Didn't know if you would see the other post, so copied my response here ... I am finally able to respond -- 06/12/03 10:15 PM Sorry I haven’t felt like posting much lately, though I have been lurking as much as possible – I have had some real problems getting used to the right combination and dosage of meds to control the Meniere’s symptoms. And, boy, talk about headaches – I am averaging 4 to 5 bad ones per week. My doc is monitoring them, thinking they must be tied into one of the meds, but I am stuck with them for now if I want to avoid those awful vertigo attacks. At least, the massage therapy is helping to keep the intensity down some. Lil – I am so sorry that your health has taken a turn for the worse, but glad that you have a sympathetic and attentive doctor. It’s good he was able to shield you a little from your toxic relatives while you were in the hospital. How great that the insurance approved your doc’s prescrip for a power chair, but I don’t understand why your provider has not made arrangements to deliver it to you if you have no other way of going to his place to pick it up. It has to be fitted to you before you can take delivery of it – the fitting can take up to an hour to make sure the chair is both as comfortable as possible and functions in the best way needed for you to be able to properly handle it. He can do the fitting at your home, if needed. My scooter fitting took about 45 minutes and, while doing it, the provider found a couple of things that needed replacing. He called the manufacturer right then and they overnighted the items so that I could take delivery the next day. I would call Medicaid and have them put pressure on your provider or ask them for a new provider who is more customer-service oriented (and maybe even a little closer to you). Thanks for your notes on filling out the CFS/FMS Residual Function questionnaire. Because I do not have CFS (although I do have chronic fatigue as a symptom), I thought about ignoring the CFS questions and concentrating on the FMS questions, customizing and expounding on them for CMP also. If I do end up in front of another judge, believe you me I know to show up looking like I just rolled out of bed! I haven’t worn makeup or even a bra in ages, either, and the bags under my eyes testify to my severe sleep deprivation problem. Hey, after all the years of working and paying into the System, you certainly are entitled to SSI and/or SSD because you qualify. I sure won’t feel ashamed if and when I get my approval! And, thanks so much for the kind words about my posts – I try to be as helpful and encouraging as I can, but sometimes I feel so foggy-headed and all I can do is read a few of the posts. I find your posts very encouraging, as well. BTW, I did get an attorney that is local to me – he was recommended by a counselor in the TX Rehab Commission office, after she told me that I was unemployable! Hi, Lane – Yeah, the storms are here now – we are really getting pounded! As I explained above, getting used to these meds has really taken their toll, but I think they’ve finally found the right dosages to control the vertigo, although I am left with bad headaches. It’s always something, isn’t it? :-} About your notes on that form – I did not know there does not have to be an actual diagnosis of the CFS. I do have some of the symptoms, but not all of them, although my docs have all said in the records that I have chronic fatigue. I appreciate your mentioning this and I am going to look it over closely to see how best to use it. Yours and Lil’s research abilities are incredible and have been so helpful in my application process. I am currently recreating as much as I can remember of what the judge said at the previous hearing for my attorney, who is working on a listing of all the SSRs that were ignored at that previous hearing. The judge simply stated that I was “not a credible witness”, mainly because I had made the mistake of dressing professionally – according to my former lawyer! I remember that my daughter had to help me dress that morning because I could not do the zip or buttons in my outfit. I do have Congressman Joe Barton involved on my recon at this point. He handles Arlington. His office called the Arlington SSA office to speed up the processing of my request for copies of my case files and that call created a “congressional inquiry” red flag status on my case. Now, the same SSA office cannot do enough for me as far as keeping me informed of what is going on. Hopefully, Granger’s office will do the same for you. My pcp is Dr. Naberhaus in Arlington, but he is really hard to get into as a new patient. The only way I got into his care so quick is because I was a former patient of his under a previous insurance carrier for many years and he remembered me. He does believe that CFS, FMS, and CMP all exist and has been doing quite a bit of research about each condition on his own for the last five years. He has read Devin’s book and listens and asks the right questions. He is also very open-minded to new therapies to try to help with all my symptoms. The first thing he did was to refer me for non-drug pain management therapy with my now weekly chiro and massage therapist. (All my former pcp did was to keep throwing more meds at me, none of which worked.) I am so glad to have him. Unfortunately, some of his office staff are not the most competent or caring, but I can put up with them because of he is such a great doctor. He even sets appointments for me to come in for a visit if I have a letter I need from him so that he does not have to charge me extra for that letter. So, I only pay my co-pay. I wish us both the best on our cases – heaven knows we deserve it! :-D You guys take care and have a stress free day.