Has anyone had all signs of UTI but tests show nothing?

Discussion in 'Fibromyalgia Main Forum' started by Saoirse3, Sep 16, 2012.

  1. Saoirse3

    Saoirse3 Member

    Spent a happy (yeah, right) day at the ER, because I thought I had a UTI. I was like the Energizer Bunny - I kept going and going and going. Had a lot of pelvic pain and pressure in my bladder. However urine, blood tests and an ultrasound showed absolutely nothing more than a little bit of blood in my urine. The doctor put me on a 5 day course of antibiotics and pyridium. But if there's no sign of infection, then why am I on these? The tests showed I DID have kidney cysts (never been told THIS before!) but I am wondering if this might not be something else. Have heard of IC before, but I am just wondering if this is not yet another side effect of THIS DD? I know with this, symptoms and problems seem never ending, and at this stage of the game I wouldn't be surprised if I woke up and my two little toes fell off during the night! But other than this, I have been having a good week and have been feeling pretty good. If only I could catch it and bottle it for really bad days! lol!

    Soft hugs,
  2. TigerLilea

    TigerLilea Active Member

    Stacey, you should be seen by a urologist and have your bladder scoped. You could possibly have IC, but without a visual check, there is no way of knowing for sure. You also need to rule out bladder cancer. The doctor in the ER should not have sent you home with antibiotics.
  3. Saoirse3

    Saoirse3 Member

    and he said I have a very narrow urethra and wants to do surgery right away. You know how I am with that - "WHOA! Wait, let's talk about this first!" I am having trouble finding Distal Urethroplasty online, and basically, as he explained it, they inject a numbing agent, then cut away the narrow part and stitch the two ends together. I mentioned I had very low platelets, but he just waved his hand and said it wasn't a concern. The LAST surgeon who said that left me bleeding on the operating table, while platelets had to be flown in from Anchorage. So my view of surgery is very dim at best. He didn't leave me any other options. But today, when he put a catheter in, I screamed in pain. Two hours later I was still nauseated, and bleeding. He gave me Vesicare and told me to stop the antibiotics.

    I feel physically drained. And the worst of it is, I am scheduled for this damn procedure just two weeks before my husband and I are taking a much needed and long awaited trip to Kauai. I don't feel like going if my entire vacation will be spent in bed recovering and being in pain. And he didn't even give me time to check this out with my internal medicine doctor. What do you think? Should I postpone? It's not like I can never have this surgery, IF I really need it!

    Soft hugs,
  4. keke466

    keke466 New Member

    I think I'd wait and get a second opinion when you get back from vacation. If you think you will be ok while gone.
  5. ILoveGreen

    ILoveGreen New Member

    I always get 2nd opinions on anything I feel uncomfortable about, after not and wishing I had. In your case with the platelet issue, it seems like an especially prudent thing to do. Is your Dr an Internist? A good internal medicine doc should be able to point you in the right direction. If the problem is your kidneys, maybe a kidney specialist: Nephrologist? Maybe even consult a Hematalogist for the platelet issue? Better safe than sorry, and you don't need to create any more problems.
    In the meantime, have a nice time in Hawaaii. :)
  6. lvjesus

    lvjesus Member

    I say wait also till after vaca AND a second opinion. This DD ruins too much anyway to let surgery ruin your vacation. God Bless.
  7. kellygirl

    kellygirl Member

    i had what was to be "simple" surgery on my knee, from a work related injury. The knee healed eventually, took longer than people who do not live with FMS.
    BUT....from anesthesia, my immune system took a hit, I was bedridden in pain for awhile, got bronchitis, laryngitis, and the flu twice all within a few months.
    If I were to get surgery again, I would be more careful what they use. There is articles on this subject.
  8. Mikie

    Mikie Moderator

    I have IC and it can feel like a UTI. I also have pelvic spasms with pain in the pelvic floor. When I have that, I can't empty my bladder fully. My doc rejects the narrow urethra dignosis which so many docs use to explain symptoms. Good luck to you and let us know how the vacation goes, well I hope, and what the new doc has to say.

    Love, Mikie
  9. Robin1237

    Robin1237 New Member

    It's true we could all have different issues going on with our bodies. I do know one thing for me, though - my fibromyalgia of 25 years duration turned out to be Lyme disease, a bacterial infection that inflames nerves and soft tissue everywhere, and it particularly likes the bladder area. So if you were put on antibiotics, I'd be watching to see whether that helps ease any of your symptoms. Re Mikie's mention of pelvic spasms and pelvic floor pain, I had that too, hugely, before I found out I had a bacterial infection inflaming it all. And I fixed it, without knowing what was going on!! This is what I did - I had flunked pelvic physical therapy, so I put myself in the swimming pool and ordered my body to start moving! I wore a torso float, and goggles and snorkle so I could breathe underwater, I took pain med for the first month, and started finding any stretch I could do, against the side of the pool, with the water holding me up in any angle. There are 35 different muscles that attach in the pelvic area, so that's a lot of opportunity to stretch them out. I found it was like unraveling a tangled ball of yarn - when you do that, you can only start from the outside and work your way in, right? Same thing here - you start with any muscle give, and stretch, even if it's a teeny tiny one. 'Cause you know what? When you get back in the pool the next time, you can do a little more each time. It took a month of doing this, about 2x/week, 1/2 hour to 1 hour, for me to have to take pain med, then I found the pain lessening and I could continue without any pain med, I think because I was getting more bloodflow in and more waste products out - our poor muscles are starved for energy and quite stagnated with lactic acid and other waste products, due to, in my case, the Lyme bacteria inflaming all tissues, and using up magnesium for its own reproductive needs, such that tissues do not have the magnesium needed for the ATP energy cycle in our cells. Upshot - in nine months' time, I fixed my pelvic pain - no more of it, I could walk ok, and it was still to be another year and a half before I found out I had treated something!
    If we have Lyme disease, we need to treat it, and we also need magnesium for our tissues to work. My Lyme doctor recommends the Calm powder version of magnesium.
    [This Message was Edited on 09/28/2012]

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