Hello Everyone. New to Boards. Fibro Sufferer

Discussion in 'Fibromyalgia Main Forum' started by Zombie69, Dec 25, 2005.

  1. Zombie69

    Zombie69 New Member

    Greetings Everyone. First of all I want to say that I hope everyone had a great Christmas and I wish everyone a Happy New Years. I am new to these boards and was looking for a place to talk to others who also suffer from Fibromyalgia so here I am. Here's a little info on myself: I am 31 years of age and have had Fibromyalgia for at least 9 years now, possibly longer. I have basically just started feeling it in the last nine years. When it first started I just started having bad pains that came and went, I thought it was just Arthritis which I also suffer from. I am borderline Rheumatoid Arthritis, or that's what the Dr. said and anyway I was still able to work it's just some days I hurt pretty bad and other days I was so tired I couldn't stand it. I believe I probably suffered from Fibromyalgia longer than this but I didn't notice it as much due to my younger years of drug abuse. I did alot of Cocaine and if anyone has ever had that problem then you'll know that lots of coke will kinda numb you out. So when I finally kicked all of my drug habits is when I first started noticing the pain. It went on for a few yrs and I was able to work then about 5 to 6 yrs ago it got progressively worse and I started calling in sick alot from work or going home early. Some days I would go in and only after thirty min. to an hour I would ask to go home because I hurt too bad. I eventually lost my job because of my pain and started going to Doctors to find out what was wrong with me. I won't go into the whole great doctor journey. I'm sure most of you'll have experienced this. Needless to say after countless doctors I finally found a good doctor who was very well educated who knew exactly what was wrong with me after playing pretzel with my body. He folded me up here and there and watched my reaction to the pain he was causing me, hehehe. And I was diagnosed with Fibromyalgia. I didn't know anything about it at the time but started doing lots of research and I have now been diagnosed with Fibromyalgia from several different doctors. My pain is worse in my back. It feels like my back is always swollen. It is very sore to the touch and the pain kind of moves around. One day it may be my left side and the next my lower right side. I hurt all over, especially my legs and sometimes my arms and armpits but my back is the worse of it. I have tried countless treatments none of which really helped much and was given narcotic painkillers for years which I became addicted too. No suprise there. I should have known better from my earlier addictions. I just can't take drugs. I have some weird hole inside of me that only drugs have ever been able to fill and even though I needed the pills for pain, I still over-did it. So not only was I taking them for pain but I got to the point that if I didn't take the pills then I got very very sick. I of course eventually told my doctors who cut me off of them immediatly and suggested a freaking rehab which did nothing for my state of mind or pain I was in and then I discovered that which has enabled me to function half way normal for the rest of this time - Methadone. I went to a Methadone clinic. I couldnt' afford any more doctors and it was just cheaper this way, not to mention that once you've told the truth about being addicted to anything, most doctors will no longer even consider giving you anything like this and I'm sorry but Ultram and Tylenol just don't cut it for my pain. Anyway. here I am. I am able to function a bit better now and the methadone helps the pain alot more than all those painkillers and it also helps fill that hole inside of me. I do wish I could afford a doctor because the way they prescribe methadone would help my pain much more than just a single dose every day. For pain, you usually get several doses throughout the day to keep the pain at bay. So I just have to take it easy and not do too much. Just lifting something small can cause me to be in horrible pain for days. It's like Mike Tyson came over and beat me in the back with a baseball bat. I keep expecting my back to be all black and blue and swollen but it never is. Just sitting back in a chair causes pain. I am in the process of filing for Social security so that I can afford to see a specialist about this and to get the pain more under control. Until then, I'll just keep doing what I'm doing and taking it easy. I feel for each and every one of you who also suffer from this. I'm not suggesting or advocating methadone for anyone. It just helped me. If you're also addicted to opiates then it may help you too. Or there may be a better solution out there. Just something to keep in mind. There are alot better things then plain rehab out there and for anyone thinking of rapid detox recovery, I would advise against it. I have done lots of research on it and have found that it is VERY dangerous and not at all safe and easy like they say it is. You still go through major withdrawl that can last for months after it. Just look around, do your own research, there are lots of options out there, each may be right for someone else. Knowledge is the key. Sorry for the long speech I just wanted to let everyone know my story. I'll talk to you'll soon. Merry X-Mas and a Happy New Year. Happy Holidays : )
  2. windblade

    windblade Active Member

    Happy Holidays and Welcome,

    I have cfs and some osteoarthritis. Have had cfs for about 12 years. This is a great place for support, ideas, help of so many kinds. I hope you find good help here!

    And I hope your disability goes through. Quite a few people here have it or are fighting for it.

    It's good to do a lot of research - I keep finding more things to try. Yes, detox - I agree it's much better to do it very slowly and carefully. Drinking a lot of water is one of the best detox. available. I drink distilled.

    Welcome again
  3. dononagin

    dononagin New Member

    Stick around.. there is a lot of support here..

    I know a few people that are on Methadone for pain.. They mostly get it from Pain Clinics.. A friend of mine with severe Diabetic Neoropathy swears by it. It seems to last longer for her then the opiate pain relievers.. up to 12 hours.

    You will find there are some here into the holistic aproach which may be helpful to you.. some alternatives to traditional drugs..

    at any rate you aren't alone.. there are many of going through the same thing..

    Again Welcome!
    Dona

  4. BLUEROSE7

    BLUEROSE7 New Member

    Just wanted to say Hi and Welcome to a great board!! Lot's of caring, loving and understanding people here!!

    You will find lot's of information here!!

    Welcome aboard
    Hugs
    Bluerose
  5. Sandyz

    Sandyz New Member

    I`m glad you joined us. This is the best board for FM as far as I`m concerned. I hope you get out of it as much as I have.

    This is such a difficult disease to live with and having some good support makes it a lot easier. I hope you had a great Christmas and also Happy 2006.

    Sandy
  6. Sandyz

    Sandyz New Member

    I`m moving this back to the first page for you so hopefully more people will see it.
  7. Musica

    Musica New Member

    I'm sorry it took so long for you to find support for the FM, but I'm glad you finally did.

    I'm puzzled as to what kind of test your doctor did who first determined FM - the one who folded you up like a pretzel. Usually they do tender point tests, and if you have borderline RA, that could have been painful from that, as well!

    Have you had your back checked for other problems?

    I hope you will find this site a good source of information and support!
  8. Zombie69

    Zombie69 New Member

    Thanks everyone. I'll try to remember in the future to space between my paragraphs. The first doctor who diagnosed me did tender point tests and then he kinda took all of my joints and folded them every which way to see where I hurt - I don't know if that was another part of them checking my tender points or not, he was a very fast speaking doctor and I had alot of trouble understanding him. He was a rheumatologist. I went to another local doctor here afterwards without bringing my records to him for a second opinion and he did some tender point tests and also concluded that I had Fibromyalgia. I've had almost every test conceivable done on my back and all of the doctors agree that it is a symptom of my Fibromyalgia. Especially since the pain moves around alot, feels swollen and sore all of the time and there were no major or minor injuries to cause these problems. Anyway, thank you all for your support and writing back. I look forward to getting to know all of you and to learning from you all. I had a great X-mas and hope to have a great New Years also. I just have to take it easy and enjoy alot of the small things in life now. I hope you all had a great Holiday and a happy New Years.