from Yorkshire, but living in Scotland. Saying hello!

Discussion in 'Fibromyalgia Main Forum' started by Val, Nov 10, 2002.

  1. Val

    Val New Member

    Hi to one and all.
    My name is Val and I have just found your site.
    A quick rundown on me: I am from Yorkshire England but have lived in Scotland (about fifteen minutes from Loch Lomond)
    for over twenty years. I have had to give up my work which I really enjoyed, because of FMS/CFS Teitzes Syndrome
    and a painful pre-cancerous oesophagus.
    I hope I can make new friends here and perhaps share information about FMS etc. The more we can find out about this D.D. the more we may understand and help ourselves through the difficult and painful days (and nights).
    We all need friends and often because our life style has to change, we often find the friends we had, just seem to disappear. It seems on here there are so many welcoming folk, so a big HI to you all. I hope I will be able to add my experiences to everyone elses and help give a little support where it is needed.
    May you all have as pain free a day as possible.I look forward to meeting you.
    {{{{{{{{Hugs to all}}}}}}}} ....Val.
  2. Val

    Val New Member

    Hi to one and all.
    My name is Val and I have just found your site.
    A quick rundown on me: I am from Yorkshire England but have lived in Scotland (about fifteen minutes from Loch Lomond)
    for over twenty years. I have had to give up my work which I really enjoyed, because of FMS/CFS Teitzes Syndrome
    and a painful pre-cancerous oesophagus.
    I hope I can make new friends here and perhaps share information about FMS etc. The more we can find out about this D.D. the more we may understand and help ourselves through the difficult and painful days (and nights).
    We all need friends and often because our life style has to change, we often find the friends we had, just seem to disappear. It seems on here there are so many welcoming folk, so a big HI to you all. I hope I will be able to add my experiences to everyone elses and help give a little support where it is needed.
    May you all have as pain free a day as possible.I look forward to meeting you.
    {{{{{{{{Hugs to all}}}}}}}} ....Val.
  3. monom

    monom Member

    How far are you from glasco? I have couple friends out there.

    What are your major symptoms,what do you think, has caused it.

    Thank you

    Monom
  4. Roxi

    Roxi New Member

    Boy am I jealous! Scotland is the one place in the world I would love to visit!
    I am Scots/Irish heritage and go weak in the knees for pipes and drums! Of course it could be the FM! My boyfriend's mother was born in Fraserburgh on the North Sea.
    My mother is a Brown and we've been able to trace back to 1765. I think of how his parents lived through "the 45". And here we are living through the pain! We wouldn't have made it very far in the old days, huh?! Sorry about the esophagus. Hope you get good treatment for that. I live in western Michigan. Here in the States doctors don't acknowledge Myalgic Encephalitis like they do in the British Isles. I really think ME is the correct diagnosis and that involvement of the brain is what affects the muscles. I am really bothered by the "cognitive problems" like not being able to think of the right word. I have muscle pain 24/7 that no pain med can touch, and I hate the stiffness I get after just minutes of rest. Haven't been able to work. It's a struggle enough to run the household. Nice to meet you! Write me anytime! Feel as good as you can! Roxi
  5. sybil

    sybil New Member

    i live in cheshire in the u.k.
    i have a friend who is a doctor in glasgow.i love scotland,my dads family originate from stirling.
    nice to meet you,

    sybilxxx
  6. Pat UK

    Pat UK New Member

    and welcome, I am from Kent and suffer from ME, this is a good site I have learnt a lot and have been comforted when I have felt down. I hope you will too.
    love
    Pat.
  7. Val

    Val New Member

    Hi there, I am about 45 minutes away from Glasgow. Not too far when I want to visit but far enough away to be able to enjoy the local Lochs and mountains.
    My symptoms of FMS. are the same as I have seen many people list on forums. I had to give up work four years ago because of agonizing pain in my lower back.Pain, numbness and pins and needles in arms and legs which also tracks up the side of my head. I get a protein rash on my arms and legs sometimes that itches like blazes!And of course there is the Fibrofog.Forgetting what I am talking about, and saying the wrong word for something. I look at something, I can think what it is not called but not what it is called.
    Does that make sense to anyone (or should I leave now? hehe.)
    Twice this month I have fallen,and did I bruise! going off to the side, caused by what I call my 'leg stutter'. Most times I just stumble but my stick (cane) saves me from making contact with the ground, when I am outside.
    I have sleep depravation too. Some days I manage out, others I am unable to get out of bed because of the pain.
    I expect you have heard all this a hundred times before, you ask what I think caused it? I don't know. Maybe I overworked my body, working long hours. Maybe a fall I
    had, or the stress leading up to my divorce, and my mum passing away. I really don't know, and I don't think the Specialists know either.But I know I have it!! and I will hopefully get control over it and understand it so I can make the best of the 'not as bad days' for myself and the people around me.
    I hope you have as pain free a day as possible...Val.
  8. sybil

    sybil New Member

    i fell this morning in the kitchen!
    like you,i now use a walking stick when i'm outdoors,my balance is very bad.
    i have FMS/CFS and i'm starting to wonder if i have MS...i have far too many symptoms that point to MS.
    what sort of tests have you had Val?
    i am trying to get my G.P. to refer me to a neurologist for the balance problems,all i have had so far is blood tests that haven't revealed anything,which is quite common.
    today i have laso had a very painful stabbing pain in my right eye,my eyes are very sore normally,but this is new to me!
    i think our DD's have a biological cause,there just isn't enough research done at the moment,

    sybilxxx
  9. Val

    Val New Member

    Glad to meet you, sorry you have M.E. Maybe someday you will manage a visit to Scotland. You sound to have quite a family history over here.I hope if you do come everyone will make you welcome and you will enjoy meeting the people and seeing the lovely countryside.
    You have difficulty remembering words and speaking sense,
    Then we will get on real fine!!!!!! Sometimes it sounds as if we have a language of our own, problem is we don't know what we have said either!!!lol.
    Do you find using the keyboard difficult? I think mine has a life of its own and it teases me, moving the keys around!!
    Sorry its hard for you to do the household chores. I have tried to make a list of things to do, priority wise and depending on how much 'umph' it takes. Somedays it gets left
    but there is always tomorrow, and I have a god partner who helps out, do you?
    Take care, ...Val.
  10. Val

    Val New Member

    Sorry, I meant 'Good partner' not God partner! That's
    FMS for you!!
  11. Val

    Val New Member

    Ouch! You poor thing, did you hurt yourself? (silly question)
    even your pride would be hurt!
    A stick certainly helps outside. Mine must have stopped me flying into shop displays countless times.
    Tests? stayed in hospital two weeks while they assessed me.
    When they decided I hadn't M.S. I was sent home with pain killers. End of story. Then I had M.R.I. scans, nothing showing. Xray showed degeneration of some lower vertebra
    but the Doctor said that shouldn't give me all the pain I had. I now go to the pain clinic at Gartnavel hospital in Glasgow. They tried injections into the spinal column four times over a year but that caused more pain.I discovered I had the symptoms of FMS when I got a 'puter and started looking for answers on the web. I am on a long list of Meds now and today I got painkiller patches for the first time to try.
    What's your story Sybil. How long was it before you were diagnosed?
    Have as pain free a day as possible (and no more falling!)
    Take care...Val.
  12. Val

    Val New Member

    Thank you for your warm welcome. Yes, this looks like a great site with a lot of nice people out there.
    How is your M.E. today? Hope this {{{{HUG}}}} will help the day along.
    What is your backup like in Kent. Do you have a good G.P?
    I see from your profile you were a carer for Adults with disabilities. How you must miss your work.
    I worked mainly with children with special needs. I miss my job everyday, even if it did used to be stressfull at times!! Take care...Val.
  13. genevieve

    genevieve New Member

    to the site, it is excellent, lots of good info and friendly.

    My husband and I both have CFS, we live in Scotland too, the Borders, very beautiful.

    Sorry to hear about your eosophagous, I think you might find Dr D'Adamo says something about that in his books on eating the correct foods for your blood type, (eating the wrong foods predisposes us to certain illnesses) if you are interested you can print in "Dr D'Adamo" into a search engine you will find his website.

    Take care and hope you find things her to help you,

    Genevieve

  14. sybil

    sybil New Member

    Val,you have had a lot of tests!!

    ohh i have got used to landing on my bum,it does hurt,especially my pride when i fall outside!!

    i was dx'd with osteoarthritis in my spine in 1994,so i had a fair amount of back pain on a regular basis.
    but last year i started having problems sleeping,kept feeling like i had flu,but it never developed into anything.i was falling asleep in front of my computer at work,i was so exhausted.then in may i was putting some papers in order at work and i got this terrible pain in my hands,arms and back.i had the following day off sick and i haven't been back to work since!
    my symptoms have got worse,my g.p. kept signing me off sick and only did blood tests and gave me vioxx and prednisilones.i pay to a complimentary health scheme with work,they pay for consultants appointments.so i saw a rheumatologist at guys hospital in london,that was in july,he dx's fms and a few weeks ago i spoke to him on the phone,he now reckons i have CFS...long distance dx,hehehe!

    my g.p. is crap,my rhemy is ditto,he even billed the heathcare scheme for expensive tests he never did for me.at the moment i am waiting to see my G.P. on wednesday,he only works 2 days a week,as i want him to refer me to a neurologist,as my balance is making me scared to leave the house.i'm sick of the attitude the medical community have towards us.i want to go back to work.if i don't go back soon,i will lose my job.but it seems they would rather i lost my job and claimed benefits for the rest of my life,rather than pay to treat me.i live in a rural community in a small village,it can get quite lonely.i would change g.p's if i could,but all the doctors lists here are full.

    but i'm not giving up,i believe our DD's have an organic basis aaand someday there will be a treatment that works,

    sybilxxx
  15. Val

    Val New Member

    Thank you for your welcome. Nice to say Hi to you in the Borders. We have rain and wind here in Argyll tonight. Brrr,
    glad I am warm indoors.
    I got my oesophagus problem when I had Barretts Oesophagitus eight years ago. I was put on Losec daily afterwards but it wasn't till I saw the 'Good Morning' Doctor on the T.V. show talking about it , that I realized Barretts left you with this Pre-cancerous problem. I went to see my G.P. who had treated me for FMS. etc. but he didn't realise the hospital had never told me I had this problem. I now have endoscopy tests every 12 months to keep an eye on it!
    I am careful in what I eat and never eat anything with M.S.G. in. or strong herbs or spices.
    Keep warm...Val.
  16. Val

    Val New Member

    You said you had an awful pain in your eye today, a stabbing pain.
    Hope it has cleared a lot and you now feel more comfortable.
    Have you found anything helps to ease it?
    Just read your post about your fight with the medical team.
    Sorry your G.P. isn't very helpful. I had a good working relationship with my G.P. so it has continued now I no longer work.
    My Daughter has a very stressful part time job and has had to give up her college course (higher) because of stress. Her Doctors at her surgery have really disgusted me with their attitude.It really is the luck of the draw, who you get to look after you.
    Take care...Val.
    [This Message was Edited on 11/11/2002]
  17. sybil

    sybil New Member

    but my eyes are usually sore,but the stabbing pain comes and goes. could take painkillers,but i save them for night times.i usually wake up 3 times during the night and have to take painkillers and i'm only allowed 6 in 24 hours.
    i take valerian root before going to bed and cannabis in yoghurt,when i have some,hehehe!
    what do you take for sleep Val?

    sybilxxx
  18. Val

    Val New Member

    are difficult times. Pain stops me from sleeping. Take meds but then my body just won't sleep even though I am exhausted.
    I like your treatment, not always easy to obtain yoghurts though!!!!hehehe.
    My Doctor prescribed me pain killer patches today.Will start them tomorrow. Because of my other meds I am expecting a rough ride for a day or two till I can reduce the Zydol slowly. Have to cut down on oral meds, doing my insides no favours.
    Am taking Calendula herb for painful oesophagus.
    Must close, great chatting with you, will do again.
    G'night...Val.X
  19. sybil

    sybil New Member

    i usually sleep for 2/3 hours,then pain wakes me up.
    my 'yoghurt' supply has dried up for now,the person who supplies me is moving house! but it does help a lot.
    do you have problems swallowing? i get problems occasionally,when everything i swallow,including water,feels like a brick going down!
    good luck with your patches! hope you get some relief!

    sybilxxx
  20. genevieve

    genevieve New Member

    Hi again Val,

    I checked up in the Dr D'DAdamo books and it is Barrets eosophagus that can then lead to cancer of the eosophagus that he talks about plus how people with this have problems with acid reflux etc and can have Helcibacter pylori gut infections as a cofctor in all this etc etc.

    I'm sorry I did not mean to imply you did not eat a good diet, D'Adamos thing is that you have to eat a good diet that is correct for your blood type as different blood types have evolved to function best on different foods and if you do not adhere to these you are more prone to certain illnesses, this is a well documented fact in conventional medicine.

    My husband has been helped by changing to the correct blood type diet, though he ate a very good diet before but not correct for his blood type, not cured of CFS but helping with some problems.

    Anyway good luck and keep cosy!

    Genevieve