Happy to be Diagnosed after 7 years!

Discussion in 'Fibromyalgia Main Forum' started by jmac, Apr 11, 2003.

  1. jmac

    jmac New Member

    Thanks to all of you for previous encouragement to see a rheumy who treats FM. I finally received the diagnosis I've been searching for these past 7 years -- fibromyalgia and Mayofacial Pain (sp?).

    I'm not surprised I have FM (I knew it years ago), but I am surprised to find a doctor whose diagnosis wasn't "everything is normal," "there's nothing medically wrong with you," "I don't know," or my personal favorite, "lose weight and exercise."


    She's putting me on meds to help me sleep and continuing with the Vioxx and wants me to do water aerobics and take some supplements.

    Anything else I can do from you veterens? What is MP?

    Thanks again. I encourage anyone still undiagnosed to keep trying -- it's such a relief and a personal validation to have an official NAME attached to why you can't do things, etc.
  2. layinglow

    layinglow New Member

    I do know how nice it is to finally have validation that you truly do have something debilitating, and disabling your body. The whole quest for a diagnosis is exhausting, and demeaning. I am glad you got your diagnosis for those reasons, but at the same time I am sorry to hear another confirmed with this disorder.

    The quest for wellness is begun by researching everything you can get your hands on. It is an experiment in individual treatment. Many things need to be tried usually to improve or alleviate symptoms. What works for one, doesn't always work for another. I found that tackling my most problematic symptoms first, and then working on each downed system one at a time, has paid off. I prefer natural remedies such as herbs, supplements, and vitamins, but these do not work on all of my symptoms, and I use quite a few prescription medicines too. I have made great progress, and hope to continue to progress even further. I have FM/CFS/MCS....and have the FM pretty much under control now, and am working with my specialists on the CFS now.

    Best wishes to you,
  3. Shirl

    Shirl New Member

    Welcome to our world! It does help to have a 'name' for what ails you, I know exactly how you feel.

    As a 'veteran' of 20 plus years of Fibro, I would recommend that you start taking Pro Energy (Malic Acid and Magnesium Glycinate), it seems that most FM/CFS people are deficient in this mineral. It heals the muscles as we sleep.

    Also for the night pain and morning stiffness, get a 'wireless mattress heating pad'. Its just so wonderful to be able to sleep without too much pain, and wake up not being so stiff. They are sold at Penny's, Sear's, and some Wal-Mart's.

    This is all for now, but if you have any questions, please feel free to ask them, someone is always around to help.

    Again, welcome to the board.

    Shalom, Shirl
  4. IntuneJune

    IntuneJune New Member

    If you can, pool therapy is wonderful. I noticed you home school your children, this may be difficult, but make the effort. Be active in the pool, walk and stretch (the side of the pool is good for stretching) and if you can, swim. Go slow initially. Also I have found relief using those big physioballs, your kids will love it too!!!! Many of us FMers have lots of allergies, diagnosing them (for me) relieved a lot of fibrofog, aching - tired muscle feeling, sore throat, generalized yuk feeling. This board is a wonderful resource. However, we are not a one size fits all. We all do need to go through a learning process of our own. Good luck, fondly, June
  5. emttoni

    emttoni New Member

    Its awful to be so happy for a dx but I know full well what you mean! When I finally got my doc to dx me with cfs and fms it was like a VERY large weight had been lifted off my shoulders. I already knew I had these and I spent too many hours trying to convince them I had it. One dr. said he didnt believe in cfs - said I was depressed and if I went on antidepressants and lost weight I would be better. That was 7 years ago and he is now gone from the practice and I still had the symptoms. It was the same thing with my pcos and then when I did have depression, convincing the drs. was a major task. It is so upsetting to be able to get on a computer and figure out what is wrong with myself and then have to spend so much wasted time convincing them that this was what i had. All drs should be like our Madwolf here - who understands and really listens to us.