Full Page CFS Ads from CDC in Ladies' Home Journal

Discussion in 'Fibromyalgia Main Forum' started by phoenixrising2, Jun 7, 2006.

  1. phoenixrising2

    phoenixrising2 New Member

    Better Homes and Gardens. This is the July magazines that I just received.

    Better Homes & Gardens is on page 225.

    Ladies' Home Journal is on page 125.

    The CDC cancelled the public awareness campaign that was supposed to start today. The following is what Rich Carson had to say about it in an e-mail I got today from Prohealth:

    The highly-anticipated national June 7 press launch of the CDC's $4 million Chronic Fatigue Syndrome awareness campaign has been temporarily postponed. Inside word is that there are some significant new findings that the CDC would like to introduce at the launch, but they need more time to finalize the report. I view this as very good news and I am expecting something big. As usual, you will find it in your weekly newsletter or at ImmuneSupport.com

    Hugs,

    Phoenix

  2. bioman85

    bioman85 New Member

    I just heard that the CDC found chronic fatigue is just a severe case of depression - this is probably why the campaign was delayed.


    Just kidding - it's probably because of the new study that was just released about the Cryptovirus. :) Hopefully something good!
  3. phoenixrising2

    phoenixrising2 New Member

    I wouldn't be surprised if they said that, the way they have treated it in the past. Hopefully it will be good news, though.

    By the way, this "depression" sure does make me sick and hurt awfully bad! LOL
  4. findmind

    findmind New Member

    thanks for the info, phoenix!

    bioman and lamotta, you two are really mixing it up, huh? Very funny.

    I doubt very much if CDC cares about cryptovirus PIV-5. Unless they are embarassed becuz they were going to push exercise and CBT and these new findings made that look foolish.

    Will be interesting, I can't wait to see what they say about CFS now...

    findmind
  5. woofmom

    woofmom New Member

    Maybe they're going to prove aspartame, anthrax vaccinations and tamiflu causes it and the CDC is scared Donald Rumsfeld will invade their headquarters and kill everybody there.
  6. phoenixrising2

    phoenixrising2 New Member

    What if they found out it's because we didn't floss daily or change our underwear! LOL

    I've enjoyed the responses. You guys are funny.
  7. findmind

    findmind New Member

    You didn't say what the ads portrayed?

    Or did I "miss" that?

    Huhhhh?

    Woofman, you are hilarious!

    findmind
  8. phoenixrising2

    phoenixrising2 New Member

    The ads show a very tired or sick woman at a bathroom sink and she looks like she has just given up. Her reflection is seen in the mirror. The ad says:

    My MEMORY is shot
    My legs feel like LEAD
    EVERY MUSCLE in my body is SCREAMING

    So Why Do People Think the Problem's All In My Head?

    At the bottom of the page it says:

    Chronic fatigue syndrome (CFS) can be as isolating as it is debilitating-especially when those around you don't understand what you're going through. But you're not alone. More than four miillion Americans suffer from CFS, and the majority don't know they have it, If you've experienced extreme exhaustion for six months or longer, coupled with difficulty sleeping and concentrating, body pain and flu-like symptoms, you could have chronic fatigue syndrome. Log on to www.cdc.gov/cfs for the latest research and guidance on CFS diagnosis and treatment. Your life is waiting for you, and so is the support you need.

    At the bottom it has the CDC logo and GET INFORMED. GET DIAGNOSED. GET HELP. www.cds.gov/cfs

    Underneath that, in little letters, it says PAID FOR BY THE U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES, CENTERS FOR DISEASE CONTROL AND PREVENTION

    I looked on the CDC site a little bit and was actually impressed by some of the stuff they have about CFS on there. I'll look some more later when I'm not so tired.

    Phoenix
  9. Jeanne-in-Canada

    Jeanne-in-Canada New Member

    thanks so much Phoenix for bringing it to our attn.

    That has to be the most validating thing the CDC has ever said about this illness. I din't even know they had it in them.


    Jeanne
  10. TXFMmom

    TXFMmom New Member

    They were replicating the original study in the 1,000 patients, in Georgia, I believe.

    The entire study may not be completed, but if they once again located and identified the genetic defects at the same level, on the same genes, and in the same number (5), that could be in.

    DNA and genetic testing can take a long time, but they are just testing for a particular gene threat, so that should not be as involved.

    If they have duplicated the findings, or even identified something more sinister, then that could be why they are withholding the program.
  11. renjanson

    renjanson New Member

    Thanks so much for keeping us updated.

    I was really looking forward to June 7 for the kickoff.

    Do you have any idea what the CDC wants to publish?

    I tried to go on the website www.cds.gov/cfs but it would not come up.

    I think it is www.cdc.gov/cfs

    Thanks again for taking time to post the information.

  12. bioman85

    bioman85 New Member

    Where did you see the ad? I thought they were not releasing any ads yet.
  13. phoenixrising2

    phoenixrising2 New Member

    You are very welcome. I'm just glad I saw it and could pass it on to everyone.

    Rejanson: I was looking forward to the June 7 launch, too. I don't know what they want to publish, but I hope they hurry and it's something really big. You can go to http://www.cdc.gov/cfs/awareness.htm and go from there to reach the other info.

    bioman: The ads are in the July issue of Ladie's Home Journal and Better Homes and Gardens. You can look at my initial post for the page no's.

    skeesix: I wondered about the 4 million part, too. They're finally admitting how many of us there are. I don't think they can ignore that many of us.

    WakeMeUp: I agree. If they hadn't spent the money designated for CFS on other things, we would know a lot more by now. We get so little for research, anyway. I don't think they will ever admit it, though. I still don't fully trust the CDC. I wonder why? :eek:)

    Phoenix
  14. Dolphin_lover

    Dolphin_lover New Member

    Phoenixrising2. I am quite interested in this awarness campaign. You know, the who, what, and where info. It will be interesting to see who they target for this campaign.

    Thanx again
    Dolphin
  15. phoenixrising2

    phoenixrising2 New Member

    I'm interested in seeing how this plays out, too. Hopefully, through all this, more researchers will be interested in CFS and the funding will be there to help them find the cause and the cure (or at least find out enough to allow us to live a better, less painful life).

    Phoenix



  16. findmind

    findmind New Member

    Someone questioned the 4 million with CFS statement in the CDC ad....

    Notice it said "and most of them don't even know they have it"?

    Because most are not diagnosed properly, or misdiagnosed as "just depression", no doubt.

    Or, many are huddled in their homes with absolutely no health care whatsoever..(45 million without insurance, remember?). Many homeless may have CFS and/or FM and be "self-medicating" with drugs or alcohol.

    The ramifications of WHAT the CDC will be telling people to DO about the illness will be long lasting and lead to either corrective treatments or more mismanagement by the health care system.

    I try to be careful what I wish for...I agree with WakeMeUp: the CDC is not the most trustworthy agency to be sure; that said, however, ProHealth's Rich Carson is part of the new campaign, and that gives it "the benefit of the doubt" for me, right now.

    There's always hope!
    findmind
  17. phoenixrising2

    phoenixrising2 New Member

    There's no telling how many of us have it and all this time they hoped we would just go away (or be too sick to fight). They didn't know your name, did they? :eek:)

    I believe there are so many of us that are undiagnosed and just too sick to fight. I know how I feel. Some days I can barely lift my head off the pillow. Imagine feeling that bad, not knowing what you have, not having any family support and being told it's all in your head. I don't think I would still be alive if I were in that position. I have had some really serious infections. Shoot, I may have committed suicide.

    I'm fortunate enough to have a husband and two daughters that have stood by me. They still don't understand the disease (who does?) or just how bad I feel, but they believe ME. They know I'm sick. The going's not always easy, heck - sometimes it's awful, but I do have my family, a roof over my head, plenty to eat and insurance. What would I do if I didn't have that? I don't know. I don't want to know.

    I have been treated really crappy by some doctors in this town. Some still think it's all in my head. Don't they ever read the medical literature?

    I've taken everything on CFS that I can to my local dr. and she has been willing to read it. I don't think she realizes how serious it is because I'm also treated by a CFIDS specialist in another town. But she does want to learn about it. Thank goodness for her.

    Anyway, I guess I'm trying to say even though I have this stupid disease, and it IS a disease, I have so much more than a lot of others do and I am very grateful for it.

    I just wish everyone that has this DD could get the help they need and hopefully, many will before too long. But like I said, I am still leery of the CDC. Maybe this time they will come through for us. Here's hoping.

    Hugs,

    Phoenix
  18. pamj

    pamj New Member

    I was going to post it, but I did a search first & found yours. I didn't realize that they are postponing the rest of the campaign. Please let us know if you hear anything else about the reason why.

    thanks for keeping us up-to-date!!

    take care,
    Pam
  19. Kay31

    Kay31 Member

    Why oh why did they put it WAY in the back of the magazine. Come on, I thought that was pretty insignificant placement.
  20. julieisfree05

    julieisfree05 New Member

    Rummy wouldn't have the 'nads to invade the CDC...he'd send troops! LOL!

    - julie (is free!)

    There are things we know
    things we don't know
    and things we don't know we don't know..

    - Donald Rumsfield