Getting medical treatment (sort of a rant)

Discussion in 'Fibromyalgia Main Forum' started by Andrew111, Oct 31, 2006.

  1. Andrew111

    Andrew111 Member

    Part of my problem with CFS is dizziness while standing. I was just reading at cfids.org and found that this could be orthostatic intolerance. The site goes on to list possible tests and treatments. But most doctors gave me a blank stare when I mentioned the dizziness. My most recent family doctor did suggest the possibility of orthostatic intolerance, but then offered no advice or testing. So I was surprised to find that there are ways to control this, most of which are are not specific to CFS.

    I just don't understand this. Why am I seeing a doctor if he won't even help me with generic things. And this is my second family doctor in 12 months.
  2. JLH

    JLH New Member

    First of all, I went to read your bio, and see that this is your first post! So, WELCOME TO OUR BOARD!!!!!!!!!!!

    I don't know what "orthostatic intolerance" is, but if you really are interested in being tested for it, just plain come out and tell your doc that you want these tests--don't wait for him/her to "ask" you if you are interested in taking the tests.

    Anything that I have read about, etc., or if it is something that I am interested in, I always approach the doc about it and I am the first one to request the test(s).

    Also, you might ask you doc about the possibility of your dizziness having anything to do with your ears (a common source of imbalance and dizziness) or your blood pressure.

    I hope your get your problem taken care of soon, and again, WELCOME!!!!!!!!!!!!!!!!!!!!

    Hugs,
    Janet

  3. rachel432

    rachel432 New Member

    i'm not sure what causes your dizziness but i know of a medication you can buy over the counter that we use in hospital a lot that may help you. the generic nake is meclizine, it's sold for motion sickness but is often prscribed for vetigo. in my area the most common brand you can fine is a med called bonine. you can take 25mg of it at a time every 6hrs as neede and it usually works very well to relieve dizziness. it may be worth a try.

    i hope this helps.
    rachel
  4. KelB

    KelB New Member

    One of my first symptoms was dizziness and a balance problem. I spent the first 4 months of CFS being looked after by an Ear, Nose and Throat specialist - could you ask for a referral, just to rule out things that may be unrelated to CFS?

    I had various balance tests and an MRI.

    When it got really bad, I took a travel sickness tablet (Stugeron) which helped. The ENT doctor was happy for me to do this.
  5. justjanelle

    justjanelle New Member

    I had this problem for several months. My doctor seemed willing to *think* about what it could be, but didn't seem to know where to go with those thoughts. (Tests, treatments etc.)

    However, he did do a fairly simple blood pressure test. He took my blood pressure while I lay on the exam table. Then took it again after I'd been sitting up for a couple of minutes. Then again after I'd been standing for a couple of minutes. The standing actually required my DH to help hold me up as I felt so weak and faint.

    The results were startling. My sitting blood pressure dropped significantly from my lieing blood pressure. And they couldn't even measure my standing blood pressure, it had dropped so low.

    Unfortunately, this was another of those things where the doctor kind of goes "hmm. That's interesting." but little more. He did have me take some potassium supplements and drink Gatorade as he thought getting the extra fluids in my system might help. I don't think it helped much, but I did get better over the course of the next several weeks (so maybe they helped, but just slowly.)

    Would your doctor be willing to try this test for you? It might at least give you some direction in your investigation.

    Best wishes,
    Janelle
  6. Andrew111

    Andrew111 Member

    Thanks for all the suggestions. I really appreciate the response. And I will look into all of these things.

    As for my doctor, I realize that I can ask the doctor for the test, now that I know one exists. But that is what bothers me. He should have told me about the test. He should have gone back into his office and looked this up in his medical book, and then discussed it with me, along with things that might help. I'm paying him to be my give me professional-level help with my health.
  7. rockgor

    rockgor Well-Known Member

    to the board. Lots of nice people here to share their experiences, info, jokes, etc.

    I have had CFS for a long time, but have not experienced dizziness.d There seems to be a lot of symptoms and we all get some. I hope nobody gets all of them.

    You can find articles on various topics in the library, above in purple.
  8. Andrew111

    Andrew111 Member

    Me again. I was just thinking that maybe it would be more helpful if I posted the link to what I read about the dizziness while standing in relation to CFS. Just in case someone else has the same problem.

    http://www.cfids.org/about-cfids/orthostatic-intolerance.asp

    I should also mention that they say this is a condition that can co-exist or overlap with CFS. Which might be why I don't always see it mentioned in CFS articles.