Have You Had An MRI Of Your Brain?

Discussion in 'Fibromyalgia Main Forum' started by Dovebird, Aug 10, 2005.

  1. Dovebird

    Dovebird New Member

    I am asking this question for those people that definately have fms/cfs.

    About 5 years ago I had an out of the blue seizure that put me in the hospital for a few days. Months later I was still experiencing concussion symptoms. Some of the Vertigo lasted well into the next year and so they did an MRI thinking it was an inner ear problem. The MRI showed nothing in the middle ear but showed white spots/lesions scattered in no significant pattern on my brain. My doctor at the time seemed mystified yet uninterested in following this up. All he said was well this normally does not show up in someone as young as you but happens to all of us as we become elderly. He put me on asprin and told me there were no side effects of brain lesions whatsoever. Shortly thereafter my middle finger (of all fingers lol) began swelling to almost double it's size. My hands, knees and elbows began hurting and I was sent to a Rhumie. The Rhumie was concerned about the brain lesions because he diagnosed me with psoriatic arthritis. This rarer form of arthritis mainly responds to Enbrel and Enbrel might cause brain lesions if the patient has dormant MS. No Neuro could tell me if I had dormant MS so we began the Enbrel.

    Three years later I had another MRI the lesions are still there but no real knowledge as to whether they had changed or not. I am to go in again this Friday to get another MRI and find out for sure this time of any new change. Of course I am scared to death wondering many things. Maybe the Enbrel is to blame but why did I have them before the Enbrel treatments then? No Rhumie will see me here in Northern Michigan because I have brain lesions, too much of a law suit risk for them I guess.

    I read another post in here where they spoke of FM patients brains being at least 10 years older than a normal brain.....thus possible FIBRO FOG?

    I am wondering if any of you have been diagnosed with lesions on the brain of an unknown etiology? It would be so interesting to find if there was some small pattern here.


    [This Message was Edited on 08/10/2005]
  2. darude

    darude New Member

    I've been sick for two years. I recently had 2 mris. They showed 40 lesions in the white matter and radiologist said possible MS. The neuro said not just normal course of aging I'm 54! Also found a tumour on the pituitary gland. I had an MRI a year previous and there was NOTHING. They are still investigating so we shall see. Yes there are a lot of us here with Lesions.
  3. Adl123

    Adl123 New Member

    Dear Dovebird,

    I'm sorry you are going through such stressful times right now.

    I have had CFIDS since 1970 and Fibro since about 1980. A couple of weeks ago my Dr. ordered an MRI of the brain and inner ear. It turned out normal - no lesions or tumors. It just showed spinal stenosis in my neck. So, I guess everyone with fibro is different in this way, too. I was surprised. I fully expected there to be some lesions. I guess I'm lucky.

    Personally, I think my brainn fog is caused , partially at least, by lack of oxygen to my brain.

    Terry
  4. bpmwriter

    bpmwriter New Member


    i had an mri very early on in my illness due to terrible migraines but the neurologist reported that nothing looked suspicious. all was normal. i never personally viewed the mri. i hope you are able to get some answers.

    eddie
  5. justlikemom

    justlikemom New Member

    One with contrast, one without. According to the neuro neither showed anyting abnormal.

    In my case they were checking for possible causes of my migraines, and trying to rule out MS.
  6. BLUEROSE7

    BLUEROSE7 New Member

    I am sorry your going through such a stressful time. I have FMS and CFS.

    As Eddie had posted, I too had a MRI many years ago 99 or 00 due to the terrible migraines I was having and was told everyhting looked ok. I truly would like to go back and get a second one, which I may just do soon.

    Hugs
    Bluerose

  7. elsa

    elsa New Member


    Hi Dovebird,

    I know you are worried about this. I'm sorry you've had such a tough time of it.

    I've had an MRI of my brain two years ago. All was as it should be. No lesions, or ten years older looking. It helped to definately confirm my FM/CFS.
    ( no MS )

    I'll keep you in my thoughts. Good luck with your next MRI.

    Elsa
    [This Message was Edited on 08/11/2005]
  8. nancyann62

    nancyann62 New Member

    Hi dovebird,

    I have had several brain studies done since my diagnosis of CFIDS, FIBRO, and HHV6. All of them
    showed the white spots or lesions in various areas.

    My suggestion to you would be to gather up all your films and have one specialist read them. That way you could get a definitive answer. It's pretty easy to say they are a normal part of aging and that answer is used by docs who know little of their real significance.

    There must be a doc at UofM or at the med school at Wayne State who could help you.

    Remember this is your body and your brain and you have the right to know what is happening.
    Good luck..........nancyann
  9. Greenbean7

    Greenbean7 New Member

    I have about 5 over the years. They still haven't found anything! Guess my head is just empty!

    Actually, the first ones were for my migraines and then I had one last fall because the neuro discovered that I have seizures by doing an EEG so he wanted to make sure nothing else was wrong. Once again they found nothing, which actually is very good news!

    Hugzz
    Greenbean
  10. Dolphin_lover

    Dolphin_lover New Member

    Hi Dove,

    my husband and I have CFS and FM. Yes, we both have it and have definate diagnosis from the best known researchers in CFS. He has lesions on his brain. He has had MRI, SPECT scans (w/ & w/out contrast), and PET scans. It does not seem to affect him any, at this point. I have had SPECT and MRI (w/ & w/out contrast)but no lesions. We do, both of us however, have low blood flow in various areas of our brains. Do not be too worried about it. We both were also checked for MS. Me..twice. But we were negative. We both have been sick for 17 yrs and 10 respectively. If you are up to it, maybe you could find some research on CFS & SPECT or MRI. I would do it for you, but having just moved and being relapsed, I don't know where anything is yet. I did have seizures, years ago, but have not had any lately.

    God bless you.
    Dolphin_lover
  11. moxiepup

    moxiepup New Member

    I have had at least 3MRIS and 2 CAT Scans, to rule out MS when I was first being DX I had a lot of the sx of it, but everything is clear.

    I would def keep copies of those films, they are yours you paid for them and then take them to a Neurosurgeon someone experienced in reading them to see what they say.

    I have never heard that people with FMS/CIDS have older brains, did your Dr tell you that? he sounds like a winner telling you the lesions mean nothing, hello they shouldn't be there period.

    good luck,

    gail
  12. Bruin63

    Bruin63 Member

    and it showed, that I did indeed have a Brain. lol

    What the MRI, reveled was a serious case of Mastoiditis.
    They won't operate due to my other conditions, and the fact that it is so close to the Brain, that I could end up worse than, I am now.

    I am dizzy a lot of the time, and I get nauseated, and I have Horrible deep in the ear pain.

    I take Zithomax when it flares up, and also my Soma, helps quite a bit.
    It's my right Ear, and even now it is hurting, and I am losing hearing, I have noticed the last few month's.

    Hope you get some answer's.

  13. Dovebird

    Dovebird New Member

    have helped me so much thank you! So many different stories here and that is mainly what I was wanting to know. My heart goes out to a few of you. Bruin perpetual nausea and dizziness is what I had a first it was scary just seemed to never leave. Every now and then I get some strong vertigo for a day or two and then it leaves again.

    The nuero I see is the one doing my tests every 6 months just to be safe. I believe you are right too in that we can relearn things. I have lost alot that is for sure and I even have a gal offering to help me learn freelance writing. ME with this fog.....hahahaha......but you know what I am going keep my notepad by me and give it go. If you don't use it you lose it anyway sooooooo no excuses. Will post here what happens with MRI's going tomorrow o my gosh its 2:30 in the morning and I have to be at the hosp at noon....ahhhhhh!

    Wanted to let you all know that I found a Chiropractor that does cervical adjustments he wants me to bring my MRI's too. Will let everyone know how that goes....love ya all