Have I reached a new level of FM?

Discussion in 'Fibromyalgia Main Forum' started by emah, Aug 31, 2012.

  1. emah

    emah Member

    Hey everyone. I was dx'd with FM about 4-5 years ago. For about the last 2 months I seem to be getting worse. So I am just asking are these symptoms yet another reminder that I have FM so I cannot deny that I have it.

    I thought it was just a flare but it has been over 2 months. Now I am having difficulty getting out of bed with out singing the nat'l anthem because it is so painful. Joint pain in places I knew there were no joints, swollen feet for over a month (kidneys are ok, went to dr.) small sharp pains in different areas of body. Walking has almost become a new form of gymnastics. My range of motion for my arms is decreasing. Everyday I spend at least 30 minutes looking for something and then trying to remember what I am looking for. :(

    The only real relief is when I am in the swimming pool but hubby says we cannot move the furniture into the pool.

    I have other things going on like spinal stenosis, degenerative disc disease, bone spurs on hips, arthritis, and some other stuff too much to remember.

    I don't want to become bedridden or wheelchair bound. I do exercise in the water but I am so very very very tired of all of this pain

    I know things could be worse but just checking to see if anyone else shares all of the symptoms at the same time.

    Thanx for listening (reading).
  2. Mikie

    Mikie Moderator

    It's possible that your other conditions and your FMS have just escalated to a new level.

    Have you read Dr. St. Aman's book, "What Your Doctor May Not Tell You About FIBROMYALGIA?" It is an excellent book regardless of whether you decide to do the guaifenesin treatment. I was bedridden most of the time and on Morphine before I did his treatment. As with all other treatments, it hasn't worked for everyone but if one follows the requirements of the treatment, the chances are high that it will address the symptoms of FMS. I used the Morphine until the guai enabled me to stop taking it.

    If you don't have a pain management specialist, I would recommend that you find a good one. Perhaps your doc will recommend one for you. I pray that you can find relief. Good luck to you.

    Love, Mikie
  3. neoplus1

    neoplus1 Member

    meditation and Qigong if you haven't already. I started buddhist meditation a few weeks ago and to my surprise, it is helping with the pain(and some other things). I have not tried Qigong yet but am planning to very soon and there is research for both of these practices improving pain and other types of health problems. It is easy to learn and with the internet can be free.

    Just my two cents.

  4. Saoirse3

    Saoirse3 Member

    I could easily have written this message, because you just described to a "T" everything I have been going through for the past month. I woke up with burning pains in my stomach, food didn't appeal to me any more or made me sick and the pain and swelling went through the roof. My doctor gave me Fentanyl patches at the lowest dose. But once again, the medication made me sick. I am so chemically sensitive that my body seems to hate everything I put in it any more. I have liver disease and spinal stenosis, crushed and herniated discs, and of course THIS DD! I worry constantly about my fibrofog. Last week I locked my keys in the car, and this week I came VERY close to poisoning my beloved bird with some table scraps (something I NEVER EVER do, but sharp husband caught it just in time).

    Meditation DOES work, and I meditate every night before bed. I have a set of guided meditation from Om Harmonics that are absolutely beautiful. I also love to read and do crosswords and trivia quizzes. You will also find that tweaking your personal combo of meds and supplements will go from the "building a birdhouse" stage to the "Apollo 11 moon landing" stage and drive you absolutely nutz! What worked last week might not work at all this week, or suddenly you come up with symptoms you can't believe. I wiped my eye with a tissue and had a shiner for a week!

    And NEVER forget your sense of humor! Sometimes it may be all you have, but it will get you through just about anything!

    Soft hugs,
  5. kellygirl

    kellygirl Member

    I was doing well, working, etc. then I had "simple" surgery for a work-related injury to my knee a few years back.....it was a hit to my immune system!

    I never get the flu, etc....but within a month I had the flu 2x, bronchitis, laryngitis and pain, unable to get out of bed. I had an elevated temperature.

    Eventually, I regained my health. New symptom is the hip dysfunction that I deal with.

    You may be dealing with a flare, a hit to the immune system. Hope you feel better soon!
  6. neoplus1

    neoplus1 Member

    is not to give up. I always think to myself, "I was healthy once and didn't have these problems. If my body can be healthy and strong once, it can be again."

    I do believe very strongly that there are things out there that can help us and it is all a matter of finding them. I hope everyone here finds the "thing" that helps them regain health.
  7. rosemarie

    rosemarie Member

    I think back to the time when my girls were small and even then i had fibro I just didn't have a name to put on it. I felt better when I was not taking the strong paoin meds that I have been on for years now.
    I think if I can get my personal life and my mental life and my health problems all worked out and get a regim that will work for me, I could maybe start to feel better and need less of the pain meds.
    Maybe if I coudl get my slef eating better and exerciing with Deep water arerobics I would feel better.

    I know that a postive attitude will help with how a person feels, now I just need to get the postive attitude. Thanks
  8. kellygirl

    kellygirl Member

    But with our toxic environment, it may never be perfect. Toxic food, toxic water that we bathe and drink (chlorine).

    I do not believe in an overly restrictive diet, either. I eat what I am craving at the moment. I try to make my choices healthier, but will not give my coffee up. It stresses me out to try to gauge what I am eating each moment, and to me, that's worse.

    I do take supplements and try different things.

    I have found an over-50 chair yoga class that really helps to lower the upper body pain.

    It's a challenge but don't give up...DON'T EVER GIVE UP!
  9. emah

    emah Member

    Thanks for your response. I work hard at not giving up. I like the thought you tell yourself and maybe just maybe that is or will be true for me.

    I believe too that there is something out there that can help us but this is such a bizaare illness, imo.

    Thank you for your encouragement. {{{{hugs}}}}
  10. emah

    emah Member

    Thank you for your responding. I have not heard of that book. I will probably get it. I have a pain mgmt dr. who I really respect in that he also has some confidence in alternative care like acupuncture. He hopes to one day learn more about it.

    My meds will work for a minute or two and then new meds come in. I see the dr on wednesday and see what he says I also have a spinal cord stimulator and I guess it is helping.

    I am going to investigate the guaifenesin treatment. Hopefully I can get some understanding before my appt with the dr. this wednesday.

    Than you for caring.
  11. emah

    emah Member

    When I saw your post, I just had to smile. My husband has a book with that exact title and I have been saying for at least a year that I need to read that book. So your post, imo, was definite confirmation. Than you. I will see what happens.

    Thanx for caring,
  12. emah

    emah Member

    Thanx for your encouragement. The swimming pool has been a huge distratcion for me. I even learned how to swim at the young age of 59 plus there is zero gravity.

    We are all going to be okay one way or another.
  13. emah

    emah Member

    Love your "subject". I am going to try meditation. I keep getting that as a suggestion. I am pretty antsy so I will start with 5 minutes and increase as I am able.

    I go to the dr. wed, we will see what he says. I am just tired and more annoyed at the constant reminder that there is something wrong with me.

    Thanx for the encouragerment.
  14. neoplus1

    neoplus1 Member

    Over the past years. My illness started toward the end of 2005 and over the past 6 1/2 years has just progressively worsened. It started out very mild and with each year became worse as well as developed new symptoms. there was one 6 month period where it seemed like I was suddenly going into remission but that didn't last. That does give me hope though.

    I know there are things out there that can help me and I know others who have been even more disabled than me(and I'm pretty bad) who have not just improved, but achieved remission, even after years and years of illness. It is possible to recover or at least improve to be fairly comfortable and functional. I do hope you look into meditation and maybe Qigong. I do believe in mind over matter and the evidance for the mind-body connection is growing everyday.

    I have been doing my meditation about 3 times a day at about 15min each time. The results I have noticed are less overall pain and aches as well as better tolerance for the pain I still do have. It has also started to improve my brain fog. I have abdominal pain and tightness as well as tightness in my chest and that has also improved. It unfortunately has not helped with fatigue at all but has helped with the wired, tremory, sensative/nervous feeling I constantly have. I generally feel more comfortable.

    I look forward to continuing and progressing. Every bit helps and since it was free to learn from the internet, it seems like an excellent thing to try.

    I really hope you come across things that are helpful to you. Feeling better is possible for all of us. We can't give up, we're all too valuable.

  15. emah

    emah Member

    I am going totry meditation. All I have to do is remember. Mat tomorrow be that day, :)

    Thank you
  16. emah

    emah Member

    Thanx for responding and for caring. This DD is the pits.
  17. emah

    emah Member

    Water is my single biggest relief. My anxiety meds next. My pain meds not so much. They are constantly changing them. But I have to believe that this is going to get better for everyone & live happily ever after.
  18. emah

    emah Member

    Thank you for writing on this post. Let's me now WE are not alone.
  19. emah

    emah Member

    I was surprised and overwhelmed at the response rec'd from my post. Thank you all. I tried to personally respond to all but not sure if I did so wanted you all to know that I am so appreciative for all of your support. We are not only gonna be ok, we are ok!

  20. emah

    emah Member