heart murmur? cfs....

Discussion in 'Fibromyalgia Main Forum' started by monicaz49, Jan 27, 2007.

  1. monicaz49

    monicaz49 New Member

    I have a murmur (and more symptoms of dysautonomia than i do of lyme and cfs) which i have been diagnosed w/ both.
    Id like to know how many of you have a heart murmur.

    Also...when i read up on cfs i notice things like swollen lymph nodes and sore throat. I dont have those 2 things. However i have like 20+ symptoms that i live with. Including extreme exhaustion, weakness, body aches, dizzines/balance probs, vision blurry, anxiety, lightheaded, heat intolerant/dont sweat, alcohol intolerance, etc etc.

    Im just curious who has a murmur. Many people do...but for some it can cause the dysautonomia..thats why i ask.
    thanks!
  2. elliespad

    elliespad Member

    Born with it. Still have it. Just hard to hear with all the extra weight on me.
  3. cct

    cct Member

    monicaz49,

    Is a heart murmur the same as mitral valve prolapse?

    Many CFS people, and 40 % of women, have mitral valve prolapse.

    I have a mitral valve prolapse. It can cause fatigue all by itself, depending on how severe it is.

    Also, you may want to think about getting an impedance cardiography. (You can do a "search" on the topic on this message board.) An impedance test may help explain some of your symptoms.
  4. NICUnurseang

    NICUnurseang New Member

    If you've never had the murmur checked out it's always recommended to get a throrough cardiac workup. Alot of murmurs are benign and harmless but many also indicate a condition that should still be monitored in case you were to ever develop complications from it. You may still have dysautonomia even if you don't have ALL of the symptoms, just like not everyone has all of the symptoms of CFS. Dysautonomia does have a lot of the same symptoms as CFS & FMS and can be treated with a few different meds that might not have been previously tried on you. However, it too is hard to treat and can be a very trial and error type of treatment based on symptoms.

    for CCT's question, a murmur is not the same as mitral valve prolapse but often people with MPL will have a murmur. However, there are many other cardiac conditions that also can cause a person to have a murmur. So my recommendation is just get checked out, a good cardiologist will be able to evaluate your murmur and also evaluate you for dysautonomia. Good luck!
  5. monicaz49

    monicaz49 New Member

    thank you. My primary doc says i should see my neurologist again. That may be a good icea, but i definitely think a cariologist is in order now.
    If it is dysautonomia im just wondering if thats the cause of my cfs or the cfs is the cause of that.

    Anyhow...thank you everyone.
  6. shar6710

    shar6710 New Member

    Prickles is right that CFS is an umbrella term. You need to have specific symptoms in addition to fatigue to have CFS. Many conditions can cause chronic fatique (lupus, MS, diabetes, heart failure) but still not be CFS.

    There are many definitions for CFS but the Canadian is very specific and I've included it here. I hope this helps you understand the Dx better.

    (From the CFIDS website)
    The Canadian Clinical Case Definition is summarized as follows:


    1. POST-EXERTIONAL MALAISE AND FATIGUE: There is a loss of physical and mental stamina, rapid muscular and cognitive fatigability, post-exertional fatigue, malaise and/or pain, and a tendency for other symptoms to worsen. A pathologically slow recovery period (it takes more than 24 hours to recover). Symptoms exacerbated by stress of any kind. Patient must have a marked degree of new onset, unexplained, persistent, or recurrent physical and mental fatigue that substantially reduces activity level. [Editor’s note: The M.E. Society prefers to use “delayed recovery of muscle function,” weakness, and faintness rather than “fatigue.” Further, we disagree that the muscle dysfunction and post-exertional sickness is “unexplained.” See our Cardiac Insufficiency Hypothesis page and our Research-Based Subsets page for researchers’ medical explanations on this website.]

    2. SLEEP DISORDER: Unrefreshing sleep or poor sleep quality; rhythm disturbance.

    3. PAIN: Arthralgia and/or myalgia without clinical evidence of inflammatory responses of joint swelling or redness. Pain can be experienced in the muscles, joints, or neck and is sometimes migratory in nature. Often, there are significant headaches of new type, pattern, or severity. [Editor’s note: neuropathic pain is a common symptom and should be added here as well.]

    4. NEUROLOGICAL/COGNITIVE MANIFESTATIONS: Two or more of the following difficulties should be present: confusion, impairment of concentration and short-term memory consolidation, difficulty with information processing, categorizing, and word retrieval, intermittent dyslexia, perceptual/sensory disturbances, disorientation, and ataxia. There may be overload phenomena: informational, cognitive, and sensory overload -- e.g., photophobia and hypersensitivity to noise -- and/or emotional overload which may lead to relapses and/or anxiety.

    5. AT LEAST ONE SYMPTOM OUT OF TWO OF THE FOLLOWING CATEGORIES:

    a.AUTONOMIC MANIFESTATIONS: Orthostatic Intolerance: e.g., neurally mediated hypotension (NMH), postural orthostatic tachycardia syndrome (POTS), delayed postural hypotension, vertigo, light-headedness, extreme pallor, intestinal or bladder disturbances with or without irritable bowel syndrome (IBS) or bladder dysfunction, palpitations with or without cardiac arrhythmia, vasomotor instability, and respiratory irregularities. [Editor’s note: low plasma and/or erythrocyte volume should be added as another explanation for orthostatic intolerance in this disease. More cardiac symptoms should be listed such as left-side chest aches and resting tachycardias, which, in addition to low blood volume, have also been documented in the research. The full text of the case definition does suggest 24-hour Holter monitoring, and when tachycardias with T-wave inversions or flattenings are present that they not be labeled as nonspecific since they aid in the diagnosis of ME/CFS. The frequent tachycardias seen in ME/CFS have been shown by Dr. Paul Cheney to be a compensatory mechanism that serves to increase cardiac output in the presence of low stroke volume due to diastolic dysfunction in the heart. Orthostatic problems may also be related to diastolic dysfunction as recently shown by Dr. Paul Cheney. See our Cardiac Insufficiency Hypothesis page.]

    b.NEUROENDOCRINE MANIFESTATIONS: loss of thermostatic stability, heat/cold intolerance, anorexia or abnormal appetite, marked weight change, hypoglycemia, loss of adaptability and tolerance for stress, worsening of symptoms with stress and slow recovery, and emotional lability.

    c.IMMUNE MANIFESTATIONS: tender lymph nodes, sore throat, flu-like symptoms, general malaise, development of new allergies or changes in status of old ones, and hypersensitivity to medications and/or chemicals.

    6. The illness persists for at least 6 months. It usually has an acute onset, but onset also may be gradual. Preliminary diagnosis may be possible earlier. The disturbances generally form symptom clusters that are often unique to a particular patient. The manifestations may fluctuate and change over time. Symptoms exacerbate with exertion or stress.

  7. Hope4Sofia

    Hope4Sofia New Member

    I have both. It rules my life.

    Right now I'm looking into the connection between dysautonomia and adrenal insufficiency.

    My last DHEA was low and my Endo is testing my cortisol etc. to see if that's at play as well.

    Sofi
  8. Shannonsparkles

    Shannonsparkles New Member

    Also, the mitral valve prolapse?

    My heart was acting really weird this week, and I had to be in bed while it was doing that. I saw doc on Saturday, said heart sounds fine, come back if it happens again. It was pretty scary, was wondering if I needed an ambulance.
  9. monicaz49

    monicaz49 New Member

    may have been heart palpitations...not to be concerned ..that is part of alot of health problems from anxiety to cfs to anything really.
    Murmur is a clicking sound heard by a doctor listening to your heart. It is basically a problem with the flap/valve i think. If you are concerned just ask your doctor to listen carefully. In the sitting/standing and lying position just to be sure.