Has anyone seen Dr. Dantini in Fl?

Discussion in 'Fibromyalgia and ME & Chronic Fatigue Syndrome' started by questus9, May 12, 2008.

  1. questus9

    questus9 New Member

    Am interested in knowing if anyone has been a patient of Dr Dantini in Florida.
    He treats CFS and fibromyalgia.

    He does food allergy testing (bloodwork), and also tests for viral load and uses different antivirals.

    Am hesitant to use any antiviral, as I don't know of any cases where it's made a dramatic change, and as I understand it Dr. Cheney has advised against them for CFS patients.

    Has anyone reading benefited from antivirals?

    Has anyone had the bloodwork done for food sensitivities and followed the elimination diet?

    Thank you!
    LeeIWright likes this.
  2. xchocoholic

    xchocoholic New Member

    I don't see her here much lately, but I know she sees him or maybe she just emails him. Just do a search on her user name.
    LeeIWright likes this.
  3. questus9

    questus9 New Member

    I did search for 'Dantini' on this message board, and found some chatter.
    Thank you for recommending it...My brain is foggy.

    I went ahead and made an appt to see him in a couple of weeks.

    Am dubious....

    I'll be interested in listening to what he has to say, (he claims he had CFS himself), and I'll do the blood test to screen for food sensitivities, and the test to check viral titers, but doubt I'll take an antiviral.

    They can check viral titers for known viruses, but I suspect the virus, combination of viruses, and all other unknowns are just that...unknown.

    It doesn't make sense to me to take a powerful drug when it's unclear what's causing the disease. Perhaps it lowers the viral load of a specific virus, but not 'the' virus that's causing the disease.

    Anyway, would be interestied to talk with someone who has seen this Doc...Am wondering why he was chosen to be interviewed in the U.S. News and World Report article.

    Thank you!
    LeeIWright likes this.
  4. questus9

    questus9 New Member

    Thank you Z

    Did your daughter meet him, or have a telephone consult only?

    Am wondering if people who have been ill a shorter period of time do better with antivirals than people who have been sick longer.

    In re to the food...Am looking for relief from the fatigue more than the pain. I don't have the headaches, a blessing.

    I 'cleaned up' my diet many years ago, and am hoping the food issues will relieve the fatigue. Over 20 years ago, an immunologist testing and told me I was allergic to beef, chicken and dairy.

    I cut out all three for many years, and still haven't eaten chicken in 20 years, but suspect dairy is still an issue for me, because I crave it.

    Guess I'm just suspicious of a Dr. who 'claims' he can cure CFS.

    Also am bothered that he used the word 'fibromyalgia' in his book title instead of 'CFS'...Marketing maybe? I don't know, but believe they are not the same thing.

    Thank you for the name of the book of food sensitivities. I'll look at it.
    LeeIWright likes this.
  5. ladybugmandy

    ladybugmandy Member

    hello...

    in, people who have had the disease longer, infections have traveled further ("deep into the oragns" as one specialist put it)..so perhaps they would need medication longer...or have more tissue damage..?

    the doctor i am currently seeing believes that in many cases, people have a genetic defect that prevents their immune systems from inducing latency of the epstein barr virus (or other herpes viruses?) and this is what is causing CFS.

    sue
    LeeIWright likes this.
  6. xchocoholic

    xchocoholic New Member

    I live in Florida, so I'm considering going to see him too. I didn't realize he believed in treating the viruses.

    I have elevated viral titers too and I'm questioning whether or not they need to be treated since many of my symptoms are gone just from eliminating foods that caused problems.

    I'm going to have a viral test done when I'm finished with my salt loading experiment. Unless I find something else I'm deficient in. Then I'll try that first.

    I think I read somewhere that these viral titers were actually just an immune system problem and by repairing the immune system this will go away too.

    Marcia
    LeeIWright likes this.
  7. Nanie46

    Nanie46 Moderator

    Hi,

    I live in PA, so I had telephone consultations with Dr Dantini. I had delayed food allergy testing and viral testing last year through him. I have had FM since 1986.

    I then started antiviral med (Famvir) which I took for 6 months and did a 5 month long elimination diet to see what symptoms all 22 of my sensitive foods caused.

    I found that sugar and corn syrup cause alot of increased pain, stiffness, and soreness and brain fog. I found other foods cause itching, insomnia and digestive problems.

    Without Dr Dantini I never would have improved 50-70% within 3 months.

    Now, if I have a flare up of pain not caused by foods, I call his office and get a new prescription for antiviral medication. He says after the initial course of medication, it is necessary to take it off and on, as needed.

    He recently published a book, "The New Fibromyalgia Remedy" by Dr Daniel Dantini...published by Addicus books.

    His office staff is very nice and helpful too.
  8. LeeIWright

    LeeIWright Member

    Hi,
    I am considering going to see Dr. Dantini myself, especially after I read that they are doing a more extensive study on the anti-virals approach. I wanted to see if anyone who posted about trying the anti-virals in 2008 could post on how they are doing now almost six years later. I want to find out more about the long-term effects of trying the anti-virals before I try it. I have had Fibromyalgia for 12 years but it has suddenly gotten worse and I am desperate to find a more effective approach. I have changed my diet, I exercise and do yoga but nothing is helping at this point so I must find something that will improve the way I feel.
    Thanks,
    Lee
  9. Nanie46

    Nanie46 Moderator

    Hi Lee,

    Almost 6 years later....I think that the anti-virals did not help me. The elimination of foods did help me. Exercise helped some also. He did agree to order (at my request) a western blot for Lyme disease through Igenex lab in Calif around Jan 2009.

    Although he told me I did not have Lyme disease because the result said "CDC negative", I knew from my research that I had positive Lyme specific bands show up and that was a significant finding. I found a Lyme literate MD (LLMD) who did a very thorough evaluation and diagnosed me with Lyme and Bartonella. I paid out of pocket for 3 1/2 yrs of treatment.

    I improved in many ways. My insomnia is gone, my horrible fatigue is gone and my pain level decreased from what it was at that time. I still have pain and stiffness, just not as bad.
    Then I found out in May of this year that I have Hashimoto's thyroiditis from years of untreated infections/leaky gut/food sensitivities. It was 21 years between developing "fibromyalgia" and finding out I really had Lyme disease in Feb 2009.

    My LLMD says fibromyalgia is a symptom of Lyme disease. Testing for Lyme by mainstream doctors through regular labs often results in unreliable test results. Many people who have Lyme actually test negative since the tests are so unreliable.

    There are many others on lymenet, a Lyme board that I am on, who also found out that their symptoms were from tick-borne infections.

    Check out this short video:

    http://www.prohealth.com/library/showarticle.cfm?libid=18052


    Read the following information and see if you think that Lyme disease is a possibility for you.

    http://www.lymepa.org/Basics2007v1.2Rev.pdf


    http://www.prohealth.com/library/showArticle.cfm?libid=16301&B1=EG060111


    http://www.ilads.org/lyme/about-lyme.php


    http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf


    http://www.dearpharmacist.com/2012/09/04/long-history-of-pain-think-lyme-disease/


    http://www.dearpharmacist.com/2013/06/11/lyme-disease-and-bartonella-more-common-than-you-think/
  10. TaniaF

    TaniaF Member

    Where in Florida is he located?