Free Online Invisible Illness Conference

Discussion in 'General Health & Wellness' started by mezombie, Sep 14, 2009.

  1. mezombie

    mezombie Member

    September 14th marks the start of National Invisible Chronic Illness Awareness Week. One group is offering a "conference" chock full of seminars about living with illnesses such as ours, all available from the comfort of your home by computer!

    Seminars will be offered Monday through Friday, September 14 through 18.

    I've posted an article from the site below. It's worthwhile going to the site itself as there are many helpful articles and resources there beyond the conference.



    Chronically Ill Are Perfect Audience for Virtual Conference, September 14-18

    Hard beds, traveling expenses, long walks to conference rooms, peers going overboard on the perfume, and extreme fatigue are predictably part of your average conference. For the chronically ill, however, these inconveniences oftentimes make attending an actual conference impossible. National Invisible Chronic Illness Awareness Week celebrates its seventh year, and with the power of social networking, 009’s “virtual” conference September 14-18, 2009 is sure to be a success.

    “I can only leave the house once a week, twice if I am really lucky, so a weeklong conference is normally impossible for me,” says Juliann Krute who lives with Ehlers-Danlos Syndrome and many other illnesses. “Having a conference that I can attend—even if I am in too much pain to get out of bed—is fantastic!”

    The conference will feature twenty live seminars via Blog Talk Radio that anyone around the globe can listen to LIVE or archived. The 2008 workshops have had over 12,000 listeners and are also available on iTunes.

    Topics for 2009’s conference include:
    • Applying and Winning Disability Assistance When You Are Chronically Ill
    • Managing College with a Chronic Illness
    • Find the Job You Desire and Can Do
    • It’s OK to say NO: Building Healthy Boundaries
    • Coping with Chronic Illness in Your Marriage

    Guest speakers are some of the top chronic illness advocates online today including Jenni Prokopy of; Rosalind Joffe of; Maureen Pratt, author of Peace in the Storm, and Christine Miserandino of They are joined by.Kelly Rouba, former Ms. Wheelchair NJ 2007, and best-selling authors on marriage, Bill and Pam Farrel.

    Invisible Illness Week was founded by and is sponsored by Rest Ministries, the largest Christian organization that serves the chronically ill.

    Lisa Copen, 40, founder of Rest Ministries and creator behind National Invisible Chronic Illness Awareness Week says, “Regardless of where one’s spiritual ties are, there is an fundamental human desire to feel understood, to feel like those you love have some idea about what you are going through.” Copen, who is explored this in her book Why Can’t I Make People Understand: Discovering the Validation Those With Chronic Illness Seek and Why says, “One of the most difficult adjustments to illness is that you feel life is passing you by and no one around you even realizes it. We hope through our conference we can provide a place where people find the true source of being validated in their pain, how to live joyfully despite their illness, and of course, we want to increase awareness about how many suffer silently. Like our theme says, ‘A Little Help Gives a Lot of Hope.’ It really does.”

    For more details about the free conference and other resources visit

  2. TwoCatDoctors

    TwoCatDoctors New Member

    I attend a local disabled support group and I'm in contact with our leader to see if at our Friday meeting (hopefully I can go--I had eye surgery on Monday and today everything is good so hopefully that will continue) we could conference in with this. Thank you.
  3. mezombie

    mezombie Member

    That sounds like a great idea! I hope it works out.

    Remember that the conference will be archived and available at later dates (phew!).

    Truthfully, I haven't been able to take advantage of all this site has to offer, but at least I know how to find it.

    Best wishes for recovery from your eye surgery! It's not like we need anything else on top of the chronic problems...