GRRRRRRR..........SO FED UP!!!!!!!......

Discussion in 'Fibromyalgia Main Forum' started by HOUSEOFBLUES, Nov 3, 2002.

  1. HOUSEOFBLUES

    HOUSEOFBLUES New Member

    Last time I posted about my recent blood tests and that my ANA test now came back Negative and my SED RATE was up over 140.
    My Primary Doc sent me right away to the Rheumy.
    Well.......
    Here's what I was told by the (s.o.b) Rheumy during the course of my visit:

    "I don't believe this sed rate is correct. It's impossible for it to be this High."
    "Don't bring me anymore of these ANA test results because they don't mean anything to me."
    "There is nothing I can do for you. I've told you to exercise and lose weight". Go get a girlfriend and go work out at the gym".
    "I cannot give you Oxycontin because it's a narcotic and I only give it to my patients who are in pain". (????)
    "I have over 200 patients who have Fibro and they all have
    the same complaints as you".

    His stand on SSDisability: "Well.....By Law I guess I'm REQUIRED to help fill out forms."

    I am now in the process of finding myself a new Specialist,
    and, possibly a new Primary Doc too.

    HOUSEOFBLUES
    Where have all the Good Docs Gone??????


    [This Message was Edited on 11/03/2002]
  2. HOUSEOFBLUES

    HOUSEOFBLUES New Member

    Last time I posted about my recent blood tests and that my ANA test now came back Negative and my SED RATE was up over 140.
    My Primary Doc sent me right away to the Rheumy.
    Well.......
    Here's what I was told by the (s.o.b) Rheumy during the course of my visit:

    "I don't believe this sed rate is correct. It's impossible for it to be this High."
    "Don't bring me anymore of these ANA test results because they don't mean anything to me."
    "There is nothing I can do for you. I've told you to exercise and lose weight". Go get a girlfriend and go work out at the gym".
    "I cannot give you Oxycontin because it's a narcotic and I only give it to my patients who are in pain". (????)
    "I have over 200 patients who have Fibro and they all have
    the same complaints as you".

    His stand on SSDisability: "Well.....By Law I guess I'm REQUIRED to help fill out forms."

    I am now in the process of finding myself a new Specialist,
    and, possibly a new Primary Doc too.

    HOUSEOFBLUES
    Where have all the Good Docs Gone??????


    [This Message was Edited on 11/03/2002]
  3. woppini

    woppini New Member

    I dont think there are any good ones left. The ones now got on that HMO gypsie wagon... damn shame really. Hope you find a good one that believes in you. Makes it all that more devastating when you cant.
  4. donmia

    donmia New Member

    You need to find a new doctor. One who is a little more compassonate.My ana is positive and my sed rate is uaually between 60 and 75. My rhuemy tells me that the high sed rate indicates pain. So how can that dr. just leave you hanging. Good luck and hope you get some relief soon.
    Donna
  5. Cactuslil

    Cactuslil New Member

    Your ANA, whether positive or negative, is limited in actually determining whether you have collagen-or-collagen type diseases such as rheumatoid arth., systemic lupus et al. There is a good site on the web with a flow chart as a guide to use regarding what a positive or negative ANA may mean. It is used frequently in immunologic studies.

    As for the sed. rate. I had begun steroids so therefore I have never had a valid one run now in over 6-years.

    Don't feel discriminated against however; I went to a cardiologist, internist, et al before being clinically diagnosed.

    As far as disability, the Adj. Judge is interested in symptoms; so go in there belching, farting, unable to sit still, moan and groan, get the dry heaves, have a royal case of IBS and that will catch the Judge's attention!

    If you don't need the care of a rheumy or if you are resistant to following his protacol, don't get yourself upset; find out why and move on to a physician you can believe in and vice versa. Best wishes. CactusLil'
  6. karen2002

    karen2002 New Member

    Please don't give up--there really are some good docs out there. I have been exactly where you are. I know how frustrating it is. I found that if I interviewed the receptionist prior to making an appointment, I didn't waste as much time, and energy. Take a deep breath--forget that jerk, and keep looking.
    Best wishes, Karen
  7. dlizard

    dlizard New Member

    are a "good for nothing" group of medical practitioners... short of hanging out a sign, they don't do much for anyone that they treat... think about it.... Good luck!
  8. pam_d

    pam_d New Member

    Do you know of a local support group in your vicinity? I found mine by online search & I swear, it's the best way to find out which local docs really work for FM/CFS patients & which to steer clear of. Even if you aren't a "joiner" type, if nothing else, you'll come away from that first meeting with names & phone numbers. The co-cure "Good Doc" list has helped others here, but it was useless for me; I'm not in a huge metropolitan area, & there was outdated info on it (like a doc who no longer accepted FM patients). But I found doctors thru my local support group.

    Good luck to you, I am in total sympathy with your frustration in this, and we've all probably heard at least half the comments your doctor said!

    Hugs,
    Pam

  9. HOUSEOFBLUES

    HOUSEOFBLUES New Member

    I guess I just needed to vent my frustration.....
    Good advice about looking at the AMA WEBSITE. I forgot about that one. Also looking up a support group in the area sounds interesting too.

    LOVE,
    HOUSEOFBLUES
  10. dbirdman

    dbirdman New Member

    You are certainly not alone in your experience with doctors. I think that having spent many years searching for a competent doctor should be considered as a symptom in determining our maladies, as everyone on this board probably has, or will, go through two or three dozen before finding someone that actually takes an interest in you, the patient. I have some neurological issues in addition to CFS, so have bounced back and forth between regular doctors, neurologists, therapists, psychologists and psychiatrists. After my first visit with one therapist, she looked at me and said "Well, I don't know what to do with you" - at least she was honest. One psychiatrist barely stayed awake during my sessions, and when he spoke, it was very slow and monotone - he was like Mr. Rogers on valium. He suggested I read a book, then after hearing my issues on the next visit, told me to "Read Faster". These are true, and I could probably go on for a while with others.

    My opinion of most doctors puts them in the same class as cattle-herders. They keep the cows healthy enough to make them their money and keep the ranch-owners happy. If a cow has the runs, give em a de-wormer and keep em moving. A cow's flank cut on some razor wire? Well, slap some salve on it and keep em moving. MOOOOOOOO

    I go through cycles where I get so sick and (you guessed it) - tired of going to doctors with the hope of finding real solutions to real problems, and instead coming away feeling guilty, like my pain or fatigue is not real. Like I wasted their time with my (imagined) woes when they could be doing something really useful, like sewing up a cut, or giving a flu shot, or casting a broken bone, or shopping for that new Mercedes.

    As hard as it may be, you have to brush off that idiot 'doctor' you described, re-focus, do not get discouraged, and keep looking until you find a true qualified, caring doctor that can give you the attention and assistance you deserve.

    Regards
  11. Cactuslil

    Cactuslil New Member

    having to practice medicine in a manner they did not ask for or want! The result is many if not most, look at the patient not in terms of what can they do to give the best treatment available but in terms of what terms the insurance carriers sold their packages to business', including the Medicare and Medicaids of this country. It is disheartening for all concerned except perhaps the insurance industry!
    *
    Even the docs live in paranoia at this point. After going 14 months w/out treatment due to poverty and no SSI decision, AND if you live in this south texas county there is no indigent program as our county hosp. is paid off and therefore not HRSA and therefore does not have to offer anything beyond treage' and call for a helicopter to ship your traumatic body off; if a lesser ailment, they will tell you to go to this town or that where they have indigent clinics...like we all had cars? Anyway...
    *
    Once I prevailed and received the keys to the SSI kingdom I was truly blessed to be accepted by a primary care physician who, though trained in Family Practice, elected to take on my complicated case. Fortunately for me, as I do have an active conscious, the plan I selected, and only offered to SSI receiptants, pays him for each visit; the other plans pay $18.50 per patient no matter how many visits one makes....this is Texas regular Medicaid! In my county docs take only 5 patients receiving either or Medicaid or Medicare;

    I don't know where you live, I know where Roomful of Blues is from, I spent my 40th birthday partying w/them in Austin, TX, but the insurance cos. can make life a living hell for the docs and w/psychiatrists (two longtime friends) the pressure to join w/HMO's is terrific. One of them finally gave in and joined up the other remains in private practice. The whole thing concerning patient care is a nightmare for any compassionate physician who must choose who he can afford to care for and where the line, that red or black one, must be drawn. This is compounded by insurance carriers who switch big cos. such as Motorola, to a different plan, leaving the former participating doc with 200 less patients overnight!

    Medications. Another story and it is not a very pretty one either. One has to be pretty bankrolled to afford what insurance often excludes. Some say I'm paranoid but I am not! I have been where you are and it hurts. I am still licking my wounds from a couple of years back when my long-time trusted doc ceased to honor our patient-doc relationship and would not even meet me face to face to help me understand why. The reason? Professional Liability insurance. He was at fault for prematurely putting me on Pred. and feared I would sue and should I have chosen to do that, his rates would have gone up.

    We really need to pray for those entering the profession. The doc I have now is a blessing and I try to be as considerate to him and his staff as possible. I learned my lesson well with my long-time doc; management of assets was his reason for dumping me and I still grieve over losing a doctor I trusted; even errantly. Hang in, surely there will be a positive change but we will probably have to vote that change in and look at the $ insurance lobbiests have compared to "us" again....love Cactus;
  12. poodlegirl

    poodlegirl New Member

    Actually the sed rate is an indicator of inflammation in the body used to determine inflammatory diseases such as RA and others, not used in determining pain as you replied back to houseofblues. Boy, wouldn't that be a test! If docs could determine pain! We all would be off the chart!LOL! :p
  13. Kathryn

    Kathryn New Member

    is such fun! I am fortunate to be eligible for Tri Care (military), but my current doc does not accept it. I found one who is actually closer to home, whose office says is very good with FMS patients, but she will be out on maternity leave until January, so I still haven't met her. So far, State Industrial is still paying my medical bills, but they stopped my prescriptions. I am waiting not only on SSDI, but also to learn whether my claim with workers' comp is accepted. I would try to find a support group and get a recommendation from them. It sounds like you really do need to switch doctors. I hope you find someone soon. Until then, try to keep your chin up. We care!!!!
    Kathryn