Growth Hormone Therapy?

Discussion in 'Fibromyalgia Main Forum' started by PhoenixRising, Aug 17, 2003.

  1. PhoenixRising

    PhoenixRising New Member

    I think I remember reading somewhere about growth hormone therapy helping with FM...anyone know about this?

  2. hollie9

    hollie9 New Member

    I went to an anti-aging doctor and was injecting about 40 mg humatrope daily. The only way you can do HGH is with daily injections, any oral or other so called precursor products are cons.

    The first three months was like a miracle, I completely recovered from CFS! Then it came back just like before although I did not change my routine or anything, kept injecting as before.

    I quit about 4 months ago because I gained about 20 pounds although I was eating almost nothing. It does have a side effect of water weight gain. Most normal people lose weight on it, I suspect it could have been effected by the Doxepin I was taking then. Now that I've quit Dox I may try it again and see if I gain weight.

    It really did a great job on my blood tests, lowered my cholesteral, c reactive protein, across the board many improvements in blood tests.

    There are a lot of people with FM that inject it and from the ones I know, they have intermittently good results and sometimes not.

    It's very expensive and won't be covered by insurance.

    It makes you more muscular and you need to exercise lots and eat low carb diet for some insulin reason.


  3. Mikie

    Mikie Moderator

    The oral products stimulate the body to make its own Hgh. It's just that they are nowhere near the strength of the injections which are synthetic Hgh itself. I have used the oral products which have improved my skin, energy, weight, and libido.

    The advantage of the stimulants over the injections is that the oral products do not increase he risk of cancer.

    Love, Mikie
  4. steach

    steach Member

    The Human Growth Hormone (HGH) can be measured by a blood test called IGF-1; the results are measured by the Tanner Stages I, II, III, IV, V. My level was 144 for a 38 yr old female. There is a mathematical formula to determine the level which is appropriate:

    Age-30=N Here's mine 38-30=8
    3xN=3N 3x8=24
    280-3N=_____ 280-24=256

    My level should be around 256; however, it is only 144
    Anyway, doc did the reverse computation to find out at what age someone would be at a level of 144:

    45 1/3 =N
    To summarize, my level is that of a 75 1/3 year old person!
    HGH levels, when low, make us feel older than we really are!
    This contributes to chronic fatigue symptoms.
    My ins co won't pay for the treatment which would cost me $1018 a month! I can't afford this so I haven't started on it(Humatrope or Nutropin).
    There is a product available through ProHealth called VesPro GHS- it is a 'secreteagoge' something that stimulates your pitutiary into making this hormone naturally.
    I went through having an Argenine test done by an endocronologist(injections of argenine every half hour, then blood was drawn to measure the levels of HGH. Since my body will produce HGH when stimulated, the ins co can't justify paying for it. The question is, how do I stimulate it and with what to produce it? So I am trying the VesPro GHS now. Haven't been on long enough to tell.

    Hope this has been of help for you.

  5. sofy

    sofy New Member

    Im 59 and my gh1 is 51 so after reading your formula over and over I finally got it into the brain and did the calculations and I am 117. Now why am I laughing out loud? Cuz if I dont laugh I will have to cry and where will that get me.
  6. Mikie

    Mikie Moderator

    ProHealth sells the IGF supplement which is the byproduct in our bodies of the Hgh.

    If you do a search for Lakediver, she tells in her posts about getting the Hgh paid for by the pharmaceutical company. I assume it's on a basis of qualifying financially.

    If you go the injection route, be sure to choose a doc who knows what he is doing and will carefully monitor you for cancer as the injections raise the risk if you have any cancer in your body.

    Love, Mikie
  7. lucky

    lucky New Member

    What GHT product are you taking? Would be interested to know, Lucky.
  8. Mikie

    Mikie Moderator

    It's one I bought at the healthfood store. Actually with everything going on lately, I haven't been taking it. I want to use it up and try either the Hgh oral stimulant sold here or the IGF-1 which is sold here. I'm kinda thinking that the IGF-1 would be easier for the body, but on the other hand, if the Hgh stimulant would cause the body to increase production of Hgh, it might resume production if stimulated. As you can see, I'm going round and round on this till I finish off the stuff I have. What I have is not the best I have tried, but I had to give up the original Hgh stimulant because they started to put Ginkgo in it and I can't tolerate the Ginkgo. I can't even remember the name of what I was originally taking. I don't recommend the brand I am now using as it's not very strong. I would try ProHealth's as their products have all been very good so far.

    Love, Mikie
  9. KayL

    KayL New Member

    My IGF1 level is only 70; I'm 47. I had the stim test and it showed that my pituitary *does* work, however I'm not getting the production of the hormone as it should be.

    I tired Pure IGF for a few months, noticed no difference in the way I'm feeling whatsoever. I haven't been back to the endo to have my levels checked again.

  10. nickname

    nickname New Member

    .....the ProhGH Nutraceutics brand? Just about to start on this when it arrives. Apparently we need some growth hormone left in the pituitary reserve so that secretagogues will stimulate our own production. None in the reserve, and it won't work. The argenine stim test will test for whats in there. Safer than HGH too - hope it works.

    best wishes
  11. hollie9

    hollie9 New Member

    There is a substantial body of research and some very qualified specialist doctors that back up the theory that these oral precursors do not work and are a con. There is no evidence that HGH injections cause or escalate cancer.

    I'm the person that posted above that took HGH injections for 9 months. I am on some GH groups that discuss these things at length. Too bad no URLs can be posted here because you really ought to see the research and message boards from people on GH, especially the FM ones.

    Also, the formula for proper IGF1 levels is not believed to be accurate by many doctors, they believe it should be much higher than your actual age indicates. The anti-aging doctor I went to goes by the IGF-1 levels of a 28 year old as the goal level. The people taking GH on the sites mentioned above also want their levels higher than their age indicates.

    You can try to google Rejuvenation GH to lead to the above research and info.

  12. lucky

    lucky New Member

    I have never tried the GHT therapy and was also wondering if there is IGF 1 in the Colostrum I am taking.
    I got tested for IGG, IGA and IGM and have a copy of the results. My doctor claims that everything is o.k., and I have no clue how to read the figures and depend on his judgement.
    If there is an IGF 1 defiency is that not the reason why most of us have all these allergies? So, I am a little confused suffering from so many allergies and the doctor telling me that my tests were o.k.
    I have been battling the allergies with the OLE successfully up to now and my abdominal pain due to diverticolosis. But, all of a sudden I am in quite a bit of pain and believe that there is an inflammation in my colon again, so I will see my doctor on Wednesday because I am more fatigued than before.
    I will look into the GHT which are available on ProHealth, anything which promises and makes sense to give the system a boost is welcome.
    Thanks for your reply, and I hope that you are starting to feel a little better. I wonder if the heat has an effect as well, I for one am a basket case with high temperatures and high humidity which we had a lot lately.
    Take care, sincerely, Lucky
  13. Mikie

    Mikie Moderator

    If you want to post some articles here, it would be great as long as they are not copyrighted and you give the source, just not the URL. I heard an eminent immunobiologist speak and he mentioned that at the time most docs were not using the injections because of the increased cancer risk. If further research has show this not to be true, great. Problem with studies is that a lot depends on who is financing them and who stands to benefit. That said, however, I would like to see the results. How many studies are we talking about?

    Docs are often skeptical of supplements and pooh pooh them as a con. We are all used to this. Look at Dr. Bennett and how he slams the Guai treatment and yet, so many of us have benefitted. I know for a fact that when I have used the stimulants, they have produced results. Not huge results but improvement. I judge by whether or not a product helps me. I do not think there is one magic bullet for most of us but every little thing we do helps a little. Until there is a cure, I will just do whatever I can.

    Love, Mikie
  14. Mikie

    Mikie Moderator

    Go to the store and click on the c and then click on colostrum. There is a whole explanation about what it contains. It says it contains IGF-1 and goes on to tell how this product protects the intestines. I take colostrum every day along with ImmunPlex which Dr. Cheney recommends.

    I am pulsing the Famvir and am off of it right now. If I cannot get it to stop the chronic viral infections, I will consider the Transfer Factor C. I firmly believe that we simply cannot get well until our infections are under control and any deficiencies are addressed.

    Good luck to you.

    Love, Mikie
  15. hollie9

    hollie9 New Member

    Are you saying to cut and paste the whole articles and research papers here?

    I took pharmaceutical Colostrum (Schering Plough) for about 6 months, I didn't notice it doing anything for me or my non-CFS/FM husband.

  16. PhoenixRising

    PhoenixRising New Member

    Finally something I know a little about! GH has been under scrutiny as it ties in with cancer risk. There is no proof that it does. There are many kinds of cancers and tumors that are triggered/fed by different things. My son was on GH for years for his brain tumors. He has had recurrences before he was on it, when he was on it and has been off it for over 2 yrs and currently has two active brain tumors. Because of my long time involvement with kids/cancer I know numerous people who take GH and I know that throughout our lives, we do need GH because it protects and supports various parts of our bodies. In fact, thats why I brought up the subject of GH. I am interested and I know that in my son's case the GH deficiency was justification for the insurance company paying for it.

    In all my reading over the past 8 yrs, I havent seen or read anything that links cancer to GH. BUT, if a person already has cancer and the cancer is one that responds to GH then that person has to discuss potential dangers with their endocrinologist or oncologist. In such as case I would not even use over the counter things without medical advice. The same goes for herbal treatments.
  17. hollie9

    hollie9 New Member

    I'm not sure I understand, your son got a brain tumor after using GH? Then he continued using GH and got a second brain tumor? Are you saying GH was bad for him or good for him? How about you, do you want to take the injections?

    To my knowledge, and I've been checking, there has been no study linking GH and cancer. In theory, since GH causes muscle growth and increased height in children, then it could cause existing cancer tumors to grow.

    There was a small study done, not in the US, where out of 1800 people that had been given GH as children, 5 died of cancer and 2 of colon cancer. These children were given the old fashioned cadaver GH. Although the researchers concluded there could be a link it doesn't seem that this percentage of cancer deaths is out of line with the general population. There were some other aspects of the study that were flawed.

    Lots of FM people taking GH for better sleep, less pain, increased energy, increased muscle, and weight loss. I am one of the sorry CFS people who didn't get the weight loss but got weight gain. But I will start injecting again now that I've quit Doxepin, which could have thrown it off. Oh, almost makes your skin better, wrinkles disappear.

    [This Message was Edited on 08/18/2003]
  18. PhoenixRising

    PhoenixRising New Member

    My son was diagnosed with recurrent brain tumors. The surgery destroyed his pituitary and subsequently, he stopped producing GH among other hormones and GH a few years later he was put on GH. He had a recurrence even before he began GH therapy. He also had a recurrence after and when he was taken off for other reasons, he still had another recurrence and now still has two inoperable tumors. I have known lots of kids and adults on GH who had brain tumors in the past and have not had recurrences. So from what I have read and what I have seen, I dont worry about GH and cancer. Thats why if it would help me, I wouldnt hesitate to use it.

    There is a support list for Adults GH users and its called The Magic Foundation. Tons of info from them.

  19. hollie9

    hollie9 New Member

    Do you have CFS or FM?

  20. Mikie

    Mikie Moderator

    Phoenix, I am so sorry for your son's tumors. I will send up a prayer for him and for you.

    Hollie, yes it is permissible to post articles here that you have cut and pasted. One at a time please and not a whole bunch all at once.

    I was not suggesting that iHgh causes cancer, but I do not think it has been proven either way whether the iHgh will cuse growth of certain types of cancer. At this time, I would have to be very sick and the iHgh would have to be offering me very good benefits in order to do the injections. How long does one have to do the injections? If you stop, do you lose benefits?

    I think this info would be of inteest to our members. Is there anyone else out there who has used the oral types of either Hgh or the stimulant? What about IGF-1?

    Neither the colostrum nor the whey or other immune enhancers usually provide a marked increase in energy. This is a mistake people often make. These are to build the immune system back up and program it to identify and kill off pathogens. In the long run, having a better immune system will add to energy, but it's not going to happen in a couple of months.

    This is where the iHgh has an advantage. It works at a much higher level in the body than any supplements. I just would need to be really sick at this time to take the risk and the cost is prohibitive. This does not mean it would not be the right thing for someone else. It also does not mean I would not consider it down the road.

    In the meantime, I am slowly getting better with what I am doing.

    Love, Mikie