Discussion in 'Fibromyalgia Main Forum' started by StephieBee, Jul 11, 2006.

  1. StephieBee

    StephieBee New Member

    Does anyone happen to have a full copy of the Good doctors list? It was the one that was posted on the internet and has since been removed because it lists docs that are known to prescribe pain meds. I believe it was off of a website of a man by the name of Skip who passed away. If you do have it, could you please send it to me? You would think because Massachusetts has one of the best hospitals in the world, you would get the best care. Unfortunatly that is not the case 99% of the time. My pain has been a 9 or a 10 on the pain scale lately and I really need help. Also if anyone else knows of any docs willing to prescribe pain meds for really bad flares off-hand, could you please let me know.

    [This Message was Edited on 07/11/2006]
  2. ruby711

    ruby711 New Member

    I think Mass General has a pain center. I saw a pain specialist on the news who I believe works at Mass General. Don't know if she treats fibro but she does biofeedback and offers a variety of treatments.
  3. mme_curie68

    mme_curie68 New Member

    My rheumatologist recommended the pain clinic at Spaulding Rehabilitation Hospital in Boston.

    At the time of my dx, pain was not an issue for me. It did develop and but right now it is controlled by my being on Naproxen 24/7.

    Try Spaulding.

    Madame Curie
  4. StephieBee

    StephieBee New Member

    I have been to Spaulding before. They did not help me much so I stopped going there. I would actually walk out of there in more pain than when I walked in.

    As far as MGH goes, I called them. You need a referral from the doctor that is treating you right now. When I told her that I had fibromyalgia, she said that they dont prescribe pain medication and if their treatment doesnt help me, they automatically refer me to Dr. Joanne Borg-Stein. I have already been to see Dr. Borg-Stein and I did not find her to be any more special than some other doctors.

    So these 2 are lost causes for me. Thanks anyways for the recommendations!

  5. StephieBee

    StephieBee New Member

  6. Tigger57

    Tigger57 New Member

    Are you far from the Rhode Island border? There is a guy who specializes in fibro at the Rehabilitatiin Hospital in North Smithfield, Rhode Island.
  7. findmind

    findmind New Member

    I'm sorry, I can't help you, but wanted to tell you that you will get permanently kicked off the board unless you delete your email address.

    For safety's sake, they are against the rules.

    Just go to your post, enter on Edit, and erase the email addy, ok?

    Good gal!
  8. suzetal

    suzetal New Member

    They should send you there book with all the doctors in MA,BCBS of MA. you can tell them your thinking of getting them for coverage and need to know the doctors you can go to.

    As far as the doctor in N. Smithfield RI his name is Dr Raphael .I went there and he does not give pain meds. they are into alternative treatment.I got my pain meds from my GP.

    Also try your ins. Co if you have one.
  9. IlivetocantoronXena

    IlivetocantoronXena New Member


    I can say I have not found a good doctor here in MA.
    I went to the Beth Israel pain management clinic not just for fibro, but for RA,MS and Fibro, they told me they do not give out pain meds. All they did for me was trigger point injections. Should you find another pain clinic in Ma would you please let me know, as I will let you know. Years back U-Mass had a pain clinic that was great and helped out my mom. But now it is at the Marlboro Hospital and they do not give pain meds out. We are pretty much out of luck.

  10. StephieBee

    StephieBee New Member

    Tigger, I live a little over 1 hour from where I a, to Rhode Island. I would not mind driving there for a good doc. Im assuming he is one of the only docs in that hospital to treat FM. I will look him up!! Thanks Tigger! areae a lifesaver!! I dont know all the rules of the board yet because I havent been on them too long. Thanks for being very kind. I have edited my e-mail out of my post! Thanks for having my back (my very achy back!!!)

    suzetal, BCBS is a wonderful insurance company. My employer switched us to Tuft's last year from Harvard Pilgrim. According to findings Harvard Pilgrim HMO is ranked #1 in the US, #2 is another division of Harvard Pilgrim and #3 is Tufts HMO (which is mine!). Tufts has a hotline that you can call to find a doc. I just wish that every person who suffers unneedlessly from this DD could get wonderful insurance like us.

    Michelle, I thought Boston was suppose to have the top docs in the nations! This is craziness! We need help for this DD. Im sorry you had such a bad experience at BI. Atleast now you can cross them off of your list. The thought of trigger point injections makes me queasy! I would never let any doc give me those! I have been told that my pain is too severe and widespread to be treated with triggerpoint injections. As far as good pain management docs, my father has one. He does not have FM/CFS, he has a permanent neck injury where he is in constant pain and will be for the rest of his life. HE sees a doc at Spaulding Rehab by the name of Dr. Heechin Chae. I would go to him if he would take family members of patients but he wont, so Im out of luck. I believe he even has the ability to prescribe stronger ones. Although I have been to Spaulding myself to see another doc (whom I did no like), I would highly recommend looking into Dr. Chae. (BTW its pronounced Chay) IF you ever find something or even think you did, track me down and let me know!

    Thank you all for your kindness and support
  11. pammy52

    pammy52 New Member

    r u talking about the good doctors list that was part of the doctors link on this board?
    if so click on the doctors tab at the top of your screen and then co cure cfs/fm good doctor list.
    all the states are listed and once you click on a state it brings up a list of docs.

    i have recently starting seeing a dr in northampton ma..
    he is located at the wellness center that is run by dr. barry elson that is on that list.

    i am pleased with dr. lynch and the facility so far but have not had any experience with pain management thru them at this point.
    i had a pain management doc who worked at the same hospital i do.
    he has moved and although the clinic is still there i have not seen the other doc.
    my pcp has prescribed meds for pain.

    good luck with your search and let me know if the info on the doctors link was what you were lookin for or if there was a more expanded list at one point that you were referring to.

    [This Message was Edited on 07/12/2006]
  12. IlivetocantoronXena

    IlivetocantoronXena New Member

    I sure will, you can count on that. Thank You for the pain doc you mentioned. I will give him a try.
    Hugs and Blessings,
  13. winsomme

    winsomme New Member

    why don't you have your primary care Doc refer you to this Dr Chae and not tell them that your Dad already sees him?

    maybe worth a shot.

  14. StephieBee

    StephieBee New Member

    That would be so easy to do, but it is Dr. Chae's decision not to take me on as a patient because my father is his patient already. Maybe he's not comfortable seeing family members because he has had prior bad experience with it. Who knows, but I would go see him if I could. Dr. Chae did refer my Dad to a rheumy named Dr. William Pachas out of MGH and also out of Spaulding. He specializes in FM and CFS along with other arthritic diseases. Im just waiting for my referral to come in. He must be good if Dr. Chae recommended him!

    Take Care,
  15. StephieBee

    StephieBee New Member

    Definatly try him out. He is very understanding of pain from what my Dad tells me. He is very serious about his work. Personally I like docs that you can just have general discussions and joke around with...only if they are good of course! Dr. Chae is not that type of guy, he gets down to business. That still doesnt bother me because I know how well my father has done with him. I hope you do try him out. I dont think it is as hard to get a referral to Spaulding, I cant remember though because it was years ago. Ill tell you this much, its easier than getting into MGH. They sounded like they didnt even want me to bother looking into them if I had FM. Dr. Chae recommended a rheumy to my Dad by the name of Dr. William Pachas. He is out of both MGH and Spaulding. I will definatly be making an appt. with dr. Pachas. I hope everything works out for you.

    Take Care,

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