Hello...New Member here

Discussion in 'Fibromyalgia Main Forum' started by lmr422, Feb 1, 2006.

  1. lmr422

    lmr422 New Member

    I have recently joined this group, and I am looking forward to being a member.

    I am tired of being sick and tired. Over the past several years, I just feel crappy all the time. None of the doctors I have seen can find anything wrong with me that losing weight can't cure.

    I have just about every symptom on the Fibromyalgia "list." The worst one is the persistent arm pain. I always feel like I am recovering from doing some major heavy lifting (which I haven't done). The night sweats and interrupted sleep are other symptoms that I despise.

    How do I go about finding a doctor in my area who will listen to these complaints without making me feel that if I lost weight, all would be alright and I'd "recover?"

    Thanks,
    Lisa
  2. WoodstocksMusic

    WoodstocksMusic New Member

    I can identify with you. It took me over 8 years to get diagnosed... I had never heard of it until my Doctor told me on one particular visit said well dang Barbara...let's look back over your charts (after I said Doc...I am in here every 6 months falling apart again and either needing an injection in my back or shoulder...or dying because I cannot sleep...) He sat with me and looked over my charts of 10 years worth and finally said Barb...this sounds like Fibromyalgia but we are going to do some blood work to rule out things like MS...Lupus...etc.... a month later he says Fibromyalgia is all that is left as a diagnosis now... lets work on the pain and the sleep.... then as you can start gettin exercise because that is the key to feeling better...

    and he was right...stop the pain...get sleep and the more I can do the more I feel like doing the next month...that is until I overdo and crash and have to start 3 steps back because I moved forward to fast...

    You do not always need a physician to treat Fibro...but you do need a Dr. that will help you treat the pain and help you get some sleep for extended time (probably 3 to 6 months of good sleep before you even begin to start to feel human again)

    Good luck.... and try telling your doctor something simple like I have got to get some sleep... these months of running on 2 hours of sleep a night are killing me!

    And then... try telling him that now that your sleeping a little better the pain is the worst problem....

    I always say that you can ask me at different times what is the worst part of this DD and you will get a different answer...when I hurt and sit in tears in the recliner at 2 am because I hurt to bad to sleep then it is the pain that is worst....but when I have the pain under some control I think that if I could just get a full week of 8 hours a night I would feel like my old self again...

    I think the big step is using the doctor to stop the pain and help you get sleep until you can learn to control those 2 things yourself....

    It took me over 3 years to get to the point where I no longer use Ambien for sleep nor Loratabs for pain.... I have been prescription med free for almost 6 months now. And the winter months were always my worst (and are this time too but I have managed without pain or sleep meds this year)

    Good luck and weight carefully what you hear on this board...it is terrific but what works for one person my not work for the next...learn to listen to your body (this takes time) and you will get a life back...not your old one but one that functions almost normally again!
  3. pirtpain

    pirtpain New Member

    Where do you live? A Rheumatologist would be the best dr.
    I think, just ask ahead of time if the dr. is familiar with Fibro. Also I get my anti-depressants from a Phychiatrist.
    I am sorry to hear that you have fibro. & you are very lucky to have joined this group. You will learn so much here and also get the support frm others that understand your disease. WELCOME ABOARD!!!

    PIRT
  4. Lindy2

    Lindy2 New Member

    Welcome to the boards! I hope you will enjoy as much as I do coming here. I have learned alot by reading the post and meeting new friends.

    You can do a search or post on the message boards for Doctor's in your nearby area.

    Have you tried the chat room as well, it can be alot of fun.

    Hope to see you soon!
    Lindy
  5. Countrymom

    Countrymom New Member

    Just wanted to say Hi.

    There is an FFC in philadelphia. You can check out their website. Fibroandfatiguedotcom

    Good luck, glad you found the site

    Dani

  6. jaltair

    jaltair New Member

    Look for a Rheumatologist.

    You might ask friends in your area if they know of one that is good, or call the Medical Association in your area and ask what Rheumatologist is accepting new patients.

    Rheumatologists are familiar with the physical exam required to find the necessary "tender" spots that make the diagnosis, and they also will prescribe needed medication as is recommended by research.

    If you haven't had a chance to look at member profiles, do it, you'll get a world of information and get to know individual details about their disease status. You get to profiles by "clicking" on their handles.

    In addition, you can also post a profile. At the upper right, you'll see where is says, "You are logged in as: “lmr422" - to the right, you can "edit" your profile. You may post a picture and also information about you (as much or little as you like). It's a real plus to do this so that people can get to know you better and you them.

    I hope that you'll enjoy this site, there is quite a bit of information on it, and a lot of knowledge from the posters. Another hint: if you would like to look up a particular topic, you can see what previous posts there have been by entering the topic into "Search" at the upper left. The "Library" up at the top will allow you to search for information.

    Have fun getting to know the site and everyone on it! Oh, by the way, you can learn more about me by "clicking" on my handle, "jaltair."

    Warm wishes, Jeannette
  7. kch64

    kch64 New Member


    Glad you found us. I'm heavy too and even the rheumatologists (two of them) both said I have FM/CFS, I still need to try and loose weight.

    However, being overweight doesn't mean that you don't have FM/CFS.

    Find a rheumatologist and go see them. Ask them all the questions. They will tell you if you have it or not.

    Regular docs just don't seem to want to diagnose it.

    Good luck and keep reading the posts. You'll get lots of information on here.

    Kendra
  8. Cromwell

    Cromwell New Member

    You are in the right place for support, love, understanding and also a laugh just when you need it. People have done a lot of research, tried things, and also we have a lot of people with medical backgrounds who can answer some questions re tests and such.

    Sorry you have this DD but feel better.
    Hugz Anne
  9. NyroFan

    NyroFan New Member

    Lisa:
    Same here: feel awful all of the time. Today it is a deep, deep ache in the bones, all of them. I identify about losing weight. Although i am not obese the doctor i have for FM/CFS insists I lose more weight. He had turned out to be a nag, so I try. I do the best I can. I told him that the next time I see him he will see a newer, leaner 'NyroFan'. Yeah, right. Oh, well: I do not know of anyone who has not gained weight on Elavil. Like you I do the best I can.
    Hugs,
    NyroFan
  10. lovethesun

    lovethesun New Member

    but don't be discouraged if he wants tests run.A lot of times Fibro is diagnosed by a process of elimination because it resembles a couple of other diseases.Give them your symptoms and let them figure out the persistent arm pain.

    If it's Fibro they won't be able to figure it out.A neurologist diagnosed me with fibro.Younger doctors are more up on fibro generally than the older ones.That's all I can think of.Welcome to the board!
  11. JLH

    JLH New Member

    I am glad that you found us! I see that others have already told you that the specialist to give you a diagnosis of fibro is a Rheumy; however, your primary care physician (PCP) can do this, too, if he is knowledgeable about fibro.

    My PCP is an Internal Medicine doc and takes care of me, as well as my Rheumy.

    One thing that you mentioned, your night sweats, that may or may not have to do with fibro. I read your bio and saw your age, and the night sweats may be peri-menopause! Yes, believe it or not, in your early 40's is when you start having some of these symptoms. Read up on peri-menopause. I am 55 now, but started on Premarin in my early 40's. It doesn't matter if you have or have not had a hysterectomy.

    You need to ask one of your docs if you could have a sleep study. That will tell you your problem with interrupted sleep. It could be due to the hot flashes or not. I had one and it showed that I have obstructive sleep apnea. Where mine is obstructive, it was causing me to go into congestive heart failure. I now sleep with a CPAP machine and oxygen.

    Most everyone with fibro takes an antidepressant--they help people in chronic pain. I take Cymbalta. I also take Neurotin for the fibro, Volteren for arthritis pain, and Zanaflex, a muscle relaxer to help me sleep.

    Hope you find a doc to help you with your symptoms!

    Hugs,
    Janet
  12. MamaR

    MamaR New Member

    Wanted to welcome you to the board.

    Wish that I could help with a doc...but I live in Florida.

    But...sure you will get some leads from others in your area that are on here.

    See you around!

    Mari