Glad to have finally found some real support

Discussion in 'Fibromyalgia Main Forum' started by CrystalRose, Sep 18, 2006.

  1. CrystalRose

    CrystalRose New Member

    I just tonight found this site and am thrilled to be able to share with others who can relate. Recently diagnosed with Fibro, but have known for a while that I have it. Sometimes I think I know more than some of the Dr.'s I've seen. I've been reading some of the postings and they have already helped. Going through a rough time right now. So many days that I feel like giving in and just become a hermit. Nice to know that I'm not alone in how I feel.
  2. PVLady

    PVLady New Member

    Welcome!!! You will really like this board. I have been here about three years...

    I will share something with you that I would have done long ago if I knew. Recently I had a blood test for the Epstein Barr Virus. It came back very high (3,500), indicated as a "old infection"

    I know this was going on for over ten years and I just found out. My doctor has now sent me to a excellent infectious disease specialist who ordered the following additional tests for the viruses of Cytomegalovirus, Echo Virus Antibodies, Coxsackie B Virus, C. Pneumonia, C Reactive Protein, IgG Subclasses 1-4, Immunoglobulin A, Echovirus, EBN Acute Infection AB, and more.

    Bottom line, I sure with I would have known and had these tests ten years ago. Maybe I would be better today.

    If you have never been tested you might ask your doctor to run these tests. If you come up positive, perhaps you can also be referred to a doctor who can help.

    If you are interested and want to know the exact tests I can let you know.

    I also recently started seeing Dr. Holtorf who specializes in Fibro and CFS. He gave me a supplement called Corvalen which did seem to help muscle aches. The major ingredient is Ribose. You can read about Corvalen on the internet.

    I was kind of surprised, after being here 3 years, I had not even heard of Corvalen.

    Welcome, and I hope you learn alot...
  3. rockgor

    rockgor Well-Known Member

    TO THE BOARD.

    Lots of info here. People who can share experiences, a joke, a recipe, etc.
  4. Cromwell

    Cromwell New Member

    Welcome. So p[eople know you are a newbie could I suggest (respectfully) that you could edit your title to include NEW HERE. This way you will become known to more people.

    I am so glad you found us and we you!

    Love Anne
  5. Redwillow

    Redwillow New Member

    I am glad you found your way here.

    I love the fact that you can talk to people here and they understand.

    People here don't think all our FM symptoms are weird. It is amazing to fit in! LOL

    So if you have any questions ask away. Everyone here are helpful.

    hugs Marion (Redwillow)
  6. minkanyrose

    minkanyrose New Member

    great support on this board and when i want to give up they give me a lift up hope you find that here too
  7. Lendy5

    Lendy5 New Member

    Hi CrystalRose - Welcome to the boards!

    There is so much information to learn here on the board and from the members.

    We also have chat rooms that are alot of fun but I spend most of my time catching up on reading the message boards.


    I am sure you will enjoy it here just as much as we all do.


    Love & Hugs!
    carolin
  8. cct

    cct Member

    CrystalRose,

    I have recently found this message board too and I am extremely greatful for the friendship, support, and communication that abounds here.

    I have had ME/CFS/FM for more than 16 years. In all that time, there have been very few people who believe that I am having any real problems. People thought that I was lazy, or mentally ill, or I was just being a drama queen. Family ostracized me, friends abandoned me, doctors dismissed me, so on and so on. It has been very heartbreaking to try to cope with this disease without support.

    So I am very glad that we both have found this site and I hope that all of us will continue to help each other to feel our best.
  9. NyroFan

    NyroFan New Member

    Crystal Rose:

    We all get the help we need here. It is sometimes so difficult to relate to people who do not share this common illness. I feel there is a stigma attached to it. That has been my experience, anyway.

    I read older posts, too. I get a little more 'education' each day.

    Glad that you are on-board.

    nyrofan