Hair falling out? Help Please

Discussion in 'Fibromyalgia Main Forum' started by Shakes, Mar 26, 2007.

  1. Shakes

    Shakes New Member

    I am going to ask you all, whether it be medication or FM. I am loosing my hair by the handfulls. Will see a dermo today but I don't know if it is part of Fibro or medication.

    I thought it was the Lyrica med. but have been off it 10 days.

  2. AllWXRider

    AllWXRider New Member

    Also, the toxic metal Cadmium can interfere with the thyroid hormone T4->T3 conversion. T3 is the active thyroid hormone. T4 is a standby reserve form.

    Loss of hair, esp in females is a common effect of low thyroid.
  3. Shakes

    Shakes New Member

    Have been on thyroid med since 16.

    Levels seem to be OK.

    I am puzzeled
  4. Aeronsmom

    Aeronsmom New Member

    I have had the same problem, I'm afraid to wash my hair because every time I do I lose handfulls of hair..I actually have a bald spot because of this, I saw a dermy last week he also saw some dandruff and said my scalp is very dry and because it seems to him like I have psairosis(spelling)

    He said this will porbably happen every winter now for me, I asked him about the hairloss and he said because of my age that this is when it starts to happen but he said I will NOT go bald.

    I too have had tons of blood work done last week and everything came back normal, he also aid there are a couple of hair products that we can use for our hair loss
    one is called Hair Genesis and another is called Hair Regain, you can search these on Google to get more information. Goos Luck to you at your Appointment and please post us fom what you learned.

    Love to all, Ann
    [This Message was Edited on 03/26/2007]
  5. coolma

    coolma New Member

    I lost alot of hair on FM meds. The worst was an anti-seizure medication they gave me for my nerves. When I stopped that particular anti-seizure med (I didn't ever have seizures!) my hair grew back. Specialist denies to this day the meds caused it. So, they don't always have the answers. If your mind is telling you something is happening which is abnormal to you, it IS! Don't question your instincts. Good luck - hope you find help. Also, severe stress can cause strange reactions - I went grey very early in life when I got FM. No medical diagnosis for that either! That doesn't mean it didn't happen. Thank heavens for Clairol!!! Good luck and good health!
  6. Shakes

    Shakes New Member

    Thank all. What a great support group!

    I will let you know what the dermo says. However, I have an MRA tonight at 7 PM.

    Oh, I am tired all ready
  7. springshower

    springshower New Member

    Hi Shakes.....I don't know your age ,but if it is hormonal it could be helped with some nutritional supplements....This info came from Preventions "Natures Medicines"......They recommend Zinc,selenium,also 150 mg.of magnesium 2 times daily,400 I.U. of Vit. E,& a B complex-50mg.also flaxseed daily....Its good to rule out a medical problem....Good luck......Springshower
  8. BlueSky555

    BlueSky555 New Member

    Hi Shakes,

    Just wanted to let you know that I'm also on thyroid med, and have been since the 80's.

    After a few surgeries, thyroid levels fluctuated, up and down, changing mgs. and now, I'm back on the mg. that I started with back in the 80's.

    My hair has been coming out for years now and to my surprise, I still have hair but I can tell it's much thinner now.

    Like aeronsmom, I dread washing my hair and will put it off as long as I can but it gets to the point that I can't stand it dirty and must wash it.

    I hope you get some good news and answers. Keep us informed.

    BlueSky555
  9. GigglePoet

    GigglePoet New Member

    HI Shakes...I use to be a cosmetologist, and I just wanted to pass along that we loose about 100 hairs everyday, they fall to the floor or down the drain or end up in your brush.
    I am on Thyroid as well,Armour has been known to work the best for people like us or I see there is a new more another natural alternative out called Naturprine, not sure on that spelling. Anyway, when my thyroid gets low I see lots more hairs falling out, usually in the shower as I come my hair through after the conditioner.
    Good luck!
    ~ Dee
  10. Didoe

    Didoe New Member

    I have half the hair I had 3 months ago...it drops everywhere, food, sinks, pillows...I move it falls out. Brush is thick with it...
    Its just one more thing I can't be bothered dealing with compared to the pain, fatigue and memory issues.
  11. pam_d

    pam_d New Member

    I have posted this before, but I had major hair loss starting about 4-5 years ago; in my hair brush, used to be afraid to get into the shower because of how much I'd lose. I was about 45 at the time, so pre-menopause. Had every, and I mean EVERY test in the book, from about doctor, including two dermatologists, one of whom was billed as a hair loss "expert". No answers.

    Anyway, fast forward to last year. In a nutshell, I got Leukemia, and went on strong chemo---ALL my hair fell out, of course, as a side effect. But at the same time, as often happens to women about my age, chemo induces full-blown menopause. So suddenly, as with a hysterectomy, my hormones did a 180 turn. Now, my hair has grown back in, and it literally NEVER falls out. I mean, I don't think I come close to losing the normal amount of hair we're all likely to lose each day.

    This tells me is it was ALL hormonal! Too much estrogen was making my hair fall out---now, with estrogen depleted, it stays in. At the time I was going thru all the hair loss testing, of course the subject of hormones came up, but I couldn't get any doctor to take it seriously, and do very specific hormone testing for me.

    So I'd start looking at hormones---if you are even in the ballpark of menopause, especially, but even if you're younger, I'd find someone who'd examine closely your hormone levels.

    Just wanted to tell you my experience, in case it helps. Good Luck!!!

    Hugs,
    Pam

  12. lynnintn

    lynnintn New Member

    Shakes,
    I have Hashimotos thyroiditis and when my TSH gets above 2.0, my hair falls out in handfuls. Luckily, I have very thick long curly hair so it is not that noticeable except to me. However, I don't wash my hair but twice a week now, since it stays so dry from the hypothyroid and I stopped bleaching it and have gone back to my dark blonde/some whites now-hair. Some docs who treat thyroid disease (PCPs) do not know that it is now considered abnormal to have a TSH above 0.3-3.0 as many labs are still using level from 10 years ago. You may need to adjust your thyroid meds. Just a thought. You can look this up on the thyroid at www.aace.com (American Assoc. of Clinical Endocrinologists)
    Lynn
  13. AllWXRider

    AllWXRider New Member

    An interesting comment by Pam_D about estrogen. Dr. William Wong N.D. says that Medical Doctors decided to use Estrogen for Hormone Replacement Therapy just by logic, ie. no trials were done. Estrogen is causing a whole host of problems. In his work, Progesterone is really what helps his female patients.

    Also, Shakes, what thyroid meds are you using? Armour contains T4 + T3 + T2. Synthoid is only T4. Most thyroid patients need Armour since there is a problem with their body converting the T4 -> T3.

    Lastly, the adrenal glands also produce many hormones. If you have adrenal fatigue, that could cause many symptoms. Dr. Richard Wilson has a great book called; Adrenal Fatigue: 21st Century Stress Syndrome
  14. LISALOO

    LISALOO New Member

    I don't know if you're on DHEA, but too much made mine fall out in clumps, the doctor told me to lower it.
  15. Shakes

    Shakes New Member

    Lexapro,Trazadone and Synthroid.

    Percocet once in the morning so I can get out of bed.

    I think the Lyrica did it. I stopped after 3 days, although the medication really did help. But it's been 10 days since I stopped and you would think the hair loss would stop.

    Honestly, I am on my way (soon) to look at wigs. It is so bad.

  16. BlueSky555

    BlueSky555 New Member

    Hi again Shakes,

    I had already responded but just thought about something else;

    I heard several years ago that conditioner made our hair fall out. I was not told this by a professional so I can't say if it's really true or not.

    You've received some great information from your post; thank you.

    BlueSky555
  17. dwink

    dwink New Member

    I have lost hair over the years as well. It seems to be in spots. It is mostly around the hair line in front and on the back of my head. My hair dresser says it's not bad, she has seen much worse, but to me it is bad. My hair is fine anyway. I have had my thyroid checked many times and it is always normal. I think I read somewhere that FMS causes hair loss. I take a SSRNI for depression, Effexor XR 150 mg daily. It is a Godsend. I also take Klonopin for sleep and since I had a hysterectomy in my mid 30's (am now in my mid 50's) I take Premarin .09 mg daily. Also, I take Actonel 35 mg. once a week for osteoporosis. Does anyone take these meds that has had hair loss? I have never mentioned it to my dermatologist, maybe I should. Has anyone ever tried Monoxidil (Rogain) for hair loss?
    [This Message was Edited on 03/27/2007]
  18. LisaTN

    LisaTN New Member

    I have the same problem with my hair falling out. It's been falling out for years now, even before my fibro diagnoses. I've had all kinds of tests. I had a hysterectomy due to endometreosis back in 1999. It was falling out before that. I was later diagnosed with CFS. Last year I was diagnosed with Graves disease which is a Thyroid disease. So with all this it's no wonder I'm losing my hair. I did see a dermatologist for a while and had injections into my scalp for a while and some of it came back so it didn't look so bad. Mine is mostly noticeble in the front but it comes out all over.
  19. lilaclover30

    lilaclover30 New Member

    bugt about 3 yrssago, it began falling out. Made me so upset! I began shampooing it about every third day when I took my daily shower. I have no thyroid problems but I could blame it on meds. Klonopen, gabepentin, evisto, effexor, etc.

    This past winter, i noticed that it had been coming in - gray and curly! I get out of the shower, fluff it ;with my fingers, (shower in eve.) and let it dry. If I (accidently on-purpose get it damp in the shower) it just helps it.

    I still don't have a full head of hair. Suppose Inever will.

    Good luck and gentle hugs


    ~~~~~~~~~ I guess that I didn't answer your question. I just blame it and everything else I have on FM.[This Message was Edited on 03/27/2007]
  20. Chinlover

    Chinlover New Member

    Hi Shakes, I lost a lot of hair after I had Weight loss surgery. The surgeon said that any time the body goes through trauma, hair loss is likely. What could be more traumatic then our problems of Fibro and CFS? So, it could be the stress of your health problems in general. My doctor has me on biotin for hair loss and my hair loss has slowed way down. It used to come out in clumps. Maybe you could see if Biotin would be ok with your doctor and try it. It is realativly inexpensive and it did help me.
    Chinlover