Head Tremors

Discussion in 'Fibromyalgia Main Forum' started by JP, Nov 16, 2002.

  1. JP

    JP New Member

    I have a concern regarding head tremors. They don't happen very often and the times they do are when I am in conversation with another person. They started about two years ago. I have kind of a strange sensation come over me, and then it starts. I have not shared this with my doc, family, or another person. It is the strangest feeling and I just want to crawl into a hole and hide.

    At first I thought it might be my cup of coffee in the morning. I soon found that not to be the case. The tremors feel like the world can see and yet no one has ever said anything while it is happening. I usually complete the conversation and seperate myself from others.

    Does this happen for anyone else? Do you know what causes it?

    Thanks in advance for any information and or ideas.

    Jan
  2. JP

    JP New Member

    I have a concern regarding head tremors. They don't happen very often and the times they do are when I am in conversation with another person. They started about two years ago. I have kind of a strange sensation come over me, and then it starts. I have not shared this with my doc, family, or another person. It is the strangest feeling and I just want to crawl into a hole and hide.

    At first I thought it might be my cup of coffee in the morning. I soon found that not to be the case. The tremors feel like the world can see and yet no one has ever said anything while it is happening. I usually complete the conversation and seperate myself from others.

    Does this happen for anyone else? Do you know what causes it?

    Thanks in advance for any information and or ideas.

    Jan
  3. Carlacat

    Carlacat New Member

    I've been DX by a neuro that I have Esstenial tremors. I have tremors in my limbs also when put to use. I take meds for it and its better. I may suggest that you see a neuro cause many things can cause tremors.
    Carlacat
  4. amymb74

    amymb74 New Member

    This happens to me too, especially when I am trying to look a a person & carry on a conversation - the worst is when I'm standing. I never had it checked out - I just hold my hand on the back of my neck to support my head, end the conversation & jet. I guess I have so many strange symptoms that what the heck? Why not this too....I never talked about this w/anyone either except 1 doc who asked if I could show him - like I could somehow 'call it in'. I tried several times to look in the mirror while this is going on - sounds quacky but looking myself in the eye, I can see it shaky a bit..........weird!
    Does that strange feeling that comes over you creep right up the back of your neck & up the back of your head?[This Message was Edited on 11/16/2002]
  5. Roxi

    Roxi New Member

    It's probably weakness in your neck muscles. Would still advise you to mention it to your doctor. Good luck!
  6. Hidn

    Hidn New Member

    Hi Jan,
    I too get tremors in my head like you, also in my hands. I just assumed it was part of this DD. If you find out anything please let us know. (I did ask the primary care doc I used to see, he lowered my thyroid meds) :( Of course that did not help the tremors but did set me back as far as my thyroid went!
    (I dont see him anymore)lol go figure,
    Take care
    Denise
  7. dhcpolwnk

    dhcpolwnk New Member

    I get what might be called head tremors. Have you ever seen those little dolls or figures with a head attached to a body with a coiled spring? They used to make them for sports teams, but I don't know whether they still do. You push the head down and let go, and the head just bounces up and down (or from side to side) for a while. That's how my head feels--especially when I'm tired. This has been happening to me periodically for many years, and I've always attributed it to my MS. But there are so many fibro symptoms that seem similar to MS symptoms, I'm no longer sure what's causing what. I *have* noticed, however, that the head tremor problem is much less when I feel well-rested.

    By the way, this tremor is very different from a Parkinson's Disease kind of tremor. The "temor" I get is really more of a slow, bobbing of the head. It's as if my head were attached to my body by a spring--as with the dolls/figures described above.

    --Laura R.M.
  8. Val

    Val New Member

    person I have seen posting about something I have experienced, I try to explain to my Doctor and Specialist just how I feel. Its a semi-cold, numb, mild tingly feeling that works up either side or the back of my neck, and up my head. It doesn't hurt as such but the first time it happened I was looking after Special needs children. I thought I as having a stroke and realized that I was the only adult in the room and I just COULD NOT be ill at that
    moment in time. It can happen a few times a week now and it still makes me automaticaly put my hand to my head as if I am going to feel something different when I touch it.
    I'm full of meds and finding it hard to explain what I mean
    but, I would be interested to hear if this sounds like your experiences. I gave up work (that still makes me sad, I miss it so) four years ago but only discovered the name to my problem this year.
    Wishing you as pain free a day as possible.
    Shalom...Val.
  9. amymb74

    amymb74 New Member

    That does sound a lot like what I get - it is hard to explain. I used to get severe attacks of this where it would go up the back of my head & I would feel like my whole head was ringing & 'fuzzy' feeling & I was going to pass out - it has brought me to the ER a few times. Now I still get them but very rarely are they so extreme - I have serious problems w/feeling like I am going to pass out. Its not a dizzy feeling - I usually say lightheaded but it feels kind of more 'heavyheaded' It is very scary stuff - I have been going thru this for 9 years without actually passing out - I just don't get it. Amy
  10. JP

    JP New Member

    it is somewhat of a mystery. My tremors are always the same. My head shakes in a "no, no" direction. It must be ever so slight and yet it feels like it is so obvious. It is not like hands shaking from nerves. It seems to come on with a bit of anxiety and interaction. When it has happened, I am talking with people I feel comfortable with.

    I guess I should mention it to my doc, as I have other neurological things going on too. I have trouble swallowing, kind of a stuck in my throat, short circuit kind of feeling. I don't choke, just have things lodged in my esophagus (near the Adam’s apply, hyoid bone) for a few seconds or so. I also have stabbing electric shocks now and then. They really get my attention and sometimes my sensations, like hot and cold are really off. My hands do not work very with with fine and large motor functions, mostly in the morning. I also have quite a range in my body temperature throughout the day. I go from the usual 96.4 up to 100.4 on most days.

    thanks again for all of your help and ideas...jan
  11. Ancient1

    Ancient1 New Member

    I have figured out that fatigue is what triggers my head to toe tremors, change in gait and near collapse. I can be high functioning and in conversation or shopping etc. and without much warning deteriorate so quickly that I will literally change before onlookers eyes.I also looked in the mirror to see if I could find greater insight. Even I can't beleive how dramatic the change is. I am a mother of eight so finding time to rest is a great challenge. I have learned over the years that resting is not an option, it is a fact of life. My children and my husband are very supportive and will often be the ones to remind me when I've passed my limits. It's difficult to convince friends and loved ones that only see these low functioning episodes on a rare day that I will indeed be Ok. It is disappointing when they act as if the world was coming to an end. This is my life and I refuse to stop doing the things I love just because my external beauty is not at its best. I understand how helpless they must feel not knowing what to say or do, so with compassion I simply smile and excuse myself to once again rest. I pride myself on keeping a positive attitude. Ready or not the world will see me doing what Mothers do. The tremors are new, increasing substaintially over the last year out of twenty some years of FMS or whatever label of the day it has been referred to. I just started with a new Neurologist who was referred by a friend who has MS. He spent an hour and a half just listening to me in our first appointment. WOW, he really listened. Thanks for listening. Do you have any other suggestions?