For Those with Chronic EBV - NIH Study Recruiting

Discussion in 'Fibromyalgia and ME & Chronic Fatigue Syndrome' started by rockyjs, Jan 3, 2013.

  1. rockyjs

    rockyjs Member

    There has been recent research on a possible gene mutation that can cause chronic EBV and susceptibility to other viral infections. It has to do with magnesium transport. My immunologist had mentioned it to me a few years ago, but now there is actually a study to look for mutations causing chronic viral infections.

    Here is the OMIM page about the EBV susceptibility mutation:
    http://www.omim.org/entry/300853?search=number%3A%28300715%20OR%20300853%29&highlight=300715%20300853#reference2

    This is the link to the study that will be looking for gene mutations that affect immunity:
    http://clinicalstudies.info.nih.gov/cgi/wais/bold032001.pl?A_06-I-0015.html@autoimmune@disease@susceptibility

    I don't have any autoiummune diseases but I do get constant viral infections like EBV, CMV, Parvo, etc. My spleen is often so enlarged it's hard to sleep. What's odd is that I never get bacterial infections. I have had lymphocyte proliferation tests that show almost no response and my CD4+ count is low. These are exactly the criteria they are looking for.

    Hope some of you can get in on the study - it doesn't require any travel, just medical records documenting the immune issues and routine blood draws.

    Jan
  2. MicheleK

    MicheleK Member

    Thanks for this information Jan.