Hello All

Discussion in 'Fibromyalgia Main Forum' started by markie101uk, Apr 5, 2009.

  1. markie101uk

    markie101uk New Member

    Hi All, I was pointed to this board by a fellow sufferer on facebook.

    My name is Mark and I live in the the UK (London). I have had cfs for 10 years now. I first got ill when I had chicken pox and have never been right since.

    Fatigue is only part of my problem, I tend to manage it pretty well (by not doing anything!), although mental fatigue can get quite servere at times. My main problem is really bad headaches/migraines. I wake with a bad headache and find myself taking pain killers all day and most of the time they don't help at all.

    I do see a cfs doctor but only by phone as she is 300 miles away and I am not well enough to travel that distance.

    I hope you guys can help me find a solution to ease my headaches/migraines as this is really getting me down after having them everyday for the last 3 years.

    I had EPD injections but they made my condition worse so I stopped taking them.

    I have always thought that sugar was playing a key roll in my headaches but I can't be sure.

    Heres a list of my current medication:

    Co-Q10 (not taken for a few months)
    B12 Injection
    Magnesium Injection (not had for a while)

    Rizatriptan (for migraines)
    Ibuprofen (pain)

    I look forward to having a good read of this board and speaking to fellow sufferers.

    take care

  2. rockgor

    rockgor Well-Known Member

    Welcome to the board. Lots of nice people here to talk to.

    Sorry to hear about the migraines. My big symptoms are lack of energy, sleep disturbance, depression
    and brain fog. I don't really know anything about migraines. I don't even get regular headaches. Life
    just isn't fair. But you already knew that, right?

    Lately I have been taking vitamin D3 and the vitamin B12 patch. These help w/ depression.

    If you want to see what I've tried and consider if you want to try the same, you can read my profile.
    Just click on my name above. If it doesn't work, try again later.

    You can find the board rules in the upper right hand corner. If you want to talk about other topics
    like pets, TV, music, family, etc. you can visit the chit chat board. This site has boards on several

    Good luck

  3. markie101uk

    markie101uk New Member

    Thanks for the welcome!

    Seems this board is very active so I have plenty to read up on!

  4. Shananegans

    Shananegans New Member

    I was on Depakote ER for 2 years for my migraines (from 2005 to 2007) and I've had three migraines since (that is in the last 2 years!). My migraines were so bad I had at least 3 to 5 a week and was unable to do anything to far away from my house as one could hit out of no where and I would be debilitated and terrified to let others see me like that. I suffered for close to a year before we found something that worked.

    I took 250 mg of Depakote ER in the morning and 500 mg at night. We were also using the Depakote to treat my muscle spasms and to help me sleep. In case you are curious, Depakote is an anti-seizure medication that blocks certain receptors in the brain (not sure which ones). It was a godsend for me. Maybe it could help you too?

    best of luck!
    [This Message was Edited on 04/09/2009]
  5. nixon

    nixon New Member

    I also suffer from headaches/migrains. I have YET to find anything that REALLY helps ALOT. I've never been diagnosed with migrains, but have MANY of the symptoms. I wake up with headaches, TRIED EVERYTHING...nothing helps much though.......

    I also suffer terrible sinus issues! All KINDS of problems actually!!
    You will find alot of VERY interesting reads here, as well as many interesting people!! Andrea
  6. Bunchy

    Bunchy New Member

    I'm also in the UK (Thames Ditton in Surrey to be precise) and wanted to welcome you to the board.

    I'm out of it tonight but hope to see you around - this is a really great board :)

    Love Bunchy x
  7. 3gs

    3gs New Member

    welcome aboard

    sorry i just went totally blank from brainfog/flare with combo doc gave me. Know first signs of headache drink a coke or better mountain dew(can you get that?)its the caffeine that helps.
  8. jasminetee

    jasminetee Member

    Welcome to our Message Board. Sorry to hear you have CFS too. I've heard that people can get it after Chicken Pox. I know what you mean about having to do nothing. I'm in the same boat.

  9. ladybugmandy

    ladybugmandy Member

    mark..there is only one thing to do if you want to recover. do whatever you have to do to get some money (about $10 000), go to the states, see a CFS specialist (i would strongly recommend dr. a. martin lerner in michigan), get a treatment plan, and go back to the UK. then, find a local doctor who will agree to follow the treatment plan (this might be the hardest part).

    dr. lerner specializes in treating CFS that develops after herpes virus infections.

    i have had this disease for over 17 years. i developed it after mononucleosis. i believe i would have died if it weren't for this doctor in michigan. i have been on antivirals for almost 2 years and am finally - slowly - getting my life back.
  10. markie101uk

    markie101uk New Member

    thanks for the welcome guys.

    I have to see a neurologist on the 28th so hopefully they will prescribe me something that helps.

    fingers crossed.