Question---I'm pretty much in agony. My FMS has turned into somekind of degenerative neuro MS type condition/probably neuro Lyme. I've been homebound now for 3 solid months (was working before). With onset of optic neuritis/vision loss 3.5 years ago I got increasing neuro symptoms-intesnse brain fog, jerking, twitching, eye pain both eyes, headaches,foot drag. Fibro symptoms shifted to more neurological . So far MS tests/MRI's have been clean. I had a neuro/big worsening of symptoms on a herbal lyme protcol where I had an explosion of intense new symptoms 2 years ago that lasted 4 months and did not recover back to baseline. I continued to progess downhill in 2009 -tried diflucan/flagyl fungal protcol in late november and hell broke loose. I went from bad brain fog, poor sleep, feeling not strong, some foot scuffing and some jerking to now in agony 7X24. Neck is so weak/difficult to hold head, head jerks, intense dizzy sick feeling in brain,entire body weak and shaky, both eyes hurt, body jerking and twitching all over, total insomnia, balance, gait. left side numb, sometimes right has numbness, nervous system in overdrive/shaky/can't come down, coordination, spatial awareness, brain fog, burning all over body, some night sweats. Every week for the past 3 months I get a new symptom as I continue the downward spiral. The average of 2 hrs/sleep per night is horrific and I know I can't turn this ship around until I get some sleep. Trazadone barely works nor does ambien. Saw Neurologist this week- he did not seemed all that concerned that I'm in agony, losing all function- I don't think he suspects MS because of all of my weird symptoms- he mentioned CFS!!! He doesn't know what to do with all my symptoms. I'm not the typcial MS scenario. I said CFS does not cause optic neuritis. I mentioned Lyme and of course you know how that went over. He mentioned a sleep study or seeing an endrin. I told him the condition is causing the sleep issue not the other way around. He prescribed Gabapentin to help with irritated nervous system and sleep. Does this help you sleep? Sorry I needed to unload a little bit. I'm in such agony, terrified about where my body is headed. I see one of the top lyme md's in early May(was long wait)-but am terrified my body can't handle the drugs and worried it will cause seizures( I feel close to seizures the way mybody jerks forward and night and the dizzy intense pressure on my eyes. And scared because taking a few drugs for a few weeks sent me inthis downward spiral. I'm also chemically sensitive and show phase II liver detox issues on the genomics liver test-particular issues with medication. So terrified, so sick, and so tired--this is my worse nightmare. There are some days I do not want to go on. My kids and family need me and I'm not there for them. I'd rather be up any kind of health condition than this/neurodegenerative one. oh to have my old fibro only symptoms back!!!This is so hard. I'm too young for this. I led the perfect lifestyle aside from work stress for past 12 years since fibro diagnosis. All organic, free range meats, no wheat, everytihng homemade from scratch. walked 3 miles every day--Thought I was building health and look where I'm at. This is unfair. Help!