Has anyone had swollen, red legs that are hot to touch?

Discussion in 'Fibromyalgia Main Forum' started by rlh1961, Dec 5, 2002.

  1. rlh1961

    rlh1961 New Member

    I am looking for answers. Apparently my doctors are baffled by this, and I can't imagine that this is really that uncommon, but I may be wrong!

    For the past 3-4 months my legs/feet have become swollen anytime I've been standing for more than 15 minutes. My doc put me on a water pill. The swelling went down tremendously, and I lost 5 lbs--not the 15 he predicted. Suddenly, the swelling began again (though not to the extent of the first time). Additionally, my legs become red (like they are sunburned), and very hot to touch. They also ache; sometimes actually hurt more than ache. My neurologist has no idea why this happens, nor did my GP, nor the internist I used to see.

    I have fibro/osteoarthritis with a host of other problems/symptoms. I'm about 90 pounds overweight. I take 14 prescriptions each day, and am not able to be very active. All it takes to make it happen is about 15 minutes of standing or a combination of standing/walking/sitting. The only relief is lying down for several hours.

    Any ideas?
  2. rlh1961

    rlh1961 New Member

    I am looking for answers. Apparently my doctors are baffled by this, and I can't imagine that this is really that uncommon, but I may be wrong!

    For the past 3-4 months my legs/feet have become swollen anytime I've been standing for more than 15 minutes. My doc put me on a water pill. The swelling went down tremendously, and I lost 5 lbs--not the 15 he predicted. Suddenly, the swelling began again (though not to the extent of the first time). Additionally, my legs become red (like they are sunburned), and very hot to touch. They also ache; sometimes actually hurt more than ache. My neurologist has no idea why this happens, nor did my GP, nor the internist I used to see.

    I have fibro/osteoarthritis with a host of other problems/symptoms. I'm about 90 pounds overweight. I take 14 prescriptions each day, and am not able to be very active. All it takes to make it happen is about 15 minutes of standing or a combination of standing/walking/sitting. The only relief is lying down for several hours.

    Any ideas?
  3. Shirl

    Shirl New Member

    I don't have your problem, but I do remember that something like this was discussed before on the board with the swollen legs from standing.

    I am replying so that your post will be bumped up, as we have a lot of members missing today, no doubt due to the bad weather all over.

    HOpefully they will be back tomorrow, and you will get some answers.

    Take care, and try to stay off your feet before those legs start swelling.

    I saw in your other post that you are on quite a bit of medication, it could be some reaction to the meds that is causing this.

    You could call your pharmacist and ask him, they know much more about the meds than the doctors do.

    Hope you get some answers soon.

    Shalom, Shirl

  4. 2BPainfree

    2BPainfree New Member

    It's obvious for some reason you are getting very poor circulation to your lower extremeties (thus the redness, edema/swelling and pain) The question is what is causing the poor circulation. Can the Doctors feel the pulses in your feet and behind your ankles? (PLEASE tell me they did at least check the pulses in your feet and behind your ankles!)

    Has anyone suggested a Doppler/ultrasound study to check the arterial (and venous) blood flow in your lower legs? This will check the valve function and perfusion in the vessels. Your femoral arteries which "feed" your lower legs should also be tested for blood perfusion and blockages (plaque build up can occur anywhere in the circlatory system not just the aorta and arteries that feed the heart muscle.....PLEASE don't think you have these problems, I am just throwing ideas out there! (I did cardiac & sugical nursing for years)

    Sound like you are having "venous stasis" which simply means the blood is pooling in your lower legs/feet. This can present big problems such as "venous stasis ulcers" if left untreated. Another factor that can play into this is high blood pressure, Heart Problems and diabetes.

    You also mentioned you're on quite a bit of medication...is ONE doctor going thru these meds to make sure they all jive?? Sometimes we see so many doctors/specialists and they tend to focus on what THEY are doing/trying to accomplish instead of looking at the big picture.

    The only other thing I can think of right now that could cause redness, swelling, heat and pain is cellulitis which is actually a bacterial infection of the cells. Do you have a fever? This really doesn't sound like the case to me since your symptoms seem to improve with rest.

    KEEP your legs elevated as much as possible and I would DEFINATELY call a vascular Doctor/surgeon if I was you...(not that you need surgery, these Docs are just VERY good with these matters. Make sure you find one that specializes in lower extrems. I hope this doesn't scare you, it shouldn't....it's just advice like we all need, when it's time get things checked out. If everything is fine, then that will be a releif! Then perhaps he can suggest something else you can do that will help besides just taking "water pills" (Just my opinion)

    BTW: Mild exercise is still a very good thing....try sitting in a chair with your feet elevated. Rotate your ankles around back and forwards, flex and point your toes, this will help blood flow.

    Take care...hope I didn't go overboard with too much info. I'm very tired tonight, but you sounded like you needed some help. I have been so thankful to the people on this board who have taken the time to write to me when I needed it....I guess you call it pay it forward???

    Take Care,
    Susan/RN/Calif


  5. queenbee69

    queenbee69 New Member

    given to you. I have a problem with blood clots and am currently on a blood thinner. The symptoms you described are typical of blood clots. Hopefully your drs. have ruled this out. I don't mean to scare you just an observation! Please pursue this......keep us posted...queenbee
  6. painin

    painin New Member

    I just joined your forums yesterday, and my big question was if anyone here had this problem too, or if it was just me. YES! I too have severe swelling of my legs and feet. They become red as you say, looking like sunburn or really bad bruising. And it hurts soooo bad to touch them, to even put lotion on them. It has been 1 1/2 months since I was on any steroids, but that's what the Drs. say is the cause, which makes no sense to me, as that is why they put me on the steroids in the 1st place. Started in the the left foot. Then up the leg. Now it is both feet and legs up above the knees. They are somewhat swollen when I 1st get up in the morning, but it only takes about 15-20 mins. of sitting for them to balloon up. Standing? I'm not sure, as I can't stand more than a few mins. with my walker when I break out in a sweat and just shake all over from the pain and the energy it takes. Just wanted to let you know, that you are not alone with this situation, and I have not gotten any answers either.
  7. Joannie

    Joannie New Member

    Has any of your Doctors' suggested the possability of it being reflex sympothy distrophy? I could be way off here but I new a gal that had it and it may be something to check into. Read up on it and see if you have the symptoms of it and if so mention it to your Doc.
    Good luck.
  8. rlh1961

    rlh1961 New Member

    I'm back---a few years later. Needless to say, I've been out of touch for a while. Sorry.

    Thank ALL of you for your advice and ideas. You've been a tremendous help! No, I was never checked for blood clots, never had any of the tests that one of you mentioned. I was just told that they weren't sure what it was, and passed it around to the next doctor and the next. As USUAL.

    Now it's three years later. So, I quit taking Neurontin and the redness and swelling seemed to go away for the most part. HURRAY! But, it has come and gone every so often. And, about three weeks ago I had a two week flare-up. My legs and ankles and feet were twice their size, red, hot, and very painful, I was in severe pain & all over my body and was sweating profusely, had shortness of breath (could hardly finish a sentence), I was in bed for four days. It hurt to turn over in bed, to talk, to try to walk (just to the bathroom or kitchen), and I had a red rash on my face, neck, and chest. I've experienced problems with speech and vocabulary suddenly, and lots of dizziness and loss of balance. I saw my doctor (neurologist who diagnosed me with Degenerative Disk Disease a couple of years ago. She isn't a "fibro/CFS" believer. The first thing she said to me is that she thinks that all of my doctors (including her) have misdiagnosed me! Yes, I do have disk problems, but there is a rheumatic disease involved also. FINALLY! She ran many blood tests and a UA. She also wants me to go to a doc who treats rheumatic disease. (I have to scrape up the money to pay in full because he's not on my insurance plan....I may not get to see him at all due to that!) She called me late last Thursday evening from her office. My arthritis was very high, Rheumatoid Arthritis was almost as high as it could be. She said this other doctor needed to check the Lupus test, but she said I have all the symptoms (which I told ALL of my docs two to three years ago). I was reading over some references on Lupus and RA that I found on the internet, and I couldn't believe it when I saw that I had all but maybe one symptom on both. I even read on one of them that a symptom can be a hard knot or lump just under the skin on the back of the head, or perhaps elsewhere. Wouldn't you know that every doctor I've gone to has told me that the "hard knot" on the back of my head was NOTHING. No reason to check it out...it just happens. So, now I found myself sitting here with this doctor who kept apologizing for not catching all of this even though I reported the same symptoms over and over every time we met. Same with my internist and GP. She kept telling me that she is worried that there already may be damage done to certain organs. She kept saying that it should have been caught sooner. She asked me if I was afraid of what she told me, because I have good reason to be frightened. I told her that I'm a Christian and I feel at peace with myself and whatever happens. Yet, I can't get out of my mind how I tried so hard to get all of my doctors to listen to me. I knew that something was wrong in my body, but because I'm "DEPRESSED" and on medication, I've heard way too much of "IT'S ALL IN YOUR MIND". So, perhaps this will help someone else who is experiencing the same problems. My doctor (and others) have told me though that because I was in a full blown flare-up, the test results probably came out better than those tests taken at times when I was feeling somewhat better. I have friends with Lupus and RA......they all tell me that it's not always easy to detect. I have one friend who has been told repeatedly that she has it, she doesn't have, she has it, she doesn't...etc. I don't know what we need exactly....better ways to test and doctors who will listen and believe what the patient says about her body? That is a start!
    Thanks for listening. God Bless all of you,
    Roberta
    [This Message was Edited on 10/11/2005]