Got Some Famvir Today

Discussion in 'Fibromyalgia Main Forum' started by Mikie, Jun 19, 2003.

  1. Mikie

    Mikie Moderator

    Today, I saw both my PCP and specialist. My PCP gave me ten days' worth of Famvir at half the dose I was on before when I went into complete remission. He wants to see if we can achieve the same remission at half the dose. At the end of the ten days, we will re-evaluate the treatment.

    I don't know whether it is better to pulse the antiviral treatments like one does with the antibiotics or not. Anyone here on an antiviral drug? Do you take it on an ongoing basis or do you pulse it?

    I have been running a low-grade temperature both times I've been in to see the specialist and he suspects a reactivated EBV, but I'm guessing HHV-6, not that it matters to me. I just want to get well.

    I'll let y'all know how this round of Famvir goes.

    Love ya,

  2. Mikie

    Mikie Moderator

    I went into complete remission while I was on 250 mgs. twice a day for ten days. After I quit, the symptoms slowly returned. Now, I feel fluish and am running a low-grade temp.

    I would suggest 250 mgs. once a day to see how that affects the patient. You can always go to twice a day. I will let you know how I am doing on the once-a-day dose. I did have quite a Herx Effect from the last round, so I know that works. Famvir comes in 100, 250 and 500 mgs.

    Madwolf, do you have any idea how long one should take the Famvir or should we just pulse it like one month on and then see what happens and go back on if our symptoms return. Again, we're workin' in the dark here.

    I told my specialist about you. He is very excited for what we are doing here. I'm taking brochures to his office for him and his patients. He is truly one of us even though I don't believe he has this. He's upset with docs who do nothing for their patients. He gets excited whenever we get some press, and he loves learning from his patients. He is polite, sweet, respectful, and listens. How luck am I!

    BTW, all the articles I read talk about getting HHV6-specific transfer factor if you test pos. for that. I think it has to be made up by a compounding pharmacy. The articles also mention using things like whey and colostrum to keep the viruses in their latent stage after the antiviral drugs have put them back into latency.

    Love, Mikie
  3. Mikie

    Mikie Moderator

    Betsy, I appreciate your post. In all the articles I have read, none have stated how long one should take the antiviral drugs and whether they should be pulsed.

    Jelly, when I say complete remission, I mean absolutely no pain, tons of energy, no memory or cognitive problems and feeling like a million bucks. It was as though I had never been sick a day in my life.

    I Herxed about day two or three. The remission lasted about a week after that even though I had just had surgery. The symptoms slowly started to reappear once I was off the Famvir. I would not have believed I could feel that good again.

    My Doxy only gets rid of some of my symptoms and has not been able to get rid of the fatigue and cognitive problems. It has gotten rid of the IBS, chronic sore throat, migraine-type headaches, and until recently, the low-grade temperatures. They are back again and I believe it's due to the Herpes infection.

    BTW, did you see my response to you about your doc's neuropathy sores? The hyperbaric chamber will help them heal. It's really dangerous to let them go; it can lead to amputation.

    Love, Mikie