GAVE SATAN ANOTHER CHANCE!!!! Warning!LONG!

Discussion in 'Fibromyalgia Main Forum' started by TiredbutWired, Oct 21, 2002.

  1. TiredbutWired

    TiredbutWired New Member

    This is a recap of my story;Today I think I met Satan.Some of you might remember my primary doctor telling me nothing was wrong with me and to take a high dose of antidepressants,to go off all my other meds and when I told him that I fainted he shrugged his shoulders and said uh huh!Well he did me a big favor because I found Dr.Kellers place searching for treatment.This is where it gets good:Two days later I got a letter from Dr.Lapp stating that I had positive Lyme antibodies.Then I started having syncopal episodes.They found I had just got mono in the last 4 to 6 weeks and my immune system showed that it was over active.Well then I fainted again and this time got a black eye and smashed my face up.Did not bother me but when I went to my doctor,he took one look at me and said I had to go to the ER.The insurance had to pay for it and he was concerned about the blow to my head.So I went to ER and they ran a lot of tests[all normal].They wanted to know why I did not go to my primary and I said because last time I fainted he did not care.The hospital sent all my records to my primary.They said he had a good reputation and would I give him another chance.Well the primary got my records and his office called me and said he wanted to see me immediately.So my husband and I went back to see him only to get some of these tests payed for by insurance.The primary was like a different person he was so kind and very nervous.We all played nice and he tryed to pretend like he did not remember me and all of this must have happened after I saw him.I said NO I fainted 2 days before I saw you last time.Bit my tongue about his misconduct and he ordered more test through the hospital and set up everything for me and made me a appointment for a neurologist.Now he wanted to see me in a week.Also I took pictures of my face and showed him.I thought finally sweet revenge,it was nice to see him with his tale between his legs.Well when I went back to him I went in by myself and he was very nice but did not seem to listen well.I had dropped 6 more pounds in a week and he said;you lost some weight that is great!I am 5'8 and weigh 134 pounds,I do not need to lose weight.He asked about my sleep and I said I still do not sleep more than 2 to 4 hours and he said thats okay you do not need more sleep than that.What?I said my throat hurt and he said well it does not hurt when you swallow,yes it does and he shrugged his shoulders and said eh!Never examed me and said I am sure your tests will come out all normal.I was trying to forgive him and hoped he had learned his lesson but I think this man is very dangerous.I told him my legs turn a bluish color when I stand still for a few minutes and he said eh,thats okay!Now I have strep throat that if he would have looked he might have seen.Then I went to the neurlogist today that he referred me to.Well I do not know what he told her but she acted like I was crazy and wanted to know if I had seen a physiologist.I left her office and held back the tears till I got to the car.I could not even tell her everything because she had already decided nothing was wrong with me!They are the crazy ones not me!All they have to do is look at my records.Why do we give them power to make us feel like this????I wish I was the type of person to sue but I am not.Someone needs to get these doctors scared where they start acting responsible for their actions.I have wrote to montel and Oprah to do a story on doctors behavior.I will NOT GIVE UP!!!I suggest that everyone documents all your events with these so called physicans and take pictures of anything you can even if it is a rash.We are the strong ones for dealing with this TIRED illness that they could never survive.We are educated and intelligent.Do not let these doctors get you feeling down,let these visits empower you!!!!!!!!!!!!!!!!
    Tracey
    [This Message was Edited on 10/21/2002]
  2. TiredbutWired

    TiredbutWired New Member

    This is a recap of my story;Today I think I met Satan.Some of you might remember my primary doctor telling me nothing was wrong with me and to take a high dose of antidepressants,to go off all my other meds and when I told him that I fainted he shrugged his shoulders and said uh huh!Well he did me a big favor because I found Dr.Kellers place searching for treatment.This is where it gets good:Two days later I got a letter from Dr.Lapp stating that I had positive Lyme antibodies.Then I started having syncopal episodes.They found I had just got mono in the last 4 to 6 weeks and my immune system showed that it was over active.Well then I fainted again and this time got a black eye and smashed my face up.Did not bother me but when I went to my doctor,he took one look at me and said I had to go to the ER.The insurance had to pay for it and he was concerned about the blow to my head.So I went to ER and they ran a lot of tests[all normal].They wanted to know why I did not go to my primary and I said because last time I fainted he did not care.The hospital sent all my records to my primary.They said he had a good reputation and would I give him another chance.Well the primary got my records and his office called me and said he wanted to see me immediately.So my husband and I went back to see him only to get some of these tests payed for by insurance.The primary was like a different person he was so kind and very nervous.We all played nice and he tryed to pretend like he did not remember me and all of this must have happened after I saw him.I said NO I fainted 2 days before I saw you last time.Bit my tongue about his misconduct and he ordered more test through the hospital and set up everything for me and made me a appointment for a neurologist.Now he wanted to see me in a week.Also I took pictures of my face and showed him.I thought finally sweet revenge,it was nice to see him with his tale between his legs.Well when I went back to him I went in by myself and he was very nice but did not seem to listen well.I had dropped 6 more pounds in a week and he said;you lost some weight that is great!I am 5'8 and weigh 134 pounds,I do not need to lose weight.He asked about my sleep and I said I still do not sleep more than 2 to 4 hours and he said thats okay you do not need more sleep than that.What?I said my throat hurt and he said well it does not hurt when you swallow,yes it does and he shrugged his shoulders and said eh!Never examed me and said I am sure your tests will come out all normal.I was trying to forgive him and hoped he had learned his lesson but I think this man is very dangerous.I told him my legs turn a bluish color when I stand still for a few minutes and he said eh,thats okay!Now I have strep throat that if he would have looked he might have seen.Then I went to the neurlogist today that he referred me to.Well I do not know what he told her but she acted like I was crazy and wanted to know if I had seen a physiologist.I left her office and held back the tears till I got to the car.I could not even tell her everything because she had already decided nothing was wrong with me!They are the crazy ones not me!All they have to do is look at my records.Why do we give them power to make us feel like this????I wish I was the type of person to sue but I am not.Someone needs to get these doctors scared where they start acting responsible for their actions.I have wrote to montel and Oprah to do a story on doctors behavior.I will NOT GIVE UP!!!I suggest that everyone documents all your events with these so called physicans and take pictures of anything you can even if it is a rash.We are the strong ones for dealing with this TIRED illness that they could never survive.We are educated and intelligent.Do not let these doctors get you feeling down,let these visits empower you!!!!!!!!!!!!!!!!
    Tracey
    [This Message was Edited on 10/21/2002]
  3. ssMarilyn

    ssMarilyn New Member

    I had a similar experience with one of my GP's that I dropped. She kept insisting I needed Prozac and counseling. I kept refusing and one day she got mad and HOLLERED at me in her office. Needless to say, I switched GP's, and made sure the new GP, which is in the SAME office, knew what the other one had done. I heard the same story from my sister that saw her and the lady at the post office that saw her. Both were told they needed Prozac and counseling. What a copout!

    Marilyn
  4. selma

    selma New Member

    My Dr. doesn't believe in FM. When I got weighed the nurse wrote down 100lbs. I told her that I was wearing jeans, sweaters and heavy shoes. The scale said 99. and last time I was in summer clothes. At another DRs about four days before I weighed 95. I just know that he doesn't want to be bothered. I know that I weigh 93. I know that I need to go somewhere else but The Ins. Thing stops me. Oh well he does treat the symptoms.
    Could you also be Hypoglycemic? Hope that you feel better fast. Take care of yourself.

    Love, Selma
  5. Imnoangle

    Imnoangle New Member

    I've been to 6 doctors since April who keep telling me it's because you FAT or it's in your head. Well I;m not about to give up. I'm still looking for a doctor who can give me some answers. Please keep looking for a doctor that will help you. Hope your well today.
    Dawn
  6. AnnetClo

    AnnetClo New Member

    I read in another post last week that someone suggested taping office visits of doctors that the disability people send you too. Well I think that might be a good idea in your case as well. It will give you proof of the way he treats you and ignores your symptoms and maybe if he thought you were going to tape him it would rattle his cage a little and make him a little more attentive. And if he won't let you tape them, then insist on having another person in the room with you as a witness. He definitely needs to be brought down a notch or two.

    Sorry things aren't going well. But I do hope you feel better soon.
    Annette
  7. kadywill

    kadywill New Member

    go to ALL of each other's appointments. We schedule all the appointments for the Fridays that we're both off from work. I also take notes during each visit. This way, there is always a witness and always a second opinion as to what the doc has said. We can support each other and not allow ourselves to overreact to anything the doc said out of fear, frustration and misunderstanding. I wouldn't think of letting my husband go to an appointment without me because he is clueless about health matters!!!
    Love,
    Kady
  8. TiredbutWired

    TiredbutWired New Member

    Hello,Thank you for the great advice,I have not contacted the insurance company.My husband went with me the first two times and I have taped some of my other visits.I think that is why he was so nervous after we had been to the hospital.He acted like he knew he had messed up.I have two great specialist but we have payed for everything intil now and that is the only reason we went back to the primary to get some of these tests like echo cardio and cat scans etc. paid for.So he did at least do all that and scheduled it all for the same day in the hospital.It is the immunologist that wanted all these test to rule out the worst from the least out.So I am done with him and got some satisfaction from watching him squirm.I was just willing to forgive the whole situation and use him only as a means to get important test paid for by useless HMO.I am very lucky that we have been able to pay for all these doctors.But it bothers me that the only way we can get treated right is by paying for it and traveling.The primary should have ordered all these test after the first time I saw him and had fainted and maybe I would not have had to go through hitting my face.Let me ask a question Has anyone ever fainted?Do you know how long you were unconscious or if you even were?I feel like asking the doctors that,all the times I have fainted I have been pretty confused as to what has happened.I told her today that I guess I should have left my hotel room and went downstairs to faint so I would have a witness.Then would I have to get signed statements from everyone that was a witness or would the doctor have to call them in North Carolina?Ever feel like you are on trail and the doctors are interrogating you and you have to fight to hold on to your sanity?Karen;I was on doxy.for two months before they ever took the Lyme test and I am on 1000mg a day of Biaxin and now all the bands but one are NOT active.So I am feeling better in some ways but you know how it goes get rid of a few symptoms and replace them with new exciting ones.Emotionally I am better than I have ever been and have this illness to thank for that!It has been quite an adventure and I just try to enjoy the ride!Thanks to all!Love,Tracey
  9. sofy

    sofy New Member

    You mentioned mono, fainting and lots more so this might not be you at all but will throw it out anyway. If the fainting is a continual problem and not just a unique isolated event you might want to read up on cataplexy. It often tags along to make the life of those with narcolepesy more exciting.
  10. TiredbutWired

    TiredbutWired New Member

    Thank you I will check into that.It seems like everytime I read about something a few months later I get it.[smile]Tracey
  11. sofy

    sofy New Member

    Tracey, ain't it grand to be so special? I'm under a sleep Dr. care and I sincerely hope you don't fall into this nasty pot of stew too.
  12. TiredbutWired

    TiredbutWired New Member

    I have learned to smile and joke about everything that comes along but if I do fall in this stew then that would make it stew for two!lol Tracey
  13. sofy

    sofy New Member

    My post here dont show it (I'm trying to abide) but I have a keen sharp sense of humor which I credit with my still being here. If I was a sober sides I'd have to jump off the bridge alone. Not now, the waters too cold. Done my half dozen posts and proven to myself I still exist so am off for the night.