GAP Syndrome the cause of CFS/FMS???

Discussion in 'Fibromyalgia and ME & Chronic Fatigue Syndrome' started by advancewithcourage, Apr 11, 2008.

  1. advancewithcourage

    advancewithcourage New Member

    Hello all!

    I just finished reading Natasha Campbell-McBride's (a UK neurologist) book Gut and Psycology Sydrome where she argued that CFIDS, FMS and many disorders are caused by gut pathology. The book was extremely well researched and informative. The amazing thing was that the dietary and lifestyle recommendations she made are almost exactly what I followed to recover from CFIDS. I highly recommend reading this book and checking out the info on the MINDD site.

    I am still feeling great over here and having no relapses. I highly recommend a combined program of stress reduction and the SCD diet for recovery. SCD starves intestinal pathogens of complex carbs and yet provides all the nutrition the body needs to heal. Lots of websites on the Specific Carbohydrate Diet on the web for those interested.

    I am going to be frank here, I am fully convinced in my mind that FMS/CFS are caused by intestinal dysbiosis (with or without digestive symptoms). Stress also plays a role because it exasterbates dysbiosis and causes more physiological stress - a vicious cycle. The above book makes a scientific case for this.

    I also had chronic active HHV-6 virus in my CFIDS days. This was a symptom of altered immunity that could not hold viruses in dormancy - not a cause.

    I used to worry incessantly about having a CFIDS relapse, not I never worry anymore because I am convinced I know what causes this disorder and how to initiate recovery.

    I often think of the many folks here and I pray that you will research these things and find freedom for yourselves as well.



    Waynesrhythm likes this.
  2. Waynesrhythm

    Waynesrhythm Member

    Remarkable post!

    Thanks Advancewithcourage for posting on your success, and congratulations on regaining your health. I realize you may not visit here anymore, but if not, your story is at least getting bumped up for others to see. It's hard to believe this remarkable post didn't get a single reply.

    I was visiting here regularly in 2008 but somehow unfortunately missed it. I'm now looking closely at the SCD diet, which is how I found your old but remarkable success story. I anticipate beginning to gradually change my diet over to SCD, and see how it goes.
  3. Waynesrhythm

    Waynesrhythm Member

    Here's a very interesting review/testimonial on addressing gut issues:

    Gut and Psychology Syndrome: Natural Treatment for Autism, Dyspraxia, A.D.D., Dyslexia, A.D.H.D., Depression, Schizophrenia [Paperback]

    Most Helpful Customer Reviews
    760 of 771 people found the following review helpful

    5.0 out of 5 stars Healing my CFS/adrenal fatigue January 27, 2012
    By AndreaP.
    Format:Paperback|Amazon Verified Purchase
    WOW. This book is outstanding. Others have reviewed the book's content, and they do it far better than I could. So, instead, I'll attest to the healing power of this diet.

    Over a year and a half ago, I became sick. Super sick. So sick I was unable to get out of bed. I eventually realized my adrenal glands were shot. So I quit my job and school and took time off, expecting to recuperate within a few months. Ha.

    I researched and researched, pouring over everything I could read online. I had a Candida infection (resulting from allopathic drugs) that never went away. I'd literally feel poisoned, especially after eating. My immune system was a mess. I had zero energy. I suffered severe chemical and mold sensitivities and began to develop hives. I started developing arthritis in my knees and fingers. Some days it was so bad it prevented me from knitting/crocheting, two of my favorite pasttimes. I experienced constant congestion and back-to-back sinus infections. My body was in terrible shape. I'm not a dramatic person by nature, but I assure you, some days I wasn't sure how much sicker one could get before the body just gave up altogether. I kept getting weaker and more exhausted by the day. For months, I didn't leave the house. For the record, I'm 32 years old. (Mind-blowing, isn't it?) After several months of research and trial and error, I discovered the adrenal issues were a symptom of a much larger problem - severe leaky gut and gut dysbiosis.

    If the preceding paragraph sounds like hyperbole to you, I can't say I blame you. Before my experience, I'd have been skeptical too. I had been preparing to study biochemistry in grad school. Before I became ill, I thought chronic illnesses and autoimmune diseases could merely be 'managed.' In blind faith, I had accepted what the medical establishment tells us. That was fine, until the medical establishment failed me...repeatedly. I gave up on allopathic medicine and knew it would be my responsibility to heal myself. As much as this illness has consumed me, it really was a true wake-up call. A blessing in disguise.

    So I researched. Boy, did I research. I took vitamin/mineral supplements. I got my detox pathways up and running again, as per Dr. Myhill's methylation protocol. I followed her advice for supporting mitochondrial health. I started eating meat. I had been a vegetarian for 16 years, but I was so sick I had no difficulty adjusting to eating meat again. In fact, I craved it. Things improved slightly, but my quality of life was still abysmal.

    Finally, a few months ago I happened upon some website extolling the GAPS diet. I looked into it but figured I was already eating a clean (mostly) paleo diet, so I didn't need to buy this book. I didn't think it was that different from what I was already doing. When I had to stay home on Christmas day because I felt so toxic and crummy, I decided to purchase the book.

    So, sure I had already eliminated processed foods and gluten. But I still ate cheese everyday. I still ate sweet potatoes and oats. I still ate a lot of fiber. This book showed me the error of my ways. These things are fine for a healthy gut. But my gut was a complete wreck and needed special help. More importantly, this book showed me what I WASN'T eating that I needed to be eating: lots of bone broth and marrow, organ meats, and lots of ferments, amongst other things.

    I started following the GAPS diet intro on January 1st of this year. The first two weeks were brutal. I had been toxic for so long that I was used to feeling lousy, but the die-off this diet produced was intense. In the book, she stresses the importance of managing die-off; but, because I was so toxic, there was really little I could do. The diet alone, even without the introduction of probiotics, sauerkraut, and kefir was enough to produce rapid die-off.

    Then early last week, it was like the fog broke. Gradually, I started having more energy. I announced to my shocked boyfriend that I wanted to go for a walk in the park like we used to do. We did. I suffered no repercussions from it, whereas before GAPS it would have taken me days to recover. I now go for a 30-45 minute walk nearly every day. I can't stress how utterly amazing this is. I prayed that GAPS would help me. It was my last resort. However, I never expected it to work this quickly. Truth be told, I'm still stunned.

    I'm nowhere near fully recovered. I've still got toxins circulating. I still feel die-off, but it is nowhere near what it once was. True, I take other supplements. However, since starting GAPS I have stopped taking the majority of my supplements, simply because I no longer need them. At long last, my diet is providing the nutrients my body has been needing all along for repair (particularly cholesterol and saturated fats, which are sadly demonized in our culture). I probably sound like a crazy person because I'm so, so excited about this book and this diet; but if you're sick like I was, you know all too well what it's like to live in a chronically ill body. I don't know what percentage of CFS is caused by gut dysbiosis, but I know that mine was. If yours is, this is, without a doubt, the diet to follow.

    Because I'm having such rapid success on the intro phase, I intend to stick with it for a few months. Some people fly through it in a matter of days before starting full GAPS. That's the nice thing about this diet; you move at your own pace and let your body be the guide.

    I'm also curious to see how this diet helps me with the mental health issues I've contended with since childhood (namely fits of debilitating anxiety, ocd, and depression that have become increasingly severe in the last few years). I had tried several SSRI's over the last ten years until a new doctor put me on Adderall (which is nothing more than a mixture of amphetamine salts and is very, very hard on the adrenals) after diagnosing me with ADHD. The SSRI's never worked. I'd be happy if GAPS prevents my anxiety from getting worse, but truly I'd love to see the anxiety eliminated permanently. At this point I have no expectations. After all, I've lived with the anxiety for 30 years. But if anything can help, I firmly believe it'll be this diet.

    This book saved me. Reading success stories of people recovering from CFS is what got me through the worst moments. I hope my story does the same, and I will update again in a few months as I progress along my GAPS journey. I wish you all the best of health.

    UPDATE 4/10/12: Spring has sprung here. I no longer seem to be affected by pollen, which in previous years gave me terrible allergies and sinus infections. In fact, I have not had a sinus infection in months. The arthritis symptoms are completely gone. I've lost 15 pounds and walk an hour or more just about daily in addition to my chores around the house. Also, for the last 3 months my monthly cycle has been just that (cyclical). In the 20 years I've been menstruating, I've NEVER once had a regular cycle. Now it's literally every 28-29 days. There has been no improvement on the mental stuff yet; in fact, the die-off seems to be temporarily making it much worse.
  4. Waynesrhythm

    Waynesrhythm Member

    Last Update from the above testimonial:

    Gut and Psychology Syndrome: Natural Treatment for Autism, Dyspraxia, A.D.D., Dyslexia, A.D.H.D., Depression, Schizophrenia [Paperback]

    Natasha Campbell-McBride (Author)

    4.7 out of 5 stars See all reviews (202 customer reviews)
    .............................................................................

    UPDATE 3/1/13: I've been on GAPS for over a year now, with no deviation. No cheating whatsoever. I can honestly say I don't miss any of the "normal" food that I used to eat. This stuff is just so nutrient-dense that I don't ever think of eating anything else. And I used to literally be addicted to sugar. So, that's pretty cool. As to my progress - physically, I'm not much stronger than I was six months ago. But I'm still light-years ahead of where I was two years ago. Still taking walks, doing chores, knitting, able to function like a human being. I'm experiencing new die-off symptoms (caused by breaking up biofilm in my gut with probiotics and systemic enzymes, I believe) like visual disturbances, rosacea and other rashes, adrenaline rushes, numbness/tingling/burning in my extremities. Apparently, these things are all typical for Candida overgrowth.

    I'm not surprised that I haven't experienced more physical improvement. My Candida infection was/is quite severe, and I've always anticipated that it would take several years to recover. Happily, though I am able to report a significant improvement in my mental well-being. My depressive episodes started to lift just a few months into GAPS, and now they are all but gone. My favorite improvement by far, however, has been with my anxiety and panic attacks. It took about a year, but they are about 85% gone, at this point. I can't tell you how wonderful it feels to have some relief from this torment for the first time in over ten years (most of my adult life).

    It should be obvious, but in case it's not, this protocol is not (nor does it claim to be) a quick-fix. I've had gut dysbiosis (and many, many rounds of antibiotics) since birth. It takes a long time to undo decades' worth of damage. The diet is only the base, although Dr. Natasha says that for many GAPS folks, the diet alone is enough. In my case, after the infection is gone, I will still need to detox, fix my adrenals completely, get my metabolic hormones back in order, and perhaps chelate. I have no delusions about how long this is going to take.

    Thanks to all of you who have commented or contacted me over the past year; it's been wonderful swapping stories and information. I'm very grateful to you all. Here's to continued healing! :)
  5. Waynesrhythm

    Waynesrhythm Member

  6. veras

    veras Member

  7. jumpshot

    jumpshot Member

    I feel great for U, I'm wondering what kinds of foods lettuce spinach beside kraut, I've been drinking KOMBU____ probiotic drink and it has helped my digestion a lot, I can't say by anymeans it's cured my CFIDS though. I avoid most gluten and eat a little cheese, NO milk cept goat milk, no sugar cept succanant in tea

    Makes me wonder, I'm not sure all CFIDS is from yeast i'v'e read crook's book, i' do know the gut is our 2nd immune system,

    tell me more aboutyour diet, please and i'm thankful for your progress
  8. jumpshot

    jumpshot Member

    thanks I watch the videos, it's a lot like the Garden of Life diet in one of jordin rubin's book, darn to quote a friend if I could do all of that , i'd be a well person, Meat, the meat in today's world is pounded w/ hormones and ABX, most of us don't have the $$ to buy organic meat. How can U heal w/ all those hormones and ABX's from the animals in U? Enemas, I did the gerson method and got down to l30 lbs. from coffee enemas and juicing and raw foods, I was weaker thank usual , enemas are controversial, I say to detox get your doc to prescribed the troches (you take them sublinqual) we are low in glut. anyway, the juicing is fine, I tried several times to jucie for three days fasting, never made I was starving to death nearly, the idiotic In TN who does the gerson method said why don't you try a 30 or 60 day fast? he out to be locked up and put out of business.
  9. TigerLilea

    TigerLilea Member

    I did the SCD diet at the advice of my Naturopathic doctor. For me, there was no herxing, or any improvements what-so-ever from my CFS symptoms. I did, however, discover that I was lactose intolerant, but that was it.
  10. jumpshot

    jumpshot Member

    hey tiger, what's the SCD diet?
  11. TigerLilea

    TigerLilea Member

    It's the "Specific Carbohydrate Diet". It was designed by a doctor over 50 years ago and then tweaked by Elaine Gottschall when her daughter was ill. If you google it you will find lots of info. A lot of people have been helped by using this diet, especially those who have Crohns, ulcerative colitis, IBS, and cystic fibrosis. It is definitely more work than eating a regular diet, but I certainly didn't starve while on it.
    Waynesrhythm likes this.
  12. jumpshot

    jumpshot Member

    thanks tigerlilea, I'm down in wildcat country (Kentucky Wildcats) basketball land thanks for info, both my docs recommended the food allergy rotation diet, after l0 yrs. of trying to stick to that , I said if I could do all of that I would not be ill , I would stay on it 2or 3 wks. then bings on pies cake anything good then my head would stop up ears itch allergy symptoms, i'm probably eating more or your GAp die cept, not lots of meat, cause I don't feel like cooking it and I am not a cook, so I eat lots of fresh salad, I love this spelt Rudi's tortillas they are gluten but most people that sens. to gluten can tolerate spelt I can, I take quercetin that helps along w/ KOMB____ I don't if I can say that drink but U probably know what it is , it really helped my gut and drink l4/ or l/2 cp w/ each meal, if I cheat, i'll drink more it's a good detox drink have it there in BC?????
  13. jumpshot

    jumpshot Member

    I got caught up in a rotation food allergy diet , that paul cheney md told me to DE focus on diet, I was losting weghtt cause I was afraind to eat anything, he kept referring to the deep brain injury meaning the HPA axis impairment, I dont' see how gut problems could cause this cause the researchers believe the intial virus or viruses cross the blood barrier up the neck an into the brain, I'm trying to eat kinda of a GAP cept not all that hormone/ abx fed meat, I eat meat but too sick to cook a bunch so I stick to salads baked yams not a thing wrong w/ yams organic w/ cinnabon almonds boy is that good and a spelt tortialla
  14. TigerLilea

    TigerLilea Member

    I haven't tried Kombucha but I do make Kefir from live grains. I'm having a pie and cake binge right now. My B-I-L showed up for Thanksgiving dinner last night with two pies and a cake and my S-I-L brought over a humungous cake also. There were eight of us, and two of them don't eat dessert, and I figure there was enough to easily feed at least 35 people. And that doesn't include the ice cream that B-I-L also brought. :D
  15. jumpshot

    jumpshot Member

    how does that effect U physically? it makes my allergies flair, but many time I can't resist also makes me hurt more all over, KEFIR oh yea
  16. TigerLilea

    TigerLilea Member

    I don't have any food allergies so it doesn't bother me.
  17. jumpshot

    jumpshot Member

    little hint, before U binge take some gluten cutting formulas of enzymes are around now help w/ digest dairy and gluten then rinse your sinuses out w/ some of the nei____med_____ sinus rinses, the after I wait a bout 30 mintutes and drink a lot of kom_____ probiotic drink, makes you belch and U feel much better,
    on the GAP diet, I eat organic yams w/ butter or eart____balance___ it's not margarine and they make one w/out soy, wal mar___ carries, the blanks are because I don't know what products I can say and can't that Russian is wrong about potatoes there is nothing wrong w/ s. potatoes or yams, and those/w/0 diabetes white potatoes loraiine day the raw food m.d. who has tapes, says nothing wrong w/ white pototaes
  18. jumpshot

    jumpshot Member

    and l more thing if U do binge on cakes/pies/junk take some activated charcoal caps, prohealth might carry these, my lst doc (paul cheneymd phd) put me on to those he didn't help me much but did teach me a lot about the deep brain injury as he called the impaired HPA axis, which is more than theory it's established research. And he helped me get my disability on lst try, I had a great job as a city administrator in a small town (have a masters in P.A.)
  19. Waynesrhythm

    Waynesrhythm Member

    Interesting Testimonial For The Following Book

    [​IMG]
    Hello Andrea, I just wanted to give you a glimpse of hope. I am you - but healed (I am 31 yrs old)! In addition to your symptoms I had developed an "incurable" autoimmune disease...I could not have any human contact, touch water, dust or metal without being covered in oozing blisters. I looked like a leper. To detox I went through chelation, used a infrared sauna faithfully for 2 months, jumped on a trampoline for lymph drainage, changed my diet per the book, ONLY use 100% whole food supplements, take probiotics (Garden of Life is awesome) and started doing zumba.

    Getting the heavy metal out of me and detoxing cured my autoimmune disease. I of course went "clean" everywhere with no chemicals in my house or personal products and educated myself how to avoid chemicals in my home (healthy cookware etc). My SEVERE anxiety and suicidal thoughts was cured through amino acid supplementation. I had a neurotransmitter urinalysis test (find a good naturopath), found out where I was deficient and now take 4 all natural amino acid supplements a day and am perfect...it took about two months, but it saved my life and marriage. I did all of this without the use of pharmaceutical drugs and will NEVER take them. I have 4 kids 7 yrs old and under and none have ever taken medicine. Good luck!!