confirmed that their patients with facial pain and abnormal swallowing had digastric hyperactivity in every case. It hurts to work digastric TrPs. !!
    Start with warm moist packs on your throat for a few minutes. Then put your elbows on the table, and rest your thumbs on either side of your jaw, under your chin. You are trying to get a release of the myofascia,(muscle) by "milking" away excess fluid. Use a gentle backward motion from the base of your chin, stroking or pressing up to the base of your ear. Start gently, and listen to your body. It will tell you how much pressure to use. Gentle bodywork may help you to deal with these TrPs.

    Internal medial pterygoid TRP's may also cause problems swallowing, and you may also experience pain when chewing, jaw clicking, temporomandibular dysfunction (TMD) to some degree, sore throat, excessive saliva, and sinus pain, drooling during sleep or choking on saliva. I have this and it is worse when I actually do get a real sore throat or cold or sinus infection. Discussion with 2 of my doctors was totally unfruitful - For that reason I have put myself on Guaifenesin - 100 mg per teaspoon in good old Rotitussin Exportorant....4 times a day to thin the mucous that is drips from the sinus area and collects at the back of the throat - it will also allow me to cough up phlegm. Very important to drink those 8 glasses of water a day to keep the mucous moving out of the body.

    If you grind or clench your jaw this is also part of the results of these trigger points. Physically do try the warm moist packs - even when you are in the tub - and mentally - do try to destress - mealtimes should be as calm as possible with soothing music and quiet conversation if possible. I have found that overeating anything is torture - and not worth it - so I eat small meals with the family and if I get hungry inbetween, small snacks - I find fruits , vegtables with a herb oil, or dips that agree with me helps to get the good stuff down. I have not eaten peanut butter or toast in a long time - as I more or less have to drink it down. Hope this helps - and you can print this off and take it your doctor if you wish. Also, we are all different but I have learned through experience that taking dairy products seems to increase the presence of feeling of excess mucous at the back of the throat which "I think" adds to the swollen gland feeling in my case. Good luck - there is rainbow - we just have to keep looking up.
    [This Message was Edited on 11/17/2002]
    [This Message was Edited on 11/17/2002]
    [This Message was Edited on 11/17/2002]
  7. sheri

    sheri New Member

    Read your message on difficulty swallowing, and I sometimes have that, it has at times, "frozen" up, so that I have to wait for a while before I can. I wonder if you may have reflux? This can be the culprit of these kind of symptoms too. Also, seem to salvatate occasionally. blessings, sheri
  8. LindaGa

    LindaGa New Member

    Welcome I use to have this trouble and mine was caused by panic attacks(anxiety) I was put on klonopin for it and it stopped i also could not eat and cough alot .hope this might help >LindaGa
  9. dizzymindy67

    dizzymindy67 Guest

    hi im glad to know im not alone on this. sometimes i choke on food, its like my throat freezes up. i sit with this chunk of food half way down wondering if its going down ever or am i going to choke. then sometimes it tickles and its horrible. being in public or with someone you dont know is embarrasing. im new to this and ive found lots of helpful info. and the feeling of not being alone. thanks mindy
    [This Message was Edited on 11/17/2002]
  10. tamara!

    tamara! New Member

    THANK YOU! THANK YOU! THANK YOU! Did I say THANK YOU!
    I have been suffering with this for a long time and didn't know what it was. Before I was dx with fibro the doc said I had reflux ,and I do, but he couldn't explain the swallowing problems,the stuck food,the choking,etc.they put me through some tests and as usual with most of us --nothing.
    Thank you for my answers and hopefully some help.

    Claypot--Thank for asking the question.
    (soft hugs)
    TAMARA!
  11. BethM

    BethM New Member

    When I mentioned to my doc a couple of years ago that I have occasional episodes where my throat closes up and I can't breathe and can't swallow or talk, he immediately ordered an upper GI test. These episodes are very frightening. The first time I thought I was going to suffocate. Since then I realized I just need to relax and then force the air into my airway. It sounds dreadful, and is VERY frightening for anyone with me. It also leaves me exhausted. Fortunately it hasn't happened in public places, although it's interesting to deal with it while driving.

    The upper GI revealed GERD (gastroesophageal reflux disorder), which I control using Prilosec. (My insurance took Prevacid off its formulary.) I still have these episodes occasionally, especially if I am upset or agitated or stressed. I do try to eat in a calm environment, and eat slowly. However, they also come out of the blue, unannounced, and suddenly. I can swallow saliva and feel my throat start to close. If I can immediately focus and relax, I can get it to settle and stop before it gets to the complete throat shutdown. Sipping water helps, too, to 'un-spasm' my throat.

    I believe this has multiple causes. The GERD is a factor, as are trigger points and general stress. Actually, I suspect the GERD is trigger point related also. I think I am a walking trigger point some days. I'm working on that.

    Welcome aboard, and you are most definitely not alone with this DD and all its weird and varied symptoms.

    Peace,
    Beth.
  12. clueless

    clueless New Member

    I have difficulty swallowing and had a barium swallow to check it out. I have a terrible time swallowing my meds. The barium swallow showed areas in the throat that are more narrow and the muscles that move the food have difficulty moving it in these areas. As this fm. affects soft tissues, muscles etc. I am assuming this is what is causing the problem.I may be wrong but the Dr. said the muscles were weaker so that sounds like another blessing of this disease. What do you think?
  13. Claypot

    Claypot New Member

    Wow ... thanks so much for all the replys! and Mindy yours is so very close to my symptoms... often times I try to swallow and the food is like sitting mid throat and not going down.. I mean like for a long time I can feel it just sitting there. Also I have noticed sometimes that it feels as though the food is actually moving back up my throat. Like the parastalsis thats supposed to aid in getting the food down actually reverses and... causes it to start back up. And yes I choke queit a bit and.. I hate it. Sometimes I just wont even bother to eat cause of the fear in the choking its an aweful feeling. Perhaps some day the drs will reognize this too as a symptom and add it to the list of possible fibro symptoms, well maybe its already been but I have yet to see it personally.And I will be seeing my Dr later this week and will be talking to him about this.. and see what he thinks or suggests. When It first started I was about 21 and at that time I went to see a ear nose and throat specialist. Had the upper GI done and he found nothing abnormal at that time.. so I just have never bothered to go further..cause for one thing its not like it happens everytime... and that day of the GI I didnt have any trouble to swallow it (wouldn't you know).LOL Anyways thanks again for all these replys and keep them comming. For knowledge is good and can only help us. God Bless
  14. pam_d

    pam_d New Member

    Add me to the list! It's not so much that I have actual difficulty swallowing, but that I feel my muscles always have to work harder to swallow, than before I had FM--at least that's what it feels like! I go thru periods where I notice this more than other times. Thanks to all who posted about this, lots of good information here!!

    Hugs,
    Pam
  15. kellym

    kellym New Member

    because it was accompanied by a swollen tongue (which I have permanently) and sometimes hives. The best thing I've discovered is to stop everything you're doing and really try to calm down and relax and concentrate on breathing. but that's just me...good luck. I hope you find what's causing yours.
  16. Pinky

    Pinky New Member

    I am so glad to hear I am not the only one- I,too have difficulty swallowing and an excess of saliva. i feel like I am choking and have a hard time even getting the saliva down. I was Dx with FM/CFS over 2years ago and at the same time started seeing a gastrologist. i had an upper G.I. which confirmed GERD and chronic esophogitis. I had to have an EGD to have my throat stretched an I have been on Prevacid ever since. I still continue to have problems but I have raised the head of my bed, do not eat within 4-6 hours after eating and try to eat slower and more smaller meals rather than 3 big meals. I have found that a few foods make it worse for me and i try to stay away from those. Alcohol, coffee, colas, chocolate, citrus fruits and juices to name a few.
    I had posted this same issue awhile back and did not get the results you did! THANX for addressing it again!
    Debbie
  17. Nannibel

    Nannibel Member

    This is the first time I've seen anyone else describe what I call attacks, that closed my swallowing and breathing off. I do think this is the most frightening symptom I've had. Interestingly, I found at that this has happened everytime I ate something with MSG (monosodium glutamate)
    in it, I ended up calling 911 after having a chinese dinner,
    and it happenend again when I ate at a barbecue restaurant,
    that admitted they had sprinkled accent on the sandwich.
    There could be other factors involved here, too, such as not being calm or coming down with a virus, etc. that complicated things, too. I do think our bodies are hypersensitive to things, like certain spices, hot or cold, etc., so I pretty much eat a more bland diet now, and a mostly organic one.
  18. missboo

    missboo New Member

    I typed in 'common fibromyalgia symptoms', and the first site that came up listed difficulty swallowing as a symptom. Just thought i'd let you know that it is a recognized symptom! (and one i experience often!)
    missboo.
  19. nancyneptune

    nancyneptune New Member

    yes I have had GERD for 30 years. I can't even swallow spit without choking on it and having a coughing fit. My gastro doc is an ass and says I can't still have these symptoms since I had a Nissan fundoplication. The stomach wrap thing to tighten the muscle at the top of your stomach? Well, I hate to tell him but I still need my esophagus stretched! I cant swallow! God why do we have to put up with snide doctors that don't want to bother with you after they've gotten their 20 grand for surgery? Yikes i'm in a bad mood tonight.
  20. Shirl

    Shirl New Member

    I have the same thing. I completely quit eating meat, soft bread, and many of foods that seemed to trigger this choking more than other things.

    It is much better now, I drink 'Pure Noni Juice', one teaspoon with a little grape juice before I eat. It took about a week for it to help. But now I can even eat steak again.

    I think its the muscles in the throat (my opinion), somehow the Noni relaxes them.

    Also, if I take a small dose of Xanax if I am eating out, the food goes down normal, and I don't choke. Maybe anxiety is a mix in this too.

    If I am stress at all, I don't eat anything! I will surely choke.

    I had occasions when I would order food, then take one fork full and it would choke me. I would have to take a go bag, as I would be afraid to try and eat anymore in the restaurant, as it is soooo embarrassing to choke like that in front of people!

    Rozmund, I will go read that chapter in Devin's book, somehow I missed it! I have all her books, they are wonderful.

    Shalom, Shirl