Heart problems?

Discussion in 'Fibromyalgia Main Forum' started by yagottalaff, Sep 13, 2005.

  1. yagottalaff

    yagottalaff New Member

    Maybe you guys have already discussed this, but I'm a newbie and am wondering if any of you have heart problems that your docs do not consider "serious," and yet you know that something is most definitely NOT right with your heart...
  2. fivesue

    fivesue New Member

    I would think that a doctor would not consider a heart condition serious. I guess it depends on what he/she thinks it is and if there have been tests.

    You can always get another opinion if you're not happy with this dx. In fact, it seems like you really should as you are feeling that strongly about it. I have to hope your doctor is right, but you do know your body. A second opinion is definitely in order.

    You could also do a search on the net...find out more if he's labeled your condition.

    Take care...keep us informed. Welcome to the board!

    Sue
  3. orachel

    orachel New Member

    Interesting question. I was diagnosed last year with PVC (premature ventricular contractions). Basically a kind of arrythmia (sp?), but according to pcp cardiologist and hospital is not dangerous, but can be uncomfortable. Darn right was uncomfortable...I could literally feel my heart skipping beats, beating really hard randomly, felt very "fluttery" in my chest. Very disturbing.

    Here's the kicker. My mom was 36 and in perfect health when she went into cardiac arrest (doc told me her heart skipped a beat and they could never get it to stabilize after that) multiple times, and then passed away.

    I'm freaked bigtime, but everyone keeps telling me not to worry. I have awful pains in chest heart, but they say thats no big issue either. I'm guessing at this point if "aliens" type monster burst out of my chest cavity, my cardiologist miiiight consider it a problem, but that's about what it would take for him to take notice.

    Gave up caffeine and chocolate (sob!) for few months, took some antidepressants for stress (all this was long before my FM), and it just sorta went away. Well, its still there, but doesn't act up too much.

  4. Adl123

    Adl123 New Member

    Hi,
    I have come down with congestive heart failure, even though my heart is structurally sound and my arteries are clear.

    I have come to believe that CFIDS weakens the heart, just as it does all the other muscles, and, after a while (in my case, about 30 years) the heart is not strong enough to get enough oxygen through the body, if the conditions are not favorable.

    About 5 years ago my Dr. told me not to go above 3500 feet, and definitely never to sleep that high, because my heart would not pump enough oxygen and I could just quietly die in my sleep.

    This explains why, once when I was visiting a friend at 4600 feet, I had chest pains and a bad headache.

    So now. I do not go into any reduced oxygen atmosphere, like a plane or a casino, and I stay under 3500 feet.

    I hope this helps.
    Terry

  5. lease79

    lease79 New Member

    I suffer from sinus tachycardia, missed beats, abnormal rhythm, but its all just fine *rollseyes*
    Dr's don't seem the slightest bit concerned with the fact that I can't even walk a short distance & that if my heart rate goes up, that it can stay up for days :(
    I am going to nicely ask my dr to send me to see a specialist that can check things out properly ;)

    Lease
  6. tilla

    tilla New Member

    I sleep with oxygen at night. I am up at 8,000 feet and I have been having trouble with breathing. Doc put me on oxygen machine at night. I have sleep study next week. Since I have been on oxygen - no pain.

    Tilla
  7. Therrell

    Therrell New Member

    That is what I came on the site for tonight. I was diagnosed with Mitral Regurgitation last week and just wondered if anyone else had heart problems??
  8. JLH

    JLH New Member

    I also have heart problems, but my cardiologist DOES think that they are serious, unlike your doctor!!

    I have a dual-chamber pacemaker, as well as the following problems: congestive heart failure, enlarged heart, heart murmur, supraventricular tachardia, bradycardia, and atrail fibrillation.

    None of my heart problems have anything to do with the fibro/cfs.

    I also have obstructive sleep apnea and sleep with a CPAP machine and oxygen. (I do not live at a high altitude.)

    The obstructive sleep apnea is what caused me to go into congestive heart failure!

    Like someone has already said, if you really feel in your gut that something with your heart is not right ... get a second opinion from a specialist. If you have had ANY type of heart testing done by your current doc, make sure you take copies of those tests with you when you see the specialist or whoever is giving you the second opinion!

    Take care,
    Janet
  9. yagottalaff

    yagottalaff New Member

    Thank all of you for your responses and warm welcome to the message board. The only way I could get treated for high blood pressure was to have a hysterectomy, and my primary care doc decided that he didn't want to look bad to the surgeon, so he put me on cardizem three days before surgery. It's a nasty drug, at least added to the cocktail I'm already taking. But the point is, that for over a year, he didn't think it was a problem until he had to address it. In my HMO, the docs he's referred me to have been pretty judgemental about my CFIDS diagnosis. Don't want to go through that again...

    My heart sounds like a deck of cards shuffling, which is likely the mital valve prolapse. But my real concern is that many of our heart problems are viral in nature, which isn't real good news. Have y'all heard about that woman's son who died of viral myocarditis? That was a real eye-opener. If anyone is interested in reading about this, I have a good friend who has the info.

    Thank you for letting me know I'm not nuts or alone!
  10. Mikie

    Mikie Moderator

    If you use the search feature, you may be able to bring up some of our old posts. There was an article by Dr. Cheney on cardiomyopathy in patients with CFIDS. This article is a bit alarmist and not his best effort.

    I had two wave changes on my EKG so I recently had a complete cardio checkup including a nuclear stress test, echocardiogram, and some other test which scans and takes pictures of the heart which produces a 3-D picture. This was done both before and after the stress.

    I was relieved that my doc told me that it isn't possible to have a more healthy heart than I have. That was good news because I've been sick almost 15 years now. I had been having some pressure in my chest and now attribute it to panic attacks. I had thought my Klonopin had gotten rid of panic attacks, but they come in many forms.

    Love, Mikie
  11. yagottalaff

    yagottalaff New Member

    Thanks for the info. I'll search for the other discussion. And congrats on having a happy, healthy heart!!