Has anyone been to the Mayo clinic?

Discussion in 'Fibromyalgia Main Forum' started by GooGooGirl, Aug 12, 2003.

  1. GooGooGirl

    GooGooGirl New Member

    Hi all! Last night while talking to my Mom on the phone about my pain and what I have been going through lately, she suggested I go to the Mayo clinic. I had no idea they had one in Florida, but they do so that would make it easy for me to go. I was wondering if anyone has been to any of the Mayo clinics and at what point do you consider going? Do you have to be referred or can you just go on your own?
    What happened when you went? How long were you there? Any info would be greatly appreciated!

  2. Kim

    Kim New Member

    Went to Mayo in Jax, FL. That is where I got my diagnosis of FM. I hadn't heard about it before then (in the late 90s). They were thorough but thought I had something wrong with my pancreas which wasn't true. Thousands of dollars later they dx depression and I finally got some relief (not through them but through Shands at the University of Florida in Gainesville.

    The one thing about Mayo, if your insurance pays or if you can afford, is that they send you to several specialists but give you one primary care doc who coordinates all the info to work up a treatment plan.
  3. GooGooGirl

    GooGooGirl New Member

    I always forget that I can do a search on this board. I just read a bunch of posts from people that were very unhappy with their visits there. My reason to go would be not to treat my FM, but to make sure there is nothing else wrong with me that is being missed. I am tired of going from doctor to doctor for one thing or another and I'm still not sure that FM is my problem, although, that is what some of my doctors say, while others don't really believe in it. I just want to be sure everything else is ruled out before I can totally accept FM as my diagnosis.
    I am going to the Cleveland Clinic to see a Rheumy in 3 weeks. I guess I'll see what she says before I do anything else. I'm so tired of doctors visits I could scream!!!
  4. shmilycsc

    shmilycsc New Member

    GOOGOOGIRL,
    HI I DID GO TO THE CLEVELAND CLINIC, AND WAS DIAGOISED WITH FIBRO AND CFS WITHIN 5 MINUTES OF SEEING THE RHUMY DOC.MY NEURO DOC HERE, HAD ME GET SCHEDULED FOR 3 DOCS ON THE SAME DAY SINCE I HAD TO TRAVEL FOR 7 1/2 HOURS TO SEE THEM.I SAW A RHUMY, NERO, AND ENDOCRID DOC. THE RHUMY DIAG ME WITHIN 5 MINUTES WITH FMS AND CFS. THEN I SAW THE NERO DOC, WHO DIDNT BELIEVE IN FIBRO, HE THOUGHT I MABE DEPRESSED FROM BEING SICK SO LONG. THEN THE ENDOCRID (THYROID DOC) DIAG ME WITH GRAVES DISEASE AND CFS. THAT WAS GOOD ENOUGH FOR MY NERO DOC BACK HOME TO SEND ME TO A NEW RHUMY AN HOUR AWAY. BECAUSE " SHE DIDNT FEEL COMFORTABLE TREATING FIBRO" BUT SHE COULD TREAT MY SLEEP DISORDER BY GIVING ME MEDS THAT I STILL ONLY SLEEP A FEW HOURS A NIGHT WITH. IVE BEEN ILL SINCE FEB OF 2002. FINALLY GOT A DIAG AND NOT TREATMENT YET. I KINDA FOUND OUT THAT WITH OR WITHOUT THE DIAG, YOU STILL GOTTA SEARCH TO FIND A DOC THAT WILL TREAT YOU. IM STILL WAITING FOR ONE. THANK YOU FOR LISTENING. HOPE YOU FEEL WELL SOON SHMILYCSC
  5. Mikie

    Mikie Moderator

    Of anyone who has been helped at Mayo. If anyone is out there who has been helped, this is your chance to tell us about it.

    Love, Mikie
  6. mircleear

    mircleear New Member

    I HAVE NEVER BEEN TO THE MAYO CLINIC AND LIVE IN THE MID WEST BUT HAVE FOUND A GOOD PERSONAL REMTHORD DOC. IS ALL YOU NEED THERE ARE SEVERAL IN THE CHICAGO AND ROCKFORD, IL AREA THAT ARE EXCELLENT HARD TO GET A GOOD DOC. THAT WILL TAKE EXTRA TIME WITH YOU FOR THIS BUT THE ONE AT THE ROCKFORD CLINIC IN ROCKFORD,IL IS GREAT.

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