Gossiping doctors? Problem patient?

Discussion in 'Fibromyalgia Main Forum' started by GinnyB, Mar 9, 2007.

  1. GinnyB

    GinnyB New Member

    I've had fibro for 12 years now and thought I'd heard all the abuse drs can dish out, but this one beats all.

    I have 3 doctors in the same medical building, floors 1, 2, and 3. The gastroenterologist was pleasant at first (heck, they all were), but then said he'd conferred with my docs at Hopkins and they said I no longer had collagenous colitis, there was nothing he could do for me, come back only when I was really sick, like with symptoms of colon cancer.

    I saw another doc in the same group (we only have two gastro groups here, and I'd worn out my welcome at the other one years ago) who told me I could take 24 immodium a day for two consecutive days. I took this dose several times and it didn't seem to hurt anything.

    Doc number 3 in the group was horrified to learn I sometimes took this much immodium. He did a colonoscopy and biopsy that showed I do still have collagenous colitis and put me on entocort. My last visit I was doing well, so he told me to come back in June and he might lower the dose then.

    Well, of course, the day after my appointment with him I had the flare of all flares. After I phoned him twice his nurse called back and said to stop taking immodium for the diarrhea, that's probably what's making me constipated the days I don't have the big D.

    Doc number 2 in the building is a hypertension and kidney specialist. My family doctor referred me to him with suspected renal arterial stenosis. No 2 refused to see me, just prescribed a diuretic over the phone. My blood pressure was hovering around 205 over 100.

    Doc number 1 in the building was my cardiologist. Tests showed my heart was enlarged, but he also refused to see me. When I finally was able to sneak in an appointment, he was mad at wasting his time, told me he had conferred with Doc 2 and to go home and stop worrying.

    Fortunately, I was able to change cardiologists and kidney specialists, and I'm still only borderline for diseases of both those organs.

    Yesterday I got one of my typical spells--after I ate breakfast I had diarrhea non-stop for 40 minutes, I was dizzy with pressure on top of my head, sweat poured off me (30 degrees out side and I turned on the AC), lots of pain and nausea. I'd left my phenergan upstairs and was too sick to walk up and get it. After about two hours everything cleared up, and I was MAD. Furious.

    I got on the Univ. of Pennsylvania website and made an appointment with a gastroenterologist there who seemed to fit my needs--his clinical interests are inflammatory bowel disease and unexplained diarrhea.

    While I was at it, I also made an appointment with a dermatologist who is interested in immunodermatology. I have sores on my chin and elbow that have been there for months and are getting worse. Three dermatologists here have said it's itchy skin, put me on antihistamines, and said it will clear up when the summer humidity sets in.

    The dermatologists I'm not sure of, but I'd swear those first 3 docs got together at the water cooler and swapped notes about their problem patient.

    I hope the new docs are at least some help, but I'm beginning to wonder if I really am a problem patient. Is there something about me that just p---es doctors off?

  2. 139864

    139864 New Member

    NO !!! it's isn't you .
    I have had the same problem with all of my doctors here in the UK . I finished up making a formal complaint against my gastro ,but it could just as easily have been my pulmonary Prof. I KNOW THEY WERE IN CAHOOTS !
    I told this to my GP ..(He lets me rant because he knows that I am right ). I told him .. "AN ounce of common sense is worth a book full of knowledge " and that is what these Dr/s lack .They may be academically brilliant ... but NO COMMON SENSE .
    So I do empathise with you
    Best Wishes
    Brenda UK
  3. Shalala

    Shalala New Member

    My DR only wants to send me to the people they use. Well ... I am breaking ranks lady! lol After 7 years of messing around with you ... I am going to a GOOD DR that I found through other fibroites (FMS). I think sometimes they (DRs) get their little "network" together and keep sending us to their buddies (like being stuck on a merry-go-round). Her buddies are not helping me ... just like her. I am requesting my medical records from her and also from the physical therapy place (that is where I found out that I probably have FMS). If I am facing a life of suffering, I want to hear it from the best in this area. I am also going back to a shrink (to regulate anti-depressants). Unfortunately the one I went to about 22 years ago who first diagosed me with depression (said my fatigue was probably due to depression) is probably retired. My PCP said that many pyschiatrists no longer take insurance? Is that even legal?

    Have you gotten a copy of your medical records? Some of the nice peeps on here said there is a cost (avg .75 cents/page) but I want to see them. My PCP said ... we will fax the other DR what they need. It was like she was trying to talk me out of getting my records.

    Good luck.
  4. GinnyB

    GinnyB New Member

    Thanks, everyone for your support and for letting me vent. I don't have an insurance problem, not since I'm old enough to be on Medicare. I think my PCP would prefer to make referrals, but I have the freedom to choose.

    Shalala, thanks for the tip about HIPPA. If any of these jerks gives me a hassle about records I'll use it REAL quick.

    My brother says these docs think they're so smart, then we come in and they don't have the answers, so they play blame the patient. Maybe it's time we all fight back. What do you say we unionize? Just kidding.

    Thanks again,


  5. Shalala

    Shalala New Member

    Well ... I'll HIPPA them if they don't get A HOPPIN'. lol I am truly FED UP! I have things going on (some could be quite dangerous) that she (PCP) should have referred me to specialists MANY years ago. Grrrrrrrrrrr I have to get a hold of STD lady to make sure I got an extension. I was supposed to go back to work tomorrow and I am far worse than I was 4 weeks ago. There is no way I can return to work.

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