For Mikie re: Guai

Discussion in 'Fibromyalgia Main Forum' started by bpmwriter, Jan 21, 2006.

  1. bpmwriter

    bpmwriter New Member

    mikie,

    i've been kicking around the idea of trying the guai protocol. i've only had fibro for about a year so it seems i would know within a couple months if it's going to work for me. my question is, how important do you think it is to see a doctor and get the mapping done? there's a doc about an hour's drive from me (carole edwards) who trained under dr. st amand so it's certainly not out of the question to engage her assistance. i'm just wondering if you think it's really necessary. also, did you get a glucose tolerance test done and follow the hypoglycemic diet during your treatment?

    eddie
  2. zenouchy

    zenouchy Member

    Hi Eddie,

    My name is Erika and I've had fibro for about 18 months. I've been on the Guai Protocol for about 15 months. I know your question was for Mikie, but I think I can help you. I belong to an online Guai support group, and have learned a wealth of information there from people who have been on the Guai Protocol for several years.

    (If you are interested in joining an online Guai support group, you can see fibromyalgiatreatment.com). In regards to mapping, if you have a doctor only an hour away that has trained under Dr. St Amand, that a huge plus because mapping is the one true metric that helps you gauge your progress with the Guai Protocol and lets you know that you are clearing phosphates.

    Of course, it is not completely essential, but I believe it will put you on the fast track and help you avoid common mistakes that are easy to make because the Guai Protocol is detailed, plus when we start it, we aren't feeling well to begin with.

    I did not have a doctor close to me that could map me, however, I am now pain-free, which is amazing (zenouchy is no longer a good screen-name for me!). Everyone varies with their progress, and I started the Guai Protocol after being dxed with fibro for only a few months, so that was a huge plus. However, I think it is still a big plus for you to start the Protocol after having fibro for only a year.

    Dr. Edwards can help you with the many other aspects of the Guai Proctol as well, including the determination of whether or not you are hypoglycemic (as you mentioned). This aspect of the Guai Protocal is underestimated and many don't follow the HG diet. So many of us with fibro are hypoglycemic, and eating foods high in sugar deprive us of energy.

    Being pain free is unbelievable. It's hard to belive that my pain was so horrible (10+). Bottom line: I would defintely recommend that you try the Guai Protocol, and seeing a doc that has trained under Dr. St. A will put you on the fast track. An online Guai support group helped me learn about the many details of it from people who have been on it for several years. I remember from when I used to post here a lot in the past that Mikie recommended this Protocol to people all the time because when followed correctly, it works most of the time. Best of luck!!


    All the best,

    Erika

  3. bpmwriter

    bpmwriter New Member


    thanks for the info. i've been diagnosed with both cfids and fibro at one time or another but the one constant seems to be the pain. i have certainly found medications that lessen the pain but i've always said it has a mind of its own and frequently shows up uninvited. what really got me thinking about the guai is the mention of the importance of the left thigh. when i walk too far, the first thing that starts hurting is the inside of my left thigh right above the knee! i will likely contact dr. edwards to inquire about her rates. it's always good to hear another success story such as yours.

    eddie
  4. minimonkey

    minimonkey New Member

    Oh my goodness -- if I had only had fibro for a short time ( I know a year seems long when you are hurting like that, but I've had it for at least 15 years...!) I'd definitely try the guai! You could potentially reverse this thing in only a few months!

    I'm thinking about trying it myself, realizing that it will be a long road for me, having been ill so long...
  5. zenouchy

    zenouchy Member

    Eddie,

    It's my pleasure to help. It's important to note that the Guai Protocol is not a cure and that's it's not a perfect science. While it's DEFINITELY worth trying, like any medicine and treatment, everyone progresses differently with it and at different speeds.

    For me, I thought I would progress a little faster than I actually did, but in the end, so what? I was being impatient and I realize now that it is important not to give this treatment or any treatment an exact timeline because that is unrealistic.

    In the end, it's been well worth it for treating the symptom of pain. (I just wish it helped me with my other fibro symptoms. Speaking of which- for others it has! Again, everyone is different!)

    Best wishes, Erika
  6. zenouchy

    zenouchy Member

    Dear minimonkey,

    Because you have had fibro for so long, I can understand your reluctance to try the Protocol. However, if you believe in Dr. St. Amand's reasons for why we have fibromyalgia and how to treat it, then you might strongly consider trying it.

    I was very reluctant to try it at first because I often take things, especially non-traditional medicine, from a rather cynical viewpoint. Having tried it, I am thrilled. I know that the treatment for you would be a VERY long road. However, you will see improvements along the way, which to me would likely be better than you current state of health.

    Being on an online Guai support group (which I'm not trying to push at all), I've seen people who have had fibro for a long time that struggle and then slowly improve. It's not easy, but they do improve over time. Not an easy choice for sure, but I read encouraging stories from people that improve from the Guai and slowly get their life back, or at least parts of it.

    The Protocol is not easy to follow and it's not for everyone, but it is definitely possible. Fibromyalgiatreatment.com will give you more information if you wish. Those that choose it usually have good results. Best of luck and wishing you good health.

    All the best,

    Erika
  7. Mikie

    Mikie Moderator

    I did it on my own but if I had a doc trained under Dr. St. A, I would definitely see him or her. I had been sick for 10 years when I started the Gaui. I'm about 90 percent reversed in 4 1/2 years on the Gaui. I also have CFIDS, so I'm not well, but I'm working on it. It's a great relief not to have to worry about the FMS as I concentrate on healing the CFIDS.

    The Guai almost immediately got rid of the Fibro Fog and I had some really good days right from the start. We all react diffently, but when figuring how long it will take to be 100 percent reversed, don't forget that long before that, you will feel the benefits of the treatment.

    I didn't have a glucose test. I just tried to eat low carb. Most of us feel much better without eating carbs.

    Best of luck to you.

    Love, Mikie
    [This Message was Edited on 01/21/2006]
  8. bpmwriter

    bpmwriter New Member


    i'm waiting for dr st amand's book to arrive at my local library so i can take a closer look at the protocol. in the meantime, my biggest question is, how does the idea that fibromyalgia is caused by these phosphates or metabolic waste in our muscles explain the rest of the symptoms experienced by fibromites? is the idea that these phosphates interrupt circulation and nerve messages?? also, does the guai therapy reverse other symptoms of fibro or only the pain???

    hoping to hear from one of the guai masters in the house.

    eddie
  9. janieb

    janieb New Member

    Mikey,

    I know we've corresponded recently, but I really need your help. Do you know, or can you find, the address and name of a doctor near Eau Claire, Wisconsin? I've exhausted my limited abilities to find one.

    You encourage so many people and seem to have so many answers. You're certainly a blessing to this group.

    Mary
  10. Mikie

    Mikie Moderator

    Eddie, yes, the Guai gives people days of feeling more energetic, with a sense of well-being. I, along with at least one expert, believe that Dr. St. Amand's theory doesn't explain the complete picture nor how the Guai addresses all our problems. Our bodies' systems are so interconnected that it isn't hard to believe that what affects one area will affect others, though. What is important to me is that it has worked. Good luck with this treatment.

    Mary, did you go to Guaidoc.com and e-mail Claudia to ask about a doc in your area? If we've already covered this, I'm sorry. My memory isn't so good today. If there is no doc in your area who does this, you can still do it on your own by reading and understanding how to find the correct dose and by getting sal free. There are lots of people at the website and on this one who are willing to help you.

    I did it all on my own because my doc knew nothing about the treatment. When I found my specialist, he was knowledgeable of it but by then, I was well on my way to reversal. Good luck to you too.

    Love, Mikie
  11. zenouchy

    zenouchy Member

    Your questions are great and getting a lot more in-depth into the Guai Protocol. I understand the Protocol for the most part, but to articulate it to the degree that you want (I wanted the same thing when I started) I am unable to do perfectly because it's medically complex and because each individual responds DIFFERENTLY to the Protocol.

    I can certainly explain the phosphates and such, but this response would turn into a novella, and Dr. St. A will do it much better than me (again, it's medically complex). One thing I do know that Dr. St. A doesn't mention (because I've learned this ancedotally from people in the online Guai support group) is that not everyone cycles out every fibro symptom. I for one didn't, but most people seem to do so.

    Here is my best advice based on what I know and your current situation (deciding whether you want to do the Protocol, having more detailed questions on how it works, and not having the book yet):

    1. Fibromyalgiatreatment.com is Dr. St. Amand's website. It supplements his book "What You Doctor May Not Have Told You About Fibromyalgia". It has less info than the book, but it's a helpful start. He explains most if not all of what you want to know there about how the Protocol works from a medical standpoint. There's a lot more info there about other aspects of the Protocol as well (HG diet, avoiding salicylates, etc). The book will go into even more detail.

    2. I know I mentioned it before, but because it's answered so many of my questions about the Protocol, it's worth mentioning again: the website mentioned above gives links to two online Guai Support groups that also augment the book. The folks there can help you decide if the Guai Protocol is even for you. (The yahoo group is much more laid back than the other online group.) It gives you help from real people doing the Protocol.

    3. I know you are waiting for the book from the library. However, if possible, I would stronly encourage you to buy the book because the Protocol is so very detailed. It will take time to read it and absorb so many of its details. It's the type of book you will want to refer back to.

    Lastly, the most encouraging thing to note is that the Protocol, when followed correctly, works for most people.

    Good luck!

    All the best,

    Erika

    [This Message was Edited on 01/23/2006]
  12. Mikie

    Mikie Moderator

    Eddie, Erika has given you really good advice. From my perspective, you would probably do well on the treatment because you are asking such detailed questions. You are obviously involved in your own health care and that is important to this treatment.

    I agree that if one is going to do the treatment, one really needs to buy the book. I think a lot of your questions will be answered when you read it.

    Love, Mikie
  13. bpmwriter

    bpmwriter New Member


    i'm going to keep an open mind and read dr st amand's book but i have read some research online pitting guai against a placebo and there was no significant difference between the two. in more than one place, i've also read that the guai treatment is most likely a form of cognitive behavior therapy that helps fibromites get more in touch with their symptoms on a day to day basis. not to discount anyone's gains from the protocol; get better however you can! but i'm not yet convinced of the science behind the method, at least the way it's being presented.

    eddie
  14. Mikie

    Mikie Moderator

    The study was too fatally flawed and is of no value. The importance of sals was not known then and everyone in the study got the same dose. It was a small study and too many dropped out for it to even be statistically significant. Please do not let the naysayers keep you from at least trying this treatment which has helped so many.

    People often discredit what they don't understand. Even docs will do this. If you go into this treatment with the idea that you will fail, you likely will. It is important to keep an open mind and assume that since it has helped many others, it could help you too. People often sabbotage things which could help them because they have been disappointed before and are afraid to trust. Their mistrust, negativity, and failure mindset become a self-fulfilled phophecy. Please do not let this happen to you.

    You have the desire to get better, the intelligence to ask important questions, the resources to get the book and the Guai and a whole slew of people here who are cheering you on. Sometimes in life, you have to take a leap of faith. This is one of those times. What's the worst that could happen? Certainly nothing harmful to your health and only the cost of the book and the Guai. You have very little to lose and everything to gain.

    Love, Mikie
  15. Leaknits

    Leaknits New Member

    Apologies in advance, but I tried to find out what this G U A I thing is...ran search on it...all I could find is "Don't take painmeds, don't eat anything..." Alright, I may be overstating just a little but I swear I cannot find out what the thing IS.
    And what's this "protocol?" Is there somewhere I can go and find answers to these questions? Since today seems to be seriously brainfogged, better make that a site with words of no more than three syllables. lol.
    Thanks.
    Lea.
  16. Mikie

    Mikie Moderator

    Check out the Guaidoc website and the one given above by Zenouchy. There is a lot of preliminary info there and you can buy the book for more detailed info.

    There are so many misconceptions about what one can take and what one can eat when on the protocol. Anyone interested really needs to read up on it and get the straight scoop.

    Good luck.

    Love, Mikie