Guai Ladies Breaking News Pancreatic Inflammation

Discussion in 'Fibromyalgia Main Forum' started by janieb, Jul 7, 2006.

  1. janieb

    janieb New Member

    Hi, gals,

    Haven't been on line for awhile. Last Sunday I didn't feel well at all; Monday all day the same; so that night, husband took me into Urgent Care.

    He had insisted I pack a bag, because he was sure they would hospitalize me. I was just as sure they would check it out and have me come back for some tests later.

    He was right "this one time." They did some blood tests and an x-ray and insisted I go to the emergency room at the hospital. The blood tests were extreme. Levels for the pancreas(not sure about the spelling) were many times what they should be. I could be more specific, but I'm at the hospital and don't have the information with me.

    At least, they've now given me every test they can here and can't find a reason, so after not eating or drinking from Sunday through Thursday, they have the levels down. Now I just have to eat two low fat meals and not become ill and they will let me go home tonight. I'd been on a morphine pump until yesterday; now they're using pain meds I can swallow.

    I know my guai schedule is really screwed up and God only knows what they've used on me or what's in it. Looks like I'm starting over.

    Hope to be home tonight, so will correspond then. Is this a common problem with fibro? Wondering if there's a link?

    Bad job of communicating, but my head just isn't on straight.

    Any information about how common this combination is, I'd like to hear about it.

  2. Smiffy

    Smiffy Member

    This sounds horrible, I'm sending you a big hug & best wishes for a fast recovery. x
  3. IntuneJune

    IntuneJune New Member

    From your title, I thought your post was going to say there now is found a relation between long-term guai use and pancreatic inflammation.

    You really have been though a lot lately, keep us posted.

  4. Mikie

    Mikie Moderator

    Good grief! This sounds scary. I hope and pray all will be well. Don't worry about the Guai right now; there are bigger issues to be handled. Keep us updated on how you are doing.

    Love, Mikie
  5. bigmh

    bigmh New Member

    Janieb....I'm visiting my daughter so am late in replying, but I want you to know that you are in my prayers. Take care, and tackle the guai when you feel better. So sorry for all of your misery!

    Love and blessings, Ann
  6. Dee50

    Dee50 New Member

    I'm so sorry you are having this problem. Hope you can get home very soon. I'm praying for you. Don't worry about your Guai you can start up later.Take care
  7. janieb

    janieb New Member

    of how bad I felt at the time.

    I came home last night. With all the tests, all they found was a cyst in the pancreas. It could have been what caused the problem. They don't know. The solution was to have no food or water for several days. The put a water IV in and a morphine pump, so I could get medication any time I needed it. Never had one of those before.

    Nothing fits the criteria. The articles say that most people who get this are men and alcoholics. I do drink, but I don't remember the last time. That kills that. The second most common cause is gall stones and the solution is to remove the gall bladder. I was sincerely hoping that was it.

    The enzyme counts went down as I continued not to eat. Then they started me out on jello, etc. and then on to a low fat diet. If the counts did not go back up again, I could go home. That obviously, is what happened. I thank God!

    Now I wait at home for two weeks and then go back to the specialist for blood tests and whatever. If I should start to feel bad again, I call him. I'll take lots of prayers.

    One of the problems caused by this is an unexplained weight loss. I'm 5-9 and my weight had dropped to 110, but because we don't have a scale, I didn't know that. We need to get that up, so I don't look like a skelton anymore. I'm thinking the lowfat diet is going to make it difficult.

    Anyway, you will all be amused that when they brought in wet-wipes the first day, the first thing I did was look at the list of ingredients and saw Aloe. Had no choice, so who knows what I put on my body.

    They didn't seem to think there was any connection to the guai and my situation.

    I can never thank you ladies enough for being there for me and for all your good information. Thank you!!!


  8. Mikie

    Mikie Moderator

    I will keep you in my prayers and hope all goes well.

    Love, Mikie