Have any of you heard about the medication Mestinon?

Discussion in 'Fibromyalgia Main Forum' started by SleepyWillow25, Oct 4, 2002.

  1. SleepyWillow25

    SleepyWillow25 New Member

    Hi there!

    I just saw my CFS doctor who has placed me on 10 mg of Mestinon. Apprently my docotor and the worlds #1 CFS Specialist in the USA have used this of some patients and have had wonderful results.

    My doctor showed me a letter from a women in Australia who was completely bed bound and started taking 10 mg of this medication and slowly increasing it over three weeks. This lady now can go without fatigue for 3 to 4 hours and many of her other symtons have decreased.

    Apprently the world #1 Specialist had a patient that was bed bound and is now back doing 8 hours of full time work a day.

    Any way I went to the chemist to get this drug and it is completely sold out. Apprently the last couple of weeks it has been in demand. I have to wait till Monday to get my medication.

    Any one heard or is using this medication? I will keep you all informed as to how it is with me. I am bed and house bound currently and have been for 15 years.!

    Belle

    PS/ It has to do with the Humon Growth Hormone and some other hormone in the brain. Sorry I have forgotten how my doctor explained it to me.
  2. SleepyWillow25

    SleepyWillow25 New Member

    Hi there!

    I just saw my CFS doctor who has placed me on 10 mg of Mestinon. Apprently my docotor and the worlds #1 CFS Specialist in the USA have used this of some patients and have had wonderful results.

    My doctor showed me a letter from a women in Australia who was completely bed bound and started taking 10 mg of this medication and slowly increasing it over three weeks. This lady now can go without fatigue for 3 to 4 hours and many of her other symtons have decreased.

    Apprently the world #1 Specialist had a patient that was bed bound and is now back doing 8 hours of full time work a day.

    Any way I went to the chemist to get this drug and it is completely sold out. Apprently the last couple of weeks it has been in demand. I have to wait till Monday to get my medication.

    Any one heard or is using this medication? I will keep you all informed as to how it is with me. I am bed and house bound currently and have been for 15 years.!

    Belle

    PS/ It has to do with the Humon Growth Hormone and some other hormone in the brain. Sorry I have forgotten how my doctor explained it to me.
  3. pepper

    pepper New Member

    of what it does for you. Do you know the name of the specialist in the US who uses it?
    Pepper
  4. Grams

    Grams New Member

    Mestinon is usually prescribed for mysthenia gravis. After seaching, I found where it has been prescribed for FMS. There is an article in ProHealth's library. I don't know if it's allowed to post the link to articles in ProHealth's library but here it is. Moderators, please delete if necessary.

    http://www.immunesupport.com/library/showarticle.cfm/ID/3657/e/1/T/CFIDS_FM/

    http://www.immunesupport.com/library/showarticle.cfm/ID/3617/[This Message was Edited on 10/04/2002]
  5. SleepyWillow25

    SleepyWillow25 New Member

    Hi Peppper!

    Yes I do know the # CFS Specialist who is in California USA.
    E-mail me @ mikenbelle@ihug.com.au and I will give you more details.

    Take Care

    Belinda!

  6. SleepyWillow25

    SleepyWillow25 New Member

    Hi there!

    Thank you for your information on this medication. I really appreciate it. You can always e-mail me privately if you would like more info on this.

    mikenbelle@ihug.com.au


    Belle