Good Doc referral is now available to all! Thanks, Eli!!!

Discussion in 'Fibromyalgia Main Forum' started by teach6, Nov 21, 2002.

  1. teach6

    teach6 New Member

    I noticed the Doctor Referral button at the top of this page and clicked on it. What I got is not the same thing we used to get. Instead it's something completely different. How are we supposed to tell people to go to the good doc site when it has been removed from this board? And why has that been done?

    Here's what I found in its place:

    The following information on finding a doctor is republished with the kind permission of the CFIDS Association of America.

    How Do You Choose a Doctor?

    Starting Your Search

    Gather Information

    Call Them Up
    Educate Them

    Give Them a Check-Up

    When You Go to



    How Do You Choose a Doctor?
    This is especially difficult when you have (or suspect you have) chronic fatigue and immune dysfunction syndrome (CFIDS), also known as chronic fatigue syndrome (CFS).
    More doctors are recognizing the symptoms of CFIDS. Understanding and acceptance of the illness is slowly growing within the medical profession. Still, finding a health care provider who is knowledgeable about CFIDS can be difficult. Many health care providers have difficulty diagnosing CFIDS and some do not even know that the illness exists.
    At this time, no specific medical discipline has “claimed” CFIDS, its diagnosis or its treatment. So although it is unfair, CFIDS patients often have the responsibility of finding a knowledgeable health care provider. This pamphlet offers some basic guidelines to consider when choosing a doctor.

    Starting Your Search
    Educate yourself thoroughly about CFIDS and be on the lookout for health care providers who have done the same.

    Your primary care provider
    If you already have a good relationship with a health care provider, you should urge him/her to develop an understanding of CFIDS. Educate your doctor by providing him/her with literature about the illness. (See Educate Them.) Initially, you may be answering more questions for your doctor than he or she is answering for you.

    Local support groups
    CFIDS support groups may be able to guide you when looking for a health care provider in your area. You can get a list of local CFIDS support groups from The CFIDS Association - send an e-mail request including your postal mailing address to:
    cfids@cfids.org or a self-addressed, stamped envelope to: The CFIDS Association of America, PO Box 220398, Charlotte NC 28222-0398, ATTN: Support Groups. All requests will be filled by mail.

    Everyone else
    Other persons with CFIDS, friends, relatives, neighbors, coworkers, nurses, support group members - everyone is a resource. Keep in mind that many people choose health care providers according to “personality” and opinions differ among individuals. Most people are not qualified to characterize a doctor as competent or incompetent. However, compassion and understanding, good “bedside manner” and an open mind are qualities that count in a health care provider... especially when treating a chronic illness like CFIDS.

    Gather Information
    Before you contact the health care providers you are interested in, you can get some basic background information about them. For example: Are they licensed? Are they board certified? Have they ever been sued for malpractice? At which hospital(s) do they have privileges? Are they in your insurance plan? Do they accept Medicaid/Medicare (if applicable)? A list of resources you can use to gather this information is found on page 4. (See Give Them a Check-up.)

    Call Them Up
    Next, call the offices of the providers who meet your criteria and speak with the office managers. Find out how they feel about CFIDS. Say, “I have (or may have) CFIDS (or CFS), a complex and debilitating illness, and I’m looking for a health care provider. Is the doctor familiar with CFIDS? Does he or she diagnose CFIDS? Does he or she treat CFIDS? How many CFIDS patients does he or she have?” There may be other questions you want to consider asking as well.

    Educate Them
    Provide your doctor/nurse with as much information as you can. There are thousands of CFIDS studies published in medical journals, if he or she seems to lean toward peer-reviewed literature. Several studies are available from The CFIDS Association of America. The Association also provides a medical information packet to doctors at no charge. This packet provides excellent resources for health care providers who are learning how to care for CFIDS patients. To send this information to a doctor, send your request by e-mail to webinq@cfids.org

    Give Them A Check-Up
    There are now many ways to check up on physicians anywhere in the country. You can go to your local library, check with a physician referral service or surf the Internet. Below are additional options.

    Your insurance plan
    Call your health insurer first to find out which health care providers are in your plan. Most Americans now have a limited number of providers they can see. If there aren’t any suitable doctors in your plan, find out the plan’s policy if you go “out of network.”

    American Medical Association (AMA)
    Department of Physician Data Services
    515 N. State Street
    Chicago, IL 60616
    Website: www.ama-assn.org
    Through the AMA you can find out about a doctor’s educational background and areas of medical specialty and whether or not the doctor is a member of the AMA. You can also check the American Medical Association Medical Directory at your local public library or bookstore.

    American Board of Medical Specialties
    47 Perimeter Center East, Suite 350
    Atlanta, GA 30346
    800/776-2378
    Website: http://certifieddoctor.org/
    This organization will tell you whether a doctor is board certified or board eligible in a particular area. “Board certified” means the doctor has completed two additional years of training and passed a national examination. “Board eligible” means that the training, but not the test, has been completed.

    Medi-Net
    Toll-free: 888/275-6334
    Website: http://www.askmedi.com/
    For a fee* Medi-Net accesses databases from the AMA, three federal agencies and all 50 state medical boards to provide basic background information on a doctor and whether he or she has been disciplined for billing fraud, overprescribing, incompetence or another offense. *$14.75 for one doctor when ordering from the website ($29.99 when calling).

    When You Go to the Doctor...
    Exercise your right to receive appropriate medical care, but respect that office visits do have time limits. Be prepared for your visit with a list of your symptoms and medications - many PWCs find that keeping a symptom diary helps them talk to their doctors better. Ask questions and answer questions fully. Write things down. You might even want to ask permission to audiotape the visit.
    Remember, doctors are people too. All are fallible, and no one doctor can possibly keep up with all the new medical information coming out. Doctors, like the rest of us, have personal opinions and attitudes. They can’t be totally unbiased or free of pre-judgments. If your doctor can’t deal with your real medical problems, seek help elsewhere.
    With thanks to Camilla Cracchiolo, RN; Thomas B. McCall, MD; and K.H. Cherry. Published and distributed by The CFIDS Association of America ©2000. Some of the information contained herein is intended to help persons with CFIDS (PWCs) make informed decisions about their health. For specific advice, please consult with your health care provider.
    The CFIDS Association of America, Inc. is the nation’s leading 501(c)(3) charitable organization dedicated to conquering CFIDS by supporting education, public policy and research. Our mission is to conquer CFIDS. All funds contributed to The CFIDS Association of America for a specific, valid CFIDS purpose are so allocated - 100%. Rev. Jan. 2000


    I don't see that this is any help at all. The Co-Cure site has helped so many people. Why are we not allowed to link to them any more?

    Barbara
    [This Message was Edited on 11/22/2002]
    [This Message was Edited on 11/25/2002]
    [This Message was Edited on 12/02/2002]
    [This Message was Edited on 12/02/2002]
    [This Message was Edited on 12/02/2002]
  2. teach6

    teach6 New Member

    I noticed the Doctor Referral button at the top of this page and clicked on it. What I got is not the same thing we used to get. Instead it's something completely different. How are we supposed to tell people to go to the good doc site when it has been removed from this board? And why has that been done?

    Here's what I found in its place:

    The following information on finding a doctor is republished with the kind permission of the CFIDS Association of America.

    How Do You Choose a Doctor?

    Starting Your Search

    Gather Information

    Call Them Up
    Educate Them

    Give Them a Check-Up

    When You Go to



    How Do You Choose a Doctor?
    This is especially difficult when you have (or suspect you have) chronic fatigue and immune dysfunction syndrome (CFIDS), also known as chronic fatigue syndrome (CFS).
    More doctors are recognizing the symptoms of CFIDS. Understanding and acceptance of the illness is slowly growing within the medical profession. Still, finding a health care provider who is knowledgeable about CFIDS can be difficult. Many health care providers have difficulty diagnosing CFIDS and some do not even know that the illness exists.
    At this time, no specific medical discipline has “claimed” CFIDS, its diagnosis or its treatment. So although it is unfair, CFIDS patients often have the responsibility of finding a knowledgeable health care provider. This pamphlet offers some basic guidelines to consider when choosing a doctor.

    Starting Your Search
    Educate yourself thoroughly about CFIDS and be on the lookout for health care providers who have done the same.

    Your primary care provider
    If you already have a good relationship with a health care provider, you should urge him/her to develop an understanding of CFIDS. Educate your doctor by providing him/her with literature about the illness. (See Educate Them.) Initially, you may be answering more questions for your doctor than he or she is answering for you.

    Local support groups
    CFIDS support groups may be able to guide you when looking for a health care provider in your area. You can get a list of local CFIDS support groups from The CFIDS Association - send an e-mail request including your postal mailing address to:
    cfids@cfids.org or a self-addressed, stamped envelope to: The CFIDS Association of America, PO Box 220398, Charlotte NC 28222-0398, ATTN: Support Groups. All requests will be filled by mail.

    Everyone else
    Other persons with CFIDS, friends, relatives, neighbors, coworkers, nurses, support group members - everyone is a resource. Keep in mind that many people choose health care providers according to “personality” and opinions differ among individuals. Most people are not qualified to characterize a doctor as competent or incompetent. However, compassion and understanding, good “bedside manner” and an open mind are qualities that count in a health care provider... especially when treating a chronic illness like CFIDS.

    Gather Information
    Before you contact the health care providers you are interested in, you can get some basic background information about them. For example: Are they licensed? Are they board certified? Have they ever been sued for malpractice? At which hospital(s) do they have privileges? Are they in your insurance plan? Do they accept Medicaid/Medicare (if applicable)? A list of resources you can use to gather this information is found on page 4. (See Give Them a Check-up.)

    Call Them Up
    Next, call the offices of the providers who meet your criteria and speak with the office managers. Find out how they feel about CFIDS. Say, “I have (or may have) CFIDS (or CFS), a complex and debilitating illness, and I’m looking for a health care provider. Is the doctor familiar with CFIDS? Does he or she diagnose CFIDS? Does he or she treat CFIDS? How many CFIDS patients does he or she have?” There may be other questions you want to consider asking as well.

    Educate Them
    Provide your doctor/nurse with as much information as you can. There are thousands of CFIDS studies published in medical journals, if he or she seems to lean toward peer-reviewed literature. Several studies are available from The CFIDS Association of America. The Association also provides a medical information packet to doctors at no charge. This packet provides excellent resources for health care providers who are learning how to care for CFIDS patients. To send this information to a doctor, send your request by e-mail to webinq@cfids.org

    Give Them A Check-Up
    There are now many ways to check up on physicians anywhere in the country. You can go to your local library, check with a physician referral service or surf the Internet. Below are additional options.

    Your insurance plan
    Call your health insurer first to find out which health care providers are in your plan. Most Americans now have a limited number of providers they can see. If there aren’t any suitable doctors in your plan, find out the plan’s policy if you go “out of network.”

    American Medical Association (AMA)
    Department of Physician Data Services
    515 N. State Street
    Chicago, IL 60616
    Website: www.ama-assn.org
    Through the AMA you can find out about a doctor’s educational background and areas of medical specialty and whether or not the doctor is a member of the AMA. You can also check the American Medical Association Medical Directory at your local public library or bookstore.

    American Board of Medical Specialties
    47 Perimeter Center East, Suite 350
    Atlanta, GA 30346
    800/776-2378
    Website: http://certifieddoctor.org/
    This organization will tell you whether a doctor is board certified or board eligible in a particular area. “Board certified” means the doctor has completed two additional years of training and passed a national examination. “Board eligible” means that the training, but not the test, has been completed.

    Medi-Net
    Toll-free: 888/275-6334
    Website: http://www.askmedi.com/
    For a fee* Medi-Net accesses databases from the AMA, three federal agencies and all 50 state medical boards to provide basic background information on a doctor and whether he or she has been disciplined for billing fraud, overprescribing, incompetence or another offense. *$14.75 for one doctor when ordering from the website ($29.99 when calling).

    When You Go to the Doctor...
    Exercise your right to receive appropriate medical care, but respect that office visits do have time limits. Be prepared for your visit with a list of your symptoms and medications - many PWCs find that keeping a symptom diary helps them talk to their doctors better. Ask questions and answer questions fully. Write things down. You might even want to ask permission to audiotape the visit.
    Remember, doctors are people too. All are fallible, and no one doctor can possibly keep up with all the new medical information coming out. Doctors, like the rest of us, have personal opinions and attitudes. They can’t be totally unbiased or free of pre-judgments. If your doctor can’t deal with your real medical problems, seek help elsewhere.
    With thanks to Camilla Cracchiolo, RN; Thomas B. McCall, MD; and K.H. Cherry. Published and distributed by The CFIDS Association of America ©2000. Some of the information contained herein is intended to help persons with CFIDS (PWCs) make informed decisions about their health. For specific advice, please consult with your health care provider.
    The CFIDS Association of America, Inc. is the nation’s leading 501(c)(3) charitable organization dedicated to conquering CFIDS by supporting education, public policy and research. Our mission is to conquer CFIDS. All funds contributed to The CFIDS Association of America for a specific, valid CFIDS purpose are so allocated - 100%. Rev. Jan. 2000


    I don't see that this is any help at all. The Co-Cure site has helped so many people. Why are we not allowed to link to them any more?

    Barbara
    [This Message was Edited on 11/22/2002]
    [This Message was Edited on 11/25/2002]
    [This Message was Edited on 12/02/2002]
    [This Message was Edited on 12/02/2002]
    [This Message was Edited on 12/02/2002]
  3. beans

    beans New Member

    Click it on as you did and there is a sentence the last choice called


    Co-Cure CFS & FM Good Doctor List

    Click it on and go from there.

    Beans



  4. Shirl

    Shirl New Member

    Beans is right, it is there. After you click on 'Doctor Referral', then go to the left side (9th dot), it says; 'Co-Cure CFS&FM Good Doctor List', click there and it will bring you to the list of states/countries for the doctors.

    Its a little tricky, but it is still there.


    Shalom, Shirl
  5. teach6

    teach6 New Member

    There are seven bullets (dots) and as I copied the entire page in my post for you to read I challenge you to find one that mentions Co-Cure Good Docs.

    The bullets (dots) listed are:

    How Do You Choose a Doctor?

    Starting Your Search

    Gather Information

    Call Them Up
    Educate Them

    Give Them a Check-Up

    When You Go to


    That is it. There is no more. I have checked this over and over again and I know what I see and what I used to see and they are not the same thing. This entire page is lifted from the CFIDS Association, with credit given. There is absolutely no mention of the Co-Cure list!

    Barbara
  6. Shirl

    Shirl New Member

    I did make a mistake, it is #8 not #9. Was tired last night!
    -----------------------------------------------------------


    Page || About Co-Cure || Articles and Posts || Reading Room || Additional Resources || Let's Work Together || Message Board || Guestbook || Search this Web site





    CFS & FM Good Doctor List
    (Last Revision: September 15, 2002)

    Additions and deletions to the Co-Cure Moderators.


    This page represents the index to the "CFS & FM Good Doctor List," a collection of listings, of doctors who have been recommended by and for CFS/CFIDS/FM patients. The physicians are listed on separate pages by country and state/province/region and, within each page, by city.




    --------------------------------------------------------------------------------

    DISCLAIMER: The "CFS & FM Good Doctor List" is provided as a convenience to CFS/CFIDS/FM patients. Co-Cure has not verified any of the information submitted for the purpose of inclusion on this list and provided herein as to accuracy nor professional standings. As always, patients should check with local/regional agencies that monitor physicians prior to engaging services/treatment.

    NOTE: The lists that comprise the "CFS & FM Good Doctor List" are not to be reproduced in part or whole with the intention of use for profit.




    --------------------------------------------------------------------------------

    All available physician listings are indexed below. If the country, state or province does not appear in this index, this means that no physicians have yet been recommended for that area.



    INDEX - CFS & FM GOOD DOCTOR LIST
    Australia
  7. Grams

    Grams New Member

    Please look at my reponse in the article "Hello to All". I have never been able to find the doctor list.
  8. James

    James Guest

    Its there atop all the pages from the message boards in the section we refer to as "Community" the links in the purple area at the top of the site.
    You will see the folowing links: Chat Rooms | Message | Boards | Coping Corner | Doctor Referral | Disability | Organizations | Support Groups.
    The referal is the middle link.
    Here is the link right in:
    http://www.immunesupport.com/community/referral/
    It is the right most link within..
  9. Grams

    Grams New Member

    I use this site through the ProHealth links, and now I see the same information through Immunesupport links. This is confusing, as ProHealth does not have a doctor referral link or links leading to at Immunesupport.

    Edit to add:

    The doctor list is easy to find when searching the Immunesupport website, but impossible to find using the ProHealth site as I have always done.
    [This Message was Edited on 11/22/2002]
  10. teach6

    teach6 New Member

    I have once again gone to the doctor referral link at the top of this page, as you mentioned. The web link for the page this message is posted on is: http://www.chronicfatiguesupport.com/chat/forums/message.cfm?id=130811&B=FM

    When I clicked on Doctor Referral I got this page: http://www.chronicfatiguesupport.com/community/referral/

    There is no link there for the good doc list. I am not blind. I have read and reread this page and it's NOT there!!!

    Still waiting for an explanation.

    Barbara
    [This Message was Edited on 11/22/2002]
  11. Grams

    Grams New Member

    This message board is linked to ProHeath, ImmuneSupport, and Chronicfatiguesupport. And the links and information are different, depending on which site is used. Instructions to links are different, depending on which website is being used. I am not dumb or blind after all.

    Edit to add: And now I see that it's also linked to fibromyalgiasupport.
    [This Message was Edited on 11/23/2002]
  12. teach6

    teach6 New Member

    It seems to me that with all the cognitive problems associated with both CFS and FM we should all be able to access the same info the same way. Why in the world would you not be able to get to the co-cure list when you come on through chronicfatiguesupport,com, which is the way I have always accessed this page since CFS is my primary problem?

    I have enough trouble some days just figuring out simple things. It should not take a lot of detective work to find the link.

    I used to tell newbies to go to the link. Then I discovered it was not there any longer. So now I guess the only option is to go to the list on my own and copy the names from the list of docs in their state. That is a lot of work, when it used to be easily done through a couple of mouse clicks!!!

    Barbara
  13. amymb74

    amymb74 New Member

    And right there was the link to the good doctor list - hit it & took me right to co-cure list - maybe the problem was fixed?
  14. Grams

    Grams New Member

    The problem is NOT fixed.

    When the message boards are accessed through ProHealth, there IS no "doctor referral" at the top of the page to click on.

    When the message boards are accessed through
    "chronicfatiguesupport", the doctor referral button does NOT lead to a list of doctors, just information about how to find a doctor.

    Likewise, when access to the message boards is through
    "fibromyalgiasupport", the doctor referral button leads only to general information, NOT a list of doctors.

    The doctor referral list can be found ONLY when accessing the message boards while using "immunesupport".

    When instructions on finding the doctor referral list are read by those of us using "prohealth", they DO NOT WORK, we are only lead around in circles, and are lead to believe that we just do not see the link.

    The link to the co-cure doctor list is accessed ONLY while using "immunesupport". I've always wondered what co-cure was when I saw people refer to co-cure.
    [This Message was Edited on 11/23/2002]
  15. Grams

    Grams New Member

    Stormy, when I look at the url of this page where I am posting, it's prohealthnetwork.com, not fibromyalgia.com. There's also no link for me to click on.
  16. amymb74

    amymb74 New Member

    I thought the only way to access this sit was thru immunesupport.com - I thought it was formerly prohealth.com & the store was just called pro health. Sorry about that..Amy
  17. Milo83

    Milo83 New Member

    I checked your profile and found the ones listed for the state of VA..Hope I have helped you some......

    Take Care........Best Wishes...........Donna

    Virginia, USA CFS/FM Good Doctor List

    (Last Revision: November 24, 2002)
    Additions and deletions to Co-Cure Moderators
    [Co-Cure-Mod@listserv.nodak.edu ]



    This document represents, primarily, a listing of doctors as recommended by and for CFS/CFIDS/FM patients; sorted by country, state/province/region, and city. Any physicians who has asked to be included because of their personal experience with CFS and/or FM patients are clearly identified as being "Self-Referred".




    --------------------------------------------------------------------------------

    DISCLAIMER: The "CFS/FM Good Doctor List" is provided as a convenience to CFS/CFIDS/FM patients. Co-Cure has not verified any of the information submitted for the purpose of inclusion on this list and provided herein as to accuracy nor professional standings. As always, patients should check with local/regional agencies that monitor physicians prior to engaging services/treatment.

    NOTE: This list is not to be reproduced in part or whole with the intention of use for profit.




    --------------------------------------------------------------------------------


    VIRGINIA, USA CFS/FM GOOD DOCTOR LIST


    Aldie, VA
    Norman Levin, M.D.
    39070 John Mosly Hwy.
    Aldie, VA 22001
    Tel: (703) 260-3484
    (Internal Medicine, Rheumatology, Nutritional Medicine)

    Centerville, VA
    The Dulles Pain Management Center
    Dr. Joseph Statkus & Dr. Stephen Whittman
    13890 Braddock Road
    Centerville, VA 20121
    Tel: 703-449-8720
    (These doctors not only treat FMS/CFS but they treat all types of chronic pain.)


    Falls Church, VA
    Celeste P. Campbell, Psy.D.
    7202 Arlington Blvd.
    Falls Church, VA 22042-1859
    Tel: (703) 207-0347
    (I was referred to this Neuropsychologist for the battery of 12 tests needed for CFIDS. I found her to be warm, friendly and knowledgable. Her report was concise and to the point and was what I needed to help with my SSDI.)


    Portsmouth , VA
    Stephen E. Plotnick, M.D.
    Board Certified Rheumatologist
    500 Rodman Ave. Suite 1
    Portsmouth, VA 23707
    Tel: (757) 393-3430
    (FMS. "He is very knowledgable about FMS.")


    Reston, VA
    Dr. Samuel Shor
    1760 Reston Parkway
    Reston, VA 20190
    Tel: 703-709-1119
    ("I can't say enough good things about him. Dr. Shor is an internist who specializes in the treatment of CFIDS and FM. He is knowledgeable, thorough, and very easy to work with.")


    Weyers Cave, VA
    Bart W. Balint, M.D., D.A.B.A.
    Balint Pain Management Center
    Weyers Cave Clinic
    447 Weyers Cave Road, Suite 101
    Weyers Cave, Virginia 24486
    Tel: (540) 234-0080
    FAX: (540) 234-8688
    E-Mail: dr.b@balintpainmanagement.com
    Web site: www.balintpainmanagement.com
    (Note: Self-referred to the list.)



    Return to Good Doctor List Index

    Return to Co-Cure
  18. teach6

    teach6 New Member

    Thanks so much for taking care of this. I'm glad my persistance paid off.

    Barbara
  19. Grams

    Grams New Member

    I'm going to email about this, but the doctor referral list isn't at the top of the page when I access using the following URL:

    http://www.diabeteschat.net/forums/index.cfm?B=FM

    The diabetes site is the one I have bookmarked.

    Edit to add that I just sent the email:)
    [This Message was Edited on 12/19/2002]
  20. teach6

    teach6 New Member

    You may not be able to access it from diabetes. com because the Co-Cure list is for CFS and FM only. Just a thought.

    Barbara