Glaucoma and FMS

Discussion in 'Fibromyalgia Main Forum' started by Caringmom101, Feb 23, 2004.

  1. Caringmom101

    Caringmom101 New Member

    To Everyone:
    I'm almost afraid to ask this question. Do FMS patients have a high incidence of glaucoma?
    My daughter went to a support group for FMS and several in the group had glaucoma. I have never heard of this before and I have checked many of posts on this site. She came home and just started crying. She also has Endometriosis along with FMS and Chronic Fatigue.

    Caring Mom
  2. alonebutnotlonely

    alonebutnotlonely New Member

    My doc says I have glaucoma but in very early stages. not to be operated on yet. I have FMS.

    [This Message was Edited on 02/24/2004]
  3. fllfibro2003

    fllfibro2003 New Member

    I don't think it is related to this DD.

    When I was 13 yrs. old my optomitrist(sp) told my parents that I was at high risk for Glaucoma because the cup shaped disk behind your eye that the optic nerve comes through has not developed like it should. At birth this disk is large and as you get older it shrinks, at least by age 10.

    Well, my disk didn't shrink, instead it started getting bigger. I was diagnosed in 1999 with low-pressure Glaucoma, in-operable. now I have to put eye drops in my eyes for the rest of my life. I was 30 when this happened.

    The optomatrist says this is genetic and kept a close watch on my twins because of it. Thank goodness their disks shrank by age 8.

    I would ask this question to the dr. the next time your daughter goes.

    Good Luck
  4. Caringmom101

    Caringmom101 New Member

    Thanks for your reply. What are the early stages of glaucoma? Why do FMS patients have so many other things wrong with them? I'm afraid to search the internet for more information, it's just too sad. I just want my daughter to have a life.
    Caring Mom
  5. alonebutnotlonely

    alonebutnotlonely New Member

    Sorry I didn't see this until today, 02-26-04. My family doctor just looked in my eyes with that light magnifier thingy.

    I don't know how old your daughter is (I'm 51) but if she can see ok she just needs to tell her doctor on her next visit to have a look.

    My Mom and Dad both have had Glaucoma since they were in their 50's. They are now in their early 70's and it is just now starting to bother them. They both have problems with bright light. I'm not sure but from what my parents have told me it is probably slow growing (if that is the right term).

    She probably doesn't need to freak just yet. And may not ever need to freak about it. I think it is relatively easy to take care of.


    P.S. one of my dogs has glaucoma.
  6. fibrowhat

    fibrowhat New Member

    OMG...I never heard of this!!

    I do have Glaucoma..I had no warning sign's!!
    Just went to the eye doc for a routine check up and they kept doing the pressure test(puffing air in my eye) over and over,thought it was weird!!

    Then when the tech brought me into see the eyedoc,she called to make me an appt ASAP with a eye specialist..they had me so scared...He said my reading were dangerously high,and I had Glaucoma!!!also asked if I have any history of arthritis or immune problem's??

    He put me on Betopic drop's for one month,if it did not take my pressures down he'd put me on steroid's..but it came down and 2 yr's later i'm still on the Betopic drop's..

    I have to have feild studies done every 6 months,for the rest of my life..

    The only thing that I can think back on before being dx'd was pressure behind my eyes and alot of trouble driving at nite...the bright lites from cars was blinding!!

    Anyway it's a silent theif of your eyesight..I have no family history of anyone in my family having it~~
  7. fibrowhat

    fibrowhat New Member

    Abnormal T-cell findings in patients with glaucoma are similar to those in patients with other autoimmune diseases.

    Another important clue to showing that molecular mimicry seems to be a valid mechanism in patients with glaucoma is the antigens found on T cells in glaucoma patients. We found an increased frequency of certain antigens in T cells, particularly HLA and CD8, of normal-pressure glaucoma patients.
    These antigens are also upregulated in the T cells of patients with other autoimmune diseases (type 1 diabetes and rheumatoid arthritis).

    CD8+ lymphocytes are primarily involved in the immune defense to pathogens via their recognition of the major histocompatibility complex class I molecules of affected cells. The implication is that, whatever mechanism is involved by having certain T cells active in autoimmune diseases, patients with NPG appear to share this common finding with other common autoimmune diseases.

    Despite the strength of these immunological associations, it is important to bear in mind that there is no evidence to confirm that retinal ganglion cell loss occurs as a direct result of aberrant humoral or cellular immunity in glaucoma patients. We are presently developing a model of experimental autoimmune glaucoma in order to determine whether immunization with cytotoxic autoantibodies will cause retinal cytotoxicity. The results thus far suggest that this is the case.
    Unfortunately, little can be done therapeutically for patients who may have presumed autoimmune glaucoma, apart from the traditional therapy of trying to minimize the pressure-dependent component that may be injuring RGCs. However, we must bear in mind that the treatment of autoimmune disease is in its infancy, and will likely progress dramatically as the field of peptidomimetics advances. In theory, we will eventually be able to identify harmful autoantigens and neutralize them with molecules before they can cause any damage by participating in adverse immune pathology.
    If this body of work has demonstrated anything useful, it is that we must pay attention to other mechanisms for potentially treating glaucomatous neuropathy apart from pressure lowering. Autoimmunity is just one stress condition that can destroy neurons.

    More info here/just copy and paste the url in your browser..
  8. fed-up at 50

    fed-up at 50 Member

    Fibromyalgia is an auto immune disorder and once you have one you are more sesptibal to others.
    Fibromyalgia is an auto immune disorder and once you have an auto immune you are more susceptible to getting other things. I am 51 and have worn glasses my whole life since age 5 and now I have very high pressure to the tune of 26 & 29. I guess this is quite high though I never knew this to be an issue before. It has been high for years and no one ever told me how bad this is. At least they can treat it with eye drops. I have had fibro since age 3 hit by a car. Fibro is a tough pill to swallow but they are making some headway finally after all these years. Your daughter will be ok just has to learn to live a different life now.

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