Frustrations on the lack of research, media etc on CFS/FM

Discussion in 'Fibromyalgia Main Forum' started by shanwill, Apr 5, 2006.

  1. shanwill

    shanwill Member

    i don't know about you but i am really frustrated with how little is being done on these darn diseases.

    one of my new 'hobbies' now since being so exhausted all the time is to watch TV. i can't count how many shows, commercials, campaigns i've seen on MS, cancer, diabetes etc and have seen NOTHING on my own illness. this blows my mind really. look at all the people suffering on this board from all over the world - and it feels like we're kinda locked away quietly waiting for some specialist to have a break through. but there seems to be so little awareness in the general public that this illness even exisits let alone gets research grants or charity drives.

    i'm tired of trying to get better on my own to no avail. i'm tired of not having any medical support on this DD. i'm tired of living a quarter of the life i used to with such heavy limitations placed upon me. i'm tired of being told to think positively, and health will come. i was a positive person with great things ahead when i got ill. not depressed or lazy, so how does that make sense?

    sorry, bit of a rant there. but basically, how the heck can we get some recognition on this disease instead of sitting silently in the back ground. or worse yet being, dismissed as having a legitmate physical illness, but instead being all in ones head.

    this is 2006 - how long have these illnesses been around for now? something has to change!
  2. jenn5

    jenn5 New Member

    the cfids association is doing a media campaign this summer! Yes, it is about time. There were a few posts about it a few days ago, or you can go to cfids.org, I think. Happy news!

    Jenn
  3. sues1

    sues1 New Member

    Write to news media or email them and look for opportunities to get ours in the news or on talk shows..