frustrated newbie......mistreated???

Discussion in 'Fibromyalgia Main Forum' started by b5cents, Jul 18, 2003.

  1. b5cents

    b5cents New Member

    i was recently diagnosed with osteoarthritus and fibromyalgia. The Dr. told me that the only thing that can be done is to prevent it from getting worse.He took xrays and told me to take vitamins and come back in a month. THis does no seem right to me, nothing for pain, no info on working( 5 hrs puts me barely walking with a cane for 24 to 36 hrs),there must be more than this. Please let me know.
  2. stillfighting

    stillfighting New Member

    You may want to check out the doctor referrals on this web site. Also, check with the Arthritis Foundation for a rheumatologist who can help you out. Most will start you out on low dose antidepressants to help with sleep and pain, but you need someone who will work with you, not just send you on your way.

    One thing you might want to do is look at the NIH/NIAMS (National Institutes of Health/National Institute for Arthritis, Muscular and Skin Diseases?) web site and check out who is doing research for them, since they know what is going on with fibro. Believe me, not all rheumys do! I was able to locate someone in the DC area who actually takes my health insurance--big bonus. There are active research programs at various locations around the country.

    Hang in there, hon. Don't let one doctor's lack of information box you in!

    Hilary
  3. elaine_p

    elaine_p New Member

    it's usually up to us to research and then give the info to our doctors, though maybe you can find a fibro specialist in your area.

    One book that is good is "From Fatigued to Fantastic" by Jacob Teitelbaum, MD. Dr. Devin Starlanyl has also written a couple, but I don't know the names (I have CFS, not fibro). I think her latest book is the one most talked about for treatment. Her first is best for learning how to live with it, explain it to others, etc. Maybe someone will share their opinions with you.

    You can also do a search on former posts by typing "book" in the Search Messages box above.

    Good nutrition is a must for us and many of us need digestive enzymes, so his recommending vitamins may not be totally out in left field, though somewhat lame in my opinion. As far as pain goes, if your doctor continues to refuse to give you pain meds, ask for a referral (if a referall is needed) to a pain management doctor/clinic.

    Good luck.
  4. dolsgirl

    dolsgirl New Member

    Your doc obviously doesn't know or care to look up how they might be able to assist you. Unfortunately, we do have to find what works for us the best. Try to find a provider that knows & cares about how you feel. Good luck. You'll become an expert. dolsgirl
  5. kmelodyg

    kmelodyg New Member

    I definatly do not agree with your doc's treatment. If you have been officially diagnosed, then that means that the do does beilieve that you are in pain. You need to call them, ask to speak with him or his nurse, and demand to be given a prescription for a pain med. If they refuse, tell them that you will be looking for a new doctor. You should not have to suffer. And what your doc is doing is considered to be malpractice. Speak up for yourself! Becasue if you don't, no one else will! Let us know how it goes!!

    Lots of Luck and Love,
    Kathryn
  6. toots2

    toots2 New Member

    Please read "Fibromyalgia and Chronic Myofascial Pain Syndrome" by Dr. Devin Starylyn as soon as you can so you will know everything needed to deal with your condition. I bought this book years ago but still use it now. You have no idea how many symptoms can appear from fibromyalgia. You will also learn more about how to deal with drs. and which ones to see. I see a pain specialist for pain as I find most rheumy's do not like to prescribe pain medication. I also take an antidepressant for pain and trazadone (which is great and non-addictingi) for sleep. Hope this helps you some. Take care. Toots
  7. shar03

    shar03 New Member

    I'm sorry yo had to encounter this doctor and beleive me there are a lot of them out there ignorant to this disease.
    Like suggested before, find a rheumy that also knows about fibro so you can get the help you need.
    Welcome!
    shar

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